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Patc

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Posts posted by Patc

  1. Hello friends-

     

    It’s been a hot minute since I’ve visited, but I always like to catch up- especially on the anniversary of my SAH.  I’m actually a day late in posting, my SAH  happened on October 26, 2016.  Seems like a lifetime ago, seems like yesterday.  
     

    Since I last posted, I am now working 100% of the time from home.  I’m able to work part time, approx 15-20 hrs a week.  Other than the occasional fatigue, and some short term memory problems, I am doing really well.  I consider myself blessed.  
     

    I want to reiterate how much this community has helped me through some of the most difficult times in my life.  Reading the information, posts and stories of other members reassured me that whatever I was feeling at the time, I was not alone.  I might not comment often, but I do like to check in periodically and read the latest posts.

     

    Thank you to everyone for validating my feelings and calming my fears.

    Much love,

    Pat

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  2. Thank you so much everyone for your lovely wishes.  In my last post, I forgot to mention another joyful event coming my way….my oldest son, Matthew and his beautiful fiancé are getting married on New Year’s Eve!  Life is good💜
     

    Sending big hugs

    Pat

    • Like 4
  3. Hello everyone!

     

    It’s been awhile since I posted, but I always love to come back on my anniversaries.  Tomorrow will mark 5years post bleed.  It just seems like a hallmark anniversary 🤷🏻‍♀️.  So much has happened since then, and I truly believe all change, though scary at first, was for the best!

     

    My career choice was an early childhood educator and support worker for children with disabilities.  I say « was » because as of last week, I have retired from working front line with children, after 37 years.  I have moved to a new organization, same field, but now am in the administrative side of things.  I am learning a new skill set at 62!!!

     

    This change in my career path would not have happened without the initial changes in my work environment that were necessary after my brain bleed.  Because of sensory issues and fatigue, I could no longer work in a classroom, so I switched to working one on one with children in their homes as a private Behaviour Interventionist.  

     

    This  led me to the company I currently work for.  I recently was promoted to Regional Manager Assistant, which allowed me to retire my support work with children.  I presently work approx. 50 hrs a month, and work from home.  This allows me flexibility in my work week!

     

    What was a very scary time in my life, turned out to be a time of reflection, change and new opportunities.  Do I still have fatigue? Sure….Do I still have anxiety when I feel a weird twinge- Yep…..Do I still have problems retrieving words? At times I do, but I blame it on the age 😂😂.  This new career opportunity would never have occurred prior to the bleed, because I was fine with the status quo…turns out there was a whole lot waiting for me.

     

    I would like to thank all of you for your encouraging words.  To the moderators, thank you for creating this safe space to share our experiences, our fears and our triumphs!  Wishing everyone a happy recovery.

    💜Pat

     

    • Like 8
  4. Exactly, Tecumseh....it’s the “activating” that I find the hardest!  I didn’t realize this was associated with my bleed.  I’m 4.5 yrs out, and mostly recovered.  Like some here, fatigue is always lurking around a corner waiting to pull me back. Luckily I’m not too bothered with headaches, but I get “fuzzy head”

     

    What I noticed since my bleed is my lack of motivation.  I push through, but some days it’s so hard!  I wonder why there is such a lack of research in this area.  This community has been a life saver!

    ~Pat~

    • Like 2
  5. Hi Pascal!

    Welcome!  I don’t exaggerate when I say that this group has been a Godsend to me- especially the first year of my brain bleed.  I’m coming up 5 years, and someone in this group wrote something that has always stayed with me.  Let me share it, and I hope it will be as encouraging to  you as it was to me.

     

    We tend to compare ourselves to what we were like prior to our bleed.  The reality is our brain has gone through a change, and the comparison should really be between what we were like right after our bleed and what we are like now.  I’m not like I was before my bleed,  and many of the things you describe I still feel, but I’m  nowhere as bad as I  was 4 years ago!  When I look at how far I’ve improved from early days post  bleed, then I am encouraged and feel blessed.

     

    The weird feeling you describe in your head, I experienced that too at the beginning of my recovery.  I would get this sensation like water was being poured from the top of my head.  I would get a swishing sound in my head, and feel lightheaded.  I would definitely get that sensation when i was overtired.  4.5 years later, i can’t remember the last time i felt like that.

     

    You are early in your road to recovery- listen to your body, get the rest you need without feeling guilty!  It takes time and patience.  We get it, we’ve all fought this battle.  

     

    Take care,

    Pat

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