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RuthB

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  1. Hi Charlie D, I don't know quite what I'm doing quoting your reply back at you. I am SO not modern, but I would love to hear a little about your experience - what were the similarities and what were the differences between our haemorrhages? (ps, I have now done a couple more blog posts) Thanks, Ruth x
  2. Hi Lori, wow what a mad time you have been through, and postpartum too - I can't even imagine. Your experience sounds more complicated than mine (I have only spoken to one person who had a similar haemorrhage to me, and I have tried to find more people). Mine was just the one bleed, the EVD, and then zero follow-up, apart from a meeting where I got told not to worry. So I'm not on any meds and he didn't give me ANY limitations. He actually said to me I'm in a better situation than the general public, because they have had a look inside my brain and nothing is lurking there. I find it hard to put my finger on what is left over from the brain haemorrhage, and what is normal - I think I get tired and overwhelmed more easily, and sometimes I worry about my short term memory. But otherwise, I think I'm PRETTY similar, but also, it is hard to remember. ha ha. I hope you get some answers, it sounds tricky not actually knowing what you are dealing with, Have you managed to find someone who had the same sort of experience as you? Ruth x
  3. Thanks Louise. Yes, well, in a way, the human brain is the great unknown x
  4. Thanks Clare, lovely to hear from you - our phonecall really was a turning point for me thank you. I hope you are well these days? Here's my latest blog post - https://asmallbleedonthebrain.home.blog/2019/05/24/the-hospital-part-1/
  5. Thank you for your responses everyone. Something I have come round to realising is that no-one has had quite the same experience and no-one has had quite the same recovery. But it has still been really helpful to hear everyone else's story and to feel part of a community. Ruth x
  6. Hi everyone, It took me 18 months to find this forum, and all I wanted, before then, was to read other people's stories, so I decided to write mine. I have done it all as a blog on wordpress. It's my 2 year anniversary today and I'll be posting a new blog every day or so for the next week. Would love to hear from you, and hopefully it will help someone else to read about my story. Spoiler alert - I'm pretty good these days, 2 years on. I got off lightly. Here is the link to my first blog post: Https://asmallbleedonthebrain.home.blog
  7. Thanks Iola, Yes I know that feeling - i was so scared i was doing the puzzle page in the newspaper all the time. 5 years ago - it must have been a long journey. Would you be up for a little chat some time? I'm feeling so much better now, but it does tend to be a little up and down. Ruth
  8. If anyone reads this, even months or years later, please do send me a message. I'd love to talk to you x
  9. Thank you both - yes, I am starting to read other people's words about their haemorrhages, but i would love so much to actually talk to a few people. Work was OK but now I have started to actually listen to my tiredness, and I am realising just how tired I am, I just pushed really hard for 6 months, working intensely and 6 days a week mainly.
  10. Hello everyone, I am so happy to have found this place!! I have felt totally alone with this for the last year and a half, and put a lot of pressure on myself to just get back to normal. I had my perimesencephalic subarachnoid haemorrhage in May 2017, and then developed hydrocephalus, so had an EVD in for 8 days. I was in hospital for a total of 11 days, and went back to full time, energetic work in the September. Now I can see it was way too early, but all I could find at the time online about this type of haemorrhage was that the prognosis was really good. I didn't see any stories from other people. Now I would love to talk to other people who have had the same thing - to hear their story and about how they recovered; to compare and contrast basically. Have you had a perimesencephalic subarachnoid too, ideally someone who also had the EVD? Please let me know, I would so appreciate to hear how the journey has been for you. Thank you, Ruth
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