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Mike157 last won the day on September 22 2018

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About Mike157

  • Birthday March 8

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  1. Hi Mandy. Support and understanding from family members is harder than from friends and colleagues. Family see you every day and see you dealing with things differently. One of the easiest ways to show family how hard it is for you is to let them read some of our stories on BTG... There is a great video, explaining with words and pictures of your concerns. I found it a few years ago and have a copy. Its freely available to view by the way. Secondly, now people see us busy, trying hard and doing relatively normal things, don't see the internal strife that we suffer. It can be found here I hope it helps your loved ones understand better? As an EMT your knowledge of life saving techniques is invaluable. Have you looked in to becoming an instructor for this? Look at giving demonstrations with employers/ees so they know the basics, adding information about strokes, how to know what to say, do or how you can help? This isn't limited to this either! Support groups of most kinds, or ideas similar to this?... I use this video to show what difficulties that I may have, I also am very open with my emotions and feelings. I talk about my condition finally I ask them what they feel is right or wrong too... Here is a link to lots of useful information that may help as well, if they read the fact sheets. https://www.headway.org.uk/about-brain-injury/individuals/information-library/ I'll drop by to read any responses... Michael
  2. V.mama. have a word with your Dr. Ask if they can check for migraine issues, these often go hand in hand with a brain injury, these can be treated or monitored using blood tests/medication... Consider making a diary of activities rests, meals, sleep patterns and drinks too. You may find a pattern of stressful situations and then you can adjust the times to suit...
  3. Daffodil. I too have Hydrocephalus and a shunt, diabetic, Epilepsy, high/low blood pressure, diabetic highs and lows, now a possible heart condition to boot! The stress gives me headaches, like you too I use Aromatherapy too, I actually qualified as a very young fit man. I had a business in this field. I currently have 87 different essential oils in my collection.. several great base oils, 3 different burners/misters. One mister in my bedroom uses, Lavender, Sandalwood, Ylang Ylang and tea tree oils. All combined help keep my head and body very relaxed and now quite pain free. In the last month I've only used 8 Paracetamol. Normally I have it on repeat prescription at a high dose, but no more, now only 500mg as needed. Over drinking in a short period can cause pain believe it or not! It's called Hyponatremia. You can also get intoxicated by drinking to fast too. This can cause pain... little and often...
  4. SarahLS a word you should take onboard is acceptance. It's an important word for you. Your old life is now different from the one you now live. Once you accept you are different your mind starts to respond to your new way of life. It took me nearly 8 years to do this.. but boy what a new life I have now.... A new word can be restart. Take a few aspects of how you lived before and try to adjust them to how you are now. I myself was caught in this trap for a very long time. Over the past 18 months my life has blossomed to something that I thought couldn't happen again. Reading some of my posts, I share how I do things each day. I used to drive a lot! 15 times the normal average minimum. (10,000 miles) Swishy you say you struggle with changing in a dressing room! Adapt, how? Why not use a camping chair that folds up into not a lot of space? Cost is nominal too. Easy to carry, you can also ask for one to use, shops are required to provide one! Although not many people know this... Second option is a walking stick chair see here https://www.co-opmobility.co.uk/mobility-aids/walking-sticks/walking-stick-seats/ For you my word is determination. Look and improvise. There are many solutions to the many problems that are sent to test us. Just ask and sometimes someone has solved the problem themselves... just a thought here... Mike
  5. I've checked my sites that I use very often for information. In my usual search engine I typed in 'armchair exercises' I changed the search method to videos. Very similar to what I was taught by my instructor. Having spent 26 weeks rehabilitating I found them very easy on my body. I also use an exercise band to as it adds tension, but is generally gentle on you. Reading your records is a way to learn what has happened to you, but asking questions will give you better answers! I have my highs and lows in quick succession, making me feel like I'm a yoyo! How do I get over this? I train my brain in the most different ways possible. Shopping, Arithmetic, studies, posting on various forums, social, legal and informational too. I have routines that are quite restrictive at times, that's until I can complete them repeatedly and safely. I look for crazy ways to occupy my damaged mind so much so I've learnt to retain, retrain and use my brain in a totally different way to what is expected of me, especially at my level of damage. Which is significant by the way. But I admit I love the things I do, I get so much out of life now, much more than I ever thought possible. I'll respond with more information soon as its teatime. My curry calls me... (I cooked it from scratch). This is my way of keeping busy and happy... Michael
  6. Swimming is a great way to help strengthen your core. In my early day I spent a lot of time in water. Why? It takes all of your weight off of your body, allowing you to have some pain free moments. I use a pool that is about 35m long, I pretend to run, literally. So instead of swimming you're in the upright position, it's a little harder to do but boy it worked for me. More benefits are that you can't fall over in the water so to speak. Use a flotation aid to give you some support too. Start slowly then build up doing a whole width at first then a length. If you find it helps, why not join the aqua-exercice group? It's from there you can join the gym again super slow starts.. If you want to know what happened with you on your night ask for a copy of your medical records. You'll get them and can read everything from them as well as keeping you informed. Mike
  7. Some great comments posted already, time, support therapy and Physio will all help you in the long run. Just ask away if you have any questions as we are open all hours. Taking your time restarting your life again is a must. Too much too soon and it may slow your recovery a little. Theres a lot of stories here on BTG, some will be of use, some may be funny, most are very informative and you can learn how we recovered and helped ourselves with help from other posters to get as far as we have. I wish you both the best of luck in starting your journey please return and let us help you help us? Regards Michael
  8. Welcome to your new group of friends. We all know what you feel, we have been there too. Just remember not to over do things, or do too much too soon. Things will seem very slow, recovery is different for each of us, some parts of each of our own stories may answer some of the questions that you might have. Theres a future for you to discover, take small steps, pause reflect, look forward and set small goals and continue your journey as it unfolds before you. Just pop in to the forums and find us, talk to us, share with us. Together we all learn... Michael
  9. Oh, Jan if you want to know more read my large anni-versary post at 2137 on Saturday!
  10. Morning Jan. I too am alone, (ish). But, I've made some very special new friends too. Depression, reared its ugly head some time ago. I looked into getting support. I found a group called resource therapy. This is run by my local Council and NHS, it helped me so much. I'm no longer depressed as you can see from my posts. Although I don't tell everyone else about how I feel, I do let Elaine and Cookie know. They are my closest support circle. I'm guess I'm lucky enough in a way because I get to be rather silly at times! Playing at my shop, being super silly with Elaine. In as much as making her jump at every opportunity I get. On yesterday's green room topic I have asked if people get anxious as their anniversary gets closer, you have given an answer to that without knowing about the question. Fear is real, but you can conquer it. Just find one thing that makes you smile, build on that, it's fun and will start to overflow into your daily life! Secondly, see if you can find something that gives you pleasure in doing. In my case its cooking. Going to charity shops looking for nice books full of recipes. Here's one I do often. I'll ask Elaine to sit at my feet to look away and listen and not to comment. I pour my emotions out, I feel that by asking her not to do or say anything at the time helps. Just by listening your partner will know what's wrong and maybe a few days later says or does something that makes you smile. Do this weekly and repeat as often as needed. When your lips curl up into a smile then you know you're on the right path. The rule of not saying anything is important. They MUST remain quiet during the talk. Leave notes around your home saying today I'll smile x times and do x things that make me happy. It works.... Occasionally going for a walk in to the middle of nowhere and screaming loudly is also good for you. If you can't go out then a pillow often works too... Once again a long reply for this I'm sorry. But at the end of the day a smile is warming, a scream is releasing and a hug is heaven......
  11. Hi Michelle. Time flies by so fast doesn't it? I remember my 5th so many years ago. But looking back now my life is so much better. Like you it was about the same time for me when I fell from grace. Luckily I was surrounded with my friends. I did get help, but it lasted a mere 4.5 hours. I was booted out and left me to fend for myself. I did, its been very hard. Like you too, I found a great friend, Elaine is her name. But this came only 18 months or so ago. Even this time has flown. I'm rather private with my friends, I keep a lot from them, but they aren't stupid either. They know me better than I do. Although I'm left to my own devices recently I still need help. I chat a lot on here, I don't go out much for social things, unless I'm with my very close group of friends. Even that's starting to dry up! Loneliness can be devastating at times, but a Godsend for others. They don't see the tears or heartbreak do they? For us, having this group is a amazing isn't it? We all know how we are, what we're going through. But we also offer support, love and advice from our point of view, it's like a premier club of people that have been through this before. Like today, my 90 minute journey to dance club and back just to have a flask of tea, feed the ponies and chat in the car, keeps me from going stir crazy at times. I'd love to meet some of you all, have a drink, a bite to eat, to chat endlessly about our lives, sadly I dont know anyone that lives near me... I'd love to WhatsApp message anyway all day, but people have their own lives to live, so we do the next best thing. We post here instead.... In my case, I feel a little bit too much... but not at the same time... Good luck for the next year, may it be full of surprises and happiness... Michael
  12. Don't forget the winter warm discount applications normally open from next month. This Government payment can help you stay warm during the winter. This is worth £140 per year. You need to contact your own suppliers to find out when this years is open. It's a little later this year but you can apply earlier to get on the list... The Warm Home Discount Scheme for winter 2018 to 2019 closed on 31 March 2019. The 2019 to 2020 scheme will start on 14 October 2019. Info from here https://www.gov.uk/the-warm-home-discount-scheme
  13. This for me explains so much about me as a person I thought I would have to share... I posted this on my Facebook tonight. Some of you know my difficulties, some help by being able to understand me more than others. I don't always see my deficits but my friends do, they are there to help, guide and reassure me that it's ok to be different. Most of all it may appear I am an arrogant person, not so, this is one of my many self protective qualities. If you read the link you'll realise that I am awfully ill. I try hard to please and get things right, but I often fail. Not on purpose but because I'm learning still. Even after 9 years next week I still struggle. I continue to learn and get better each day at what I do and say. It takes a lifetime to adapt, help me, help myself. Be there with and for me, help me be the best I can... With your help, support and guidance we can help each other understand I am different but I am me. I am Mike.....
  14. Sorry to hear about your loss, your tribute is very moving. Thankyou for sharing... Mike
  15. Macca, all. My journey started with the help from my daughter Cookie, then picked up by Elaine. Elaine has taught me how to love, how to remember I'm a man, different but still a man. Supportive, loving, caring and so giving. Elaine often asks why do I look at her with so much love in my eyes, I tell her why, I get the comment 'you're so soppy it's so cute' she says. I say no, 'thank you for giving me this experience'. Then I smile as she looks at me quizzically? But hey life is beautiful with her in my life, that's my reason for me to do well. As well as for myself too! In the end the better I feel the less I stress about my condition.... so much so I'll often forget that I'm really ill. One word to explain my life today is Heaven....
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