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Dramblys

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About Dramblys

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    Chicago, US

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  1. Thank you Veronica and Macca. I like Veronica's idea of writing. In fact, before I was working from home due to COVID-19, we both did this a lot. I wake up much earlier than my wife, and would often leave notes for her to read after I was at work. Sometimes she'd write to me after I was in bed. And yes, a balance of love notes and serious communication is important.
  2. It's been about two years since I've been on the forum here., and 2-1/2 years since my wife had her SAH. If you read my previous posts, you'll see that she was generally very fortunate for her outcome. The visual disturbances I mentioned before are largely gone. The chronic headaches are still there but not as bad and being managed with medication. The doctors say she's essentially "healed". She's hardly missed a beat with her work as a songwriter and musician and gets into her home studio most days. But, she says she still feels changed. Yesterday, she said she was glad I u
  3. Sarah, I am so sorry for your loss. It's been about 2 years since I visited the forum, and then only for a short time in the early days of my wife's SAH recovery, but I immediately remembered your mother as soon as I read your message. She was among the first to reply to my posts each time, with compassion and humor. Just now, I looked back at her first reply to me and I saw a bit of advice I realize should have been more careful to follow all along: "Do not let wife hear sad stories of doom and gloom. I cannot take sadness anymore !!" Thank you Win.
  4. It is now nearly 7 months since my wife's aneurysmal SAH. For the history, please see my introductory post: She is still dealing with some headaches, difficulty sleeping, anxiety, memory difficulty, etc. but is generally improving gradually. The double vision (from cranial nerve VI palsy) has resolved. However, in the past month or so, there is a new issue that is affecting, among other things, her ability to read. Certain visual patterns are making her feel disturbed or fearful. Hopefully I'm explaining well enough in these examples: Seeing text at a small size (as in a ne
  5. Interesting. I'll see what I can find from a US retailer. It's hard to tell from the photo how that would elevate the head more than a regular pillow.
  6. Thank you all! Super Mario: Yes, she does take naps during the day when she feels fatigued. That was an early lesson learned when she first came home and she was overdoing it. Skippy: I will get her a wedge pillow and give that a try. paul99: Yes, we were told by one of the doctors that the pain was caused by the blood being washed out by cerebrospinal fluid. Glad to see that this process should not go on much longer.
  7. It's now 6 weeks since my wife's SAH. In general her recovery is going well, especially when we see how much worse it could be. She is still suffering from frequent headaches, which seem to get worse overnight (which of course makes it hard to sleep). She seems to get some relief if she gets out of bed and just sits up in a chair in the dark for a while, but she really doesn't start feeling better until morning and some physical activity. Is it common for the pain to be worse overnight? Any idea why this is happening? Other than hydration (which does help somewhat),
  8. Thank you all! The biggest problem really has been the headaches, which have been difficult to treat since my wife is allergic to codeine and related drugs. Some particularly painful moments made us worry that she might be bleeding again. Since my original post, I did end up making a call to the stroke clinic at the hospital and got some more clarity on when the pain warrants a call or visit to the clinic, and when to call an ambulance. We have also followed up with our primary care doctor (who's taken care of us for more than 20 years) which was also helpful to calm a
  9. On New Years Eve (just over 3 weeks ago) my wife suffered a SAH from a very small ruptured aneurysm. She spent 15 days hospitalized (including 13 in NICU) and has now been home for 10 days. So far, we have been very fortunate: It occurred when I was home and could get medical attention quickly; the neurosurgeon came in to perform a coiling surgery in the wee hours of the morning on a holiday; there was no vasospasm. The only complication was cerebral salt wasting syndrome. She is having constant headaches, but has no impairments other than the common ones we're told are temporary
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