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Everything posted by Swishy

  1. Dear Claudette, As Kathleen wrote above...I care...you have been through so much... I understand your worry and I also understand wanting to protect your loved ones. They will be a comfort to you as you navigate all this. Sending hugs and you are in my thoughts and prayers. xx Jean
  2. Many thoughts and prayers are with you today Ann. Hope each day finds you feeling better. xx Jean
  3. Thanks so much Tina...Always good to get a good report. xx Jean
  4. Welcome back to BTG...so many wonderful people here who are very generous with kindness and support. Jean
  5. Hi Tina, Thanks so much for the good wishes...I didn't wake up feeling great, had a tough night but after about the 24 hour mark I began to feel more like myself. My balance feels back to normal . I have never had this happen to me before so I was not expecting it. This is a surveillance test I have every 5 years or so because of a family history of colon cancer. I have never had any concern about having it. I guess everything changes. again thanks Tina. xx Jean
  6. Hi All, I had my SAH 4 years ago but for the first time since had a medical procedure that included being put to sleep with propafol (spelling may be wrong)...I tolerated it all well woke up quickly but have been wobbly (more than my usual swishy (feel like I am walking on a boat) self. It was noticed by the medical staff and my usual swish is not. As I said my first time having any type of anesthesia since my event...Is it typical to take a bit of time to get back to my old self. This was early this morning it is evening now so hoping to wake up tomorrow good as new and wiser the next time. thanks Jean
  7. Hello and welcome to BTG...so many wonderful helpful people here. I am glad you found us...You sound like you are making good recovery, be very gentle and kind to yourself. The brain takes time to heal. Being with your mom is wonderful we are all here supporting each other as we have all recovered .... I too am from the east coast of the USA but here we are with our support group from across the pond...Love them. xx Jean
  8. Dawny I am so happy your surgery is over and you are recovering. It is very interesting and amazing what brilliant surgeons are able to do. Be well... xx Jean
  9. Hi Sue, I too welcome you. So very sorry to read about your accident. This is such a wonderful supportive group. It is so difficult waiting for our bodies to recover. As Tina said "be kind to yourself"... I wish you well as you recover and also well wishes to your husband, you both have through a lot. Jean
  10. Puppies can do that what a wonderful way to stay busy.
  11. Congratulations on your 9th Anniversary. I am happy you have found ways leading you to a happier stress free life. I have found mindfulness to be helpful also. All my best as you continue your journey. Be well, Jean
  12. Hi Ann You have been through so much and yet you find strength for your boys❤️ I send you sincere wishes for continued strength waiting for your September date ...I think you will indeed rock that clipping scar xoxo Jean
  13. It is a wonderful feeling to have finally have answers to something that is bothering you. You are young and of course want to be your best. I hope you find yourself feeling better soon.. Jean
  14. I am so happy reading you have found a Dr. who is helping you understand what happened to you. A good patient Dr. can make all the difference. I agree with Mario "not knowing is dreadful"...
  15. Hi Colleen, I really understand what you say...Tylenol just doesn't do much at all...I just flew to see our son a nearly 6 hour flight and I was almost out of my mind with back pain...My neck is also a problem with a pinched nerve that causes pain down my arm and some numbness in my hand...I was so miserable for 24 hours after getting to our sons house I could do nothing...I dreaded the flight home it wasn't direct and was not good but better. I would so love to take Ibuprofen but I was advised not to by my neuro. I had a bleed that they could not determine a cause for. No aneurysm sac was seen... So sorry your hand is still numb...10 hour surgery is such a long time...I do hope you are feeling better. I am thinking of a shot in my neck for the pinched nerve, my back is still a mystery I have sensory loss down my leg, some days I get down about it and feel like no point in trying to get help...but I persist, hoping to make the most of each day... Again thank you Colleen, your post made my day, having someone who understands...this is why this site is so wonderful. xx jean
  16. Hi Claire, I thank you so much for your advice. I will for sure be in touch with my Dr. as I am literally miserable sometimes... I am on vacation at my son's house in Nevada and trying to put on a good face but yesterday was horrible, today a bit better, took some Tylenol but I am off the Prendisone and feeling a big bad difference. I guess it always comes down to benefits vs risks...I had a horrible flight here, I know I have to do something. xx Jean
  17. Hi Jess, Such helpful information to me thank you...It helps me in my own head to realize why this may be helpful as the doctor, who I did like very much, didn't explain that to me. I feel like I always leave the doctors office with a bit of fuzz in my head haha.... I am doing my best to live my best life... xx Jean
  18. Thanks Jess, I think it is a problem without solution, sad to say. For all the things out there dealing with inflammation is a tricky thing, especially for anyone with history of bleeding. I keep searching hoping to find an answer but... I am sorry you also have pain. the prednisone is only a very short term solution, I think more of a confirmation that my pain is from an inflammatory process... So ice is good still, I do get a lot of relief from it.. Prednisone will be tapered off in a couple of days. xx Jean
  19. Hello, I am 4 years post SAH and vasospasm. Right now I am working to become more comfortable from chronic back and neck pain. I have just learned it is causing nerve pain which up until now I have been blaming on my SAH. I think I blame everything on it truthfully. It is also causing numbness down my leg. It seems to be chronic inflammation, did not suspect this. So I have been seeing a Neuro who has diagnosed me with a pinched nerve in my neck, part of the problem but also has started me on a short course of Prendisone. Well the Prendisone has made quite a difference. I realize it is not a long term answer as it will cause a lot of side effects. Up until now since my SAH I have only used Tylenol, which I think is not very effective, and lots and lots of ice to quiet my back and neck. I almost never bother with Tylenol. Any thoughts, or info on post SAH safe meds, vitamins anything that helps with chronic inflammation. thanks for any suggestions or thoughts I will continue with my Neuro but I fear I might be dead ended and the pain will return with the end of the prendisone... Jean
  20. Hi Sarah, I am so happy you found us. As Super said this is not like a broken limb. Our brains heal slowly and it is difficult to wait. I felt like I could see the difference looking backwards better once I realized that I could see I was making progress....having a little one I am sure makes life so much more exhausting for you, rest every moment you can when your body calls out for it. Good you have family, for help. It took me months to find this site and it has been such a helpful and kind place for me to come. Take care. xx Jean
  21. Hi Michelle, Congrats on 7 years...long time Your post is wonderfully heartfelt...You have had quite a year ... I love what you wrote about the day you spent with friends on your anniversary... I have missed seeing you post often as I find what you write welcomed and insightful...but we all need to step back now and then:) I wish you a wonderful year ahead ... xx Jean
  22. I never saw scans of my head. I had a SAH no sack was seen. I also had a very bad vasospasm a few days later which was worse than the original bleed. I thought for many weeks I had had two strokes, I had no idea what a vasospasm was. I don't remember much from the vasospasm event, in ICU for a week. I was at a very big medical center in Boston, they searched for a cause and said they could not find one. I had no risk factors, except, perhaps a family member. Literally months after my event I remembered my mom having complaints of a sudden tremendous pain in her head. She said she felt like someone hit her in the back of her head. She complained for some time after but never did see a doctor. She often said she wondered if she had a stroke later on but never investigated it. So maybe I was at risk from that but I can't say as I am an only child and both of my parents are deceased. This event had happened perhaps 20 years before. My mom lived to be 85. I read every bit of my records from the hospital, it was helpful to me as I don't remember much. No answers though. I am 4 years out and have basically come to terms with the whole event to some degree. I do understand you wanting to know.
  23. Thinking of Win today...I felt like I could almost hear her singing...What she wrote often made me smile...miss her.. xx Jean
  24. Hi Tracy, Welcome to BTG, so happy you found this site. I also had a SAH and also was very afraid of it happening again. My doctors assured me it was unlikely but It took me time to feel safe again..Time seemed to be my key, the brain is slow to heal. I found this to be unlike any other illness I had, it insisted upon being given time. With time and learning to be patient with myself I began to see things get better... The head hurting...well there is a lot written on this site about head aches and pain. I encourage you to look through what others share. I personally never really had post SAH "headaches" but did have a thunderclap headache when it all began but...I do have some head pains which were worrisome to me but after 4 years I try to not give them too much attention... Tired, yes yes yes...but again time made it get better...I would walk in and out of the kitchen making a meal to sit and rest....I have gotten so much better... As Jess wrote time, relaxing when you need to and yes the water does help.. xx Jean
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