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marie

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Everything posted by marie

  1. Hi Pam From a shop stewards point of view with the medical information and previous information regarding what jobs you cant or shouldnt do already been on your HR file it shouldnt be necessary for you to supply anything to prove you shouldnt lift. You have as an employee rehabilitation rights as in the company offering you lighter duties during your illness or recovery period however long that may be. The company does have a right to send you for a medical but your HR file and medical information must be taken into consideration at this. Your boss by asking you to lift when it is in your HR file that you shouldnt is breaking Health and Safety regulations because of the danger posed to your health. The Disability Discrimination Act website has some very informative information click on the link Support while in work. Its also worth knowing that if you have to take any time off for hospital or doctors appointments etc regarding your aneurysms you should be paid for the time off. Hope you get this sorted really quickly, it can only be addig to your problems. Marie XX
  2. Just a quick question the neck pain that you all have described as having is this actually in your neck itself. The reason I ask is for about a week now I have had the most excruciating pain that feels like a burning rather than a pain level with my shoulders but in line with my neck if that makes sense. I seem to get up on a morning without it but by lunch my chin is sitting in my chest to relieve this. The doctor gave me some ibuleve cream to rub in but it seems to have had no effect. I even considered taking myself off to the a and e while johns at home but i dont want to appear stupid going with just a pain in my neck. Marie XX
  3. Thankyou everyone for your comments. Ive been on the phone to the neurosurgeons secretary at Leeds General this morning as Ive hada terrible couple of days with pains etc she is still adament that I wa discharged back in March, when I queried this asking if this was normal as I wasnt happy she asked me if I was doubting the surgeons capabilities????? I rang the phone number id been diven for the 6 months angio/scan and at first they said we have no record of you then they rang me back to say it would be happening in November. Well that makes it nearly 12 months. I then went straight to my docs surgery and was seen by a senior doctor who is the same as me quite disgusted with what the hospital has said. He got my letter from the neurosurgeon up on the computer and it states quite clearly that I would be seen in June for the scan. Hes going to get onto that today as obviousley this isnt helping the way I feel. So today besides having the mother of all headaches I did the one thing I havnt done since the sah, I sat in the garden and cried. But I know feel a bit better than I did when I got up at least my gp sees it my way. Anyway hopefully now I might get an appointment or maybe not. I just feel like we are playing some kind of postcode lottery if thats the right term. Thanks again for your comments. Marie X
  4. Ive contacted my neurosurgeons secretary today as I hadnt received a date for my 6 month scan, which is what the surgeon told me to do when I saw him at 3 months, only to be told that I was discharged at 3 months and I now have to be referred back by my gp but only if he feels theres something wrong. I was astounded to say the least. I havnt had a scan or anything since I had my op on 24th december last year so how do they know that everythings as it should be. Just wondered if this was the norm or am i getting a bit worked up over nothing. Marie
  5. Hi My sah happened just 4 weeks before my 37th birthday. Marie XX
  6. Sorry Karen just read back posts again and realised I hadnt replied. My eldest Ashley is 18 Gemma is 17 Danielle is 15 and then theres Jake whos 12. Ashley has a little boy Mckenzie Luke who was 1 in April and as much as I love the little mite im thankfull that he lives with his mum hes so active at minute I would never cope with him here permanantly. Theyre not exactly kids anymore but guess I made life easy for them by doing just about everything and now their having to do it for me, its strange how things turnaround. XX
  7. Wow what can I say, so many caring people. Im feeling just a bit emotional right now after reading these comments just to know that i am not alone in what im feeling has made me feel more at ease with my situation. Im feeling quite tired at min so sorry for short message just needed to thank you all for caring, luv to you all Marie XXXXX
  8. Hi Everyone Im Marie im 37 and from West Yorkshire I suffered what I now know was an sah on 21st December 2007. I'd had a perfectly normal crazy christmas shopping day and was preparing tea for my husband and 4 children as later in the evening myself and husband had planned to go out to a former works christmas do. Slamming the door on my drier I had the most excruciating headache as though someone had hit me with a shovel and thought at first id got a shock from the drier, but within 15 minutes I couldnt speak couldnt hold up my own body weight and certainly couldnt communicate with anyone to say what was wrong besides being violently sick. My quick thinking husband realised this was something serious and phoned an ambulance. When the ambulance arrived the paramedic lady was quite rude and kept asking how much id had to drink boy do I wish thats all it was! At the first hospital I was taken to they did a scan where it was found id hadan sah and transferred me to Leeds General Intensive care where our neurosurgery unit is. I must have been unconscious for quite a while because I just remember coming round on christmas eve to my husband who hadnt moved from my bedside and he told me they had coiled the bleed that day, not that I actually understood what he was telling me. Christmas day was hard, all my kids came to see me with presents theyd bought and I remember all i wanted to do was cuddle them all and go home with them, yet I couldnt even get off the bed or communicate with them because it was complete gobbledegook coming out of my mouth. On new years eve I was allowed home. My family have been fantastic my husband and daughter were doing the housework and cooking in the early days and when my husband returned to work my daughter took over the role of 'mum'. Its nearly 4 months on now and i am struggling sometimes to come to terms with whats happened. Sometimes I have good days but on the bad ones I cant seem to shake off the feeling of doom. I seem to cry a lot at the most stupid of things and get a bit over paranoid with the slightest of twinges in my head, although my headache is still quite bad come early evening and mostly Im in bed by 8pm to try and relieve this. I had a small bleed in my left shortly after the sah which has resulted in like a spider web of blood blocking my sight and am booked for surgery at St James Hospital on 15th May. Hopefully I will feel a lot better emotionally when I can see properly. I try to tell people just what I feel like but I think the majority of people think that because they cant visibly see anything wrong with me then I must be perfectly fine. If only they knew.
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