Doodles

Hi May I begin by saying well done for posting....I wasn't able to at first, simply the best way forward for you. Must be terribly hard to understand everything, I too was transferred to LGI. They let you out and don't tell you anything, I was unable to accept what had happened. I had and SAH, Jan 2012 and a clip then June 2013. You are a brave lady and you will find the BTG site so amazingly helpful, it answers every weird question you may have....ask away! When I was released I couldn't cook, I slept a lot...spent a long time anywhere in the house where I went as id no idea what I was doing. My mum helped and we spoke about everything all the time, it helped me understand and accept what had happened, I was only 35. My anni was on main left artery, I have another small one on the opposite side, hey ho it doesn't bother me... I still have pain now...the more I do the worse it gets, simply like your brain telling you to stop...The fatigue I have is crazy, as I was always on the go before and now im a totally different person....a better one!! I took codeine and para every 4 hours for about 3 months before I started to not need all the time, hate the way they mess up with your stomach... Read up on here and any question...don't hesitate to private message me. Take care xxx

Hi MaryB, thanks much for your response, the only items I saw were for a real long time ago..... Thanks Michelle I shall give them and go, ive had another message stating Columbus too! Ill feed back info x

Greetings some of my fellow folks, I went on holiday last year after my SAH as was within 6 months of travel I was told I would require a medical insurance. I called one and found I had to pay £55, for myself and daughter, one week for Spain. I had told them I had a non injury SAH, coiled and did indeed have another anni unruptured. Now ive had surgery for clip to be put on May 13 so basically only that adds on......£211.50 for 10 days Spain, again for me and my daughter....same company! Please does anyone know what has made it shoot up in price? I wanted quote to go in August {nothing booked as yet}. The company are called All Clear, anyone know of any other decent companies, ive tried to search on here but only find much older posts. Thank you in advance for any info

Hi Michelle Thanks for your reply, she was a little startled that I had only just had surgery as it wasnt on her notes. So she said to wait till end July for test etc.....she explained a lot and id told her what i thought my probs were, and how i try to deal....but 'abnormal' has been made 'normal' for me now....nothing will make the problems go away but they may help me a little so ill take anything I can!!! I shall update after test etc....

well.....my visit today...she didnt even know i had surgery, this was referred by my doctor about the SAH in Jan 2012!! She was a lovely lady and explained my anni was on the main artery and im thankful to actually to be alive! She says I need a cognitive test for all the problems ive been left with....all those that are common with us all....language, memory etc.....going to do it next month and that will then at least PROVE to my employers I do have issues and its not simply based on what I LOOK LIKE!!!! Anybody else done test, or had simlar help etc?? As I feel ive learnt so much from this site, its helped me deal with it emotianally etc and my daughter has kept me going....ive probably taught myself lots of stuff to help me in many ways, due to the time etc.... I did tell her that the care for ourselves that have suffered SAH is POOR, I wasnt give any insight into the things I would suffer from when leaving hospital, they should really just give everyone this site name!!! Thanks all xx

Hi Lesley Im similar in time then, have an appointment with a clinical psychologist today {first time leaving home since op} and im not sure what to expect. I did complain in hospital as regards to the care I had with my SAH last year as in no info!!!! My employers now actually think this operation was a cure and ill be all better to back and work full time, ive only been doing 22 hours and quite frankly and shattered. All the problems i suffer from and GP cannot do anything!! Ill post later to update on the visit. My scar is itching and seems to be healing very well, I had no hair removed so my surgeon was fab {I had requested no hair taken} difficult as I now have blood etc stuck in my hair, I shower and wash hair each day. I cannot seem to do much in the house, ie cleaning etc as I just ger too tired and dont seem to have the get up and go as yet.....resting is the answer!! Im so glad I found this site last year as it HELPS with all aspects of life and recovery.

Hi Lisac Thank you so much for your reply, im so glad hearing what you have said about the eyebrow, time for me not to panic, got loads of weird pains, movements etc...but this I know is normal. May I say from your photo you look super fabulous! The warmer weather is making the itching worse but i will not touch. Im showering with washing hair every day and hope some day the blood etc will leave me. Shattered im shattered and I know to rest and hope for the best, im hoping to be able to drive again by December, FINGERS CROSSED!! Anybody else please feel free to comment.

Thank you ladies for your very kind and informative replies, I shall indeed await the reply from a clipped person. But Gill you have indeed helped on a few parts. I do indeed have other stuff going on but I simply mentioned the most challenging.

Hi all, I FINALLY had the craniotomy, due to SAH previously Jan 2012 coiled but had moved so they wanted to clip, on the 14th May 2013.{should have been done end of Jan-staffing issues im told} All went well im told and I was home on the 6th day after horrid staples taken out! Ive had no hair cut, fabulous surgeon!! So....at home im resting, doing what has to be done cooking and washing...everything just makes me shattered! Id like anyone to contact me for the after surgery info please any comments will be gratefully accepted. I was cut left side of head, i get a fair bit of pain and taking meds still 4 times a day is this usual? The left side feels frozen, i cannot move my left eyebrow up, is this normal? Jaw hurts so I have to be careful as to what I eat as I cannot open my mouth so wide? If all of this is normal when does it go, leave fade out, feel better.....? As ive read many helpful stories on hear I drink LOADS of water, sleep on 2 v-pillows, this is certainly fabulous for me. As they let me out of hospital with NO INFO AT ALL and did not tell me anything to expect etc.....but this site is MY ONLY saviour and I will check back on perhaps later tonight or tomorrow for any helpful insights. Im a super positive lass as ive had to be so anything at all will help. Im now on SSP so totally upset as regards to money, just had my 1st wage and received less than my niece who works weekends only!! The eyebrow thing is freaking me out so any advice would be fab! Thanks muchly my kind and knowing folk! Doodles

HI ALL, Sorry for the delay in my reply...christmas, work, many days with pain, gosh its a poor start to 2013 for me. Sarah-Lou - You are very brave, I will pm you, thanks for the offer. Louise - you do make me smile, thank you for your kind honest words, all very true.... your family must treasure you...lucky family. Dave - You seem to be very brave, you wife is truly blessed, she seems to have had an awful time, possibly the greatest number of anuerysms ive heard of! Im sure she is like me in the sense that...this is happening...to me....I have to deal with it the best I can....deep down she feels it like I do.....she is in my thoughts and prayers now as are all of these beautiful ladies and gents on these pages. I have called LGI for any insight as to when op will be, im told should be end of Jan, so its just a waiting game now. My employer will only pay SSP so everything will go heads up...tell you all something....roll on 2014.... Thank you all for reading and taking time to reply, im truly grateful.

Thank you all for your kind replies, please inbox me Leo with your 'story', i would appreciate any...any information, personal stuff the works, id rather have all the info, I remain scared yes....but strong too!! Have to be!!! Im glad it will happen....I am awaiting a date for January, I WILL NOT LOOSE HAIR!! my surgoen is truly truly experienced and feels he does not need to cut hair, he thinks im loopy...im sure of this only lol.....i have now 21 days to surrender my drivers licence as I had to cancel drivers assessment for next week!!! Gonna sell the ****** car, dont want it on my drive!!!! I have bought a V Pillow as per info on here and then had to buy 2 more for my partner and daughter....cant have owt for myself lol.... thankfull each day xx

Hi all, Id super appreciate if anyone can give me lots of info....I cant seem to find a lot on here, Im unable to stay logged on for ages as I just get too tired...I am due to be clipped any time soon, Im simply awaiting call. I had SAH coiled in Feb 2012, seems now the coil has moved leaving a gap etc... I am 35 and a mum to a 7 year old, very mature however!!! Id like to know all the info....how you felt straight after, scar, pain, how managed...what could or couldnt do.....I know im unable to drive for 6 months etc.....strangely had a driving assessment with DVLA booked for Jan, which ill have to maybe cancel now..... Id just like to know all as they dont tell you....I know risk of fits...anyone had, or not had.....I am quite honestly terrified, but FULLY understand this procedure needs to be done...Im strong...kind of!! Any handy hints...anything honest....I just dont feel they tell you all etc......My Neuro told me that he doesnt have to shave hair at all???? Eh???? Really??? Is he superfabbo?? Thank you all, please understand although im 35 I actually feel 15

Thank you all kind, wonderful ladies so far for the replies, I am so glad for them, you really cannot have any idea.....I cannot at the moment reply to each one, hopefully in time... My visit today with LGI....It seems the coiled anni has risen....so leaving a gap {im at describing}, hence they are concerned.....I am told due to my age they want to clip, so op to the head - remove hair bla bla......or coil again {this they do not want to do} they asked me if I need time to think about this???? If have clip op ill be in hospital how long? What is recovery, how? With a 7 year old to look after {she is fabulous though my little star} I am so very very very very very very shocked....had no idea - they state can wait and have another MRI in March and then decide, but they feel to clip only.......I am now on a phased return to work {they WILL NOT CONTINUE TO PAY ME} so ill not be able to pay mortgage etc.....I am going to need a great deal of time to get used to this -----please please anyone with this knowledge, experience please contact me directly, I need more information.....Im 35 and feel ive been though enough this year, what the hell did I ever do to deserve this......I dont know what else to say, please anyone pass on your wisdom, im staying strong as I have to!!! Thank you again for the replies so far, you are my living angels xx

Well, firstly may I begin by thanking everyone on here.....I have found great help, advice and simply a sincere reason not to run for the hills {not that id find that easy}, I found this fabulous site with the fabulous users shortly after I started to use my laptop {short uses!!} I had and SAH Jan 2012, I remember it being after 6pm and I went outside with the black bin bag to place inside the outside bin, as on the back door step I felt a huge pain at the side of my head, I thought someone had knocked me with a metal bar.....I remember struggling with the bin to put it at the front of the house {bin collection following day} I was hugely concerned the back door was closed and my 6 year old daughter inside and I needed to get back in!!! I went inside and sat down, it felt like I was falling in and out of sleep with my daughter coming in and out of the room, she was speaking to me....I dont remember much after but I had a very early night. The next thing I remember was being at the traffic lights the next day near work. I went into work and told them of the story, I remember falling asleep several times, shaking violently, slurring, my mouth felt down at one side.....my manager took me to the toilets and said my eyelid was drooping!!!! I only remember leaving at the end of the day, not a clue how I got home!!!! I spent 3 days on the sofa, slept a lot, I did not eat or drink. My partner advised me to go to doctors then, which I did...I basically was existing in some form of drugged like state...very very odd.....Doctor, bless her cotton socks called my mum and told her what she thought it was, we went to A & E, spent 4 hours telling 3 different doctors same tale etc....was kept in then released next day claiming my problem to be a migraine...odd.... My mum called a doctor out the following day, who called A & E and advised them they 'must' scan me....gladly this happened and they then 'noticed' the bleed etc.....I was transferred to LGI overnight and had the coiling procedure done the following day {my 35th bday} I spent the next 7 days there, still I have to admit I had no idea how serious this was. I have to advise you all, I thought I was young...untouchable....how mad was I!!??!! I came home with constant care from my mum, she came every day and cooked etc for me and my little lady...I can honestly say I WOULD NOT BE HERE NOW OR BE THE LADY I AM WITHOUT MY FABULOUSLY WONDERFUL MUM. She has listened, moaned and been every person Ive needed her to be, albeit I feel hugely guilty as to me now she has aged about 15 years from what has happened....Im eternally greatful and wish I could do a marvelous gesture for her.... I dont remember much about the early days....but one morning in March I awoke with stomach ache, like I needed the toilet, so off I popped....sat on the toilet I became very hot, I leant over to the basin and ran cold water on my hand, I then just wanted to lay down...I began to make my way back to bedroom and dont know what happened but I was on all fours on the floor facing banister, I felt like I was so still yet forced to stay so, my mouth seemed forced shut and teeth tight, I was hot and there seemed to be a force running up me...all sounds odd {thank you Moonlight for your help on this one}...I eventually got up and fell asleep, when I awoke I called my mum, she called docs, ambulance came etc...took me to hospital, and basically after a number of hours they state was something to do with my stomach....basically I thought a while after, with research this was more like a partial fit. I mentioned to Neurosurgeon early April, but he brushed this im assuming hoping it wasnt true {unsure I am!!}. I was then told at the visit I had another unruptured aneurysm, being small so would be scanned at a later date to check if it grows etc....I was told I wouldnt need to see him again unless there was a problem....I had an MRI in August and again in October {I have odd care< first scan was done as I had constant pain and GP unable to prescribe any painkillers strong enough!!} I have to see the Neurosurgeon again tomorrow, this I hope is simply to follow up on the MRI... My employer has paid me in full ALL YEAR, Im still not sure why {they are poor, ive had loads of with them over the years!!} im greatful eternally however they should have picked up on my symptoms that day and taken me to hospital!! NOBODY told me what to expect from leaving hospital, this being my great resentment.....I have had an Occupational Therapist, Physio....Basically I still have 'slight' probs down left side< just weakness and sometimes dont know what left side doing!! All my problems now are in my head, mental....memory is stupidly , my attention span is poor, my tiredness is getting worse, loads that im simply unable to 'pen' as I cant remember it!!!!....Im babbling now....I do get a lot of head pain {I cant describe as headache, its not} Im hoping this is because of my phased return to work now {im 8 weeks in} I dont seem to be the same as anyone else on here or am I??? Im sincerely greatful to the lord above for keeping me here, my now 7 year old daughter keeps me strong, Im taking every day as it comes, I cannot make plans as I usually dont keep them....I also have to have a medical driving assessment, this is January..anyone else had to have one, pointers etc?? I am running lout of anything to say, I used to have loads...im not the same person....I never will be 'her' again, I do hope the newer me will enjoy 2013 as this year been pretty rubbish!! Please let me have any comments, help advice, harsh words...owt really lol xx Doodles