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RuthB

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About RuthB

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  1. Hi Charlie D, I don't know quite what I'm doing quoting your reply back at you. I am SO not modern, but I would love to hear a little about your experience - what were the similarities and what were the differences between our haemorrhages? (ps, I have now done a couple more blog posts) Thanks, Ruth x
  2. Hi Lori, wow what a mad time you have been through, and postpartum too - I can't even imagine. Your experience sounds more complicated than mine (I have only spoken to one person who had a similar haemorrhage to me, and I have tried to find more people). Mine was just the one bleed, the EVD, and then zero follow-up, apart from a meeting where I got told not to worry. So I'm not on any meds and he didn't give me ANY limitations. He actually said to me I'm in a better situation than the general public, because they have had a look inside my brain and nothing is lurking there.
  3. Thanks Louise. Yes, well, in a way, the human brain is the great unknown x
  4. Thanks Clare, lovely to hear from you - our phonecall really was a turning point for me thank you. I hope you are well these days? Here's my latest blog post - https://asmallbleedonthebrain.home.blog/2019/05/24/the-hospital-part-1/
  5. Thank you for your responses everyone. Something I have come round to realising is that no-one has had quite the same experience and no-one has had quite the same recovery. But it has still been really helpful to hear everyone else's story and to feel part of a community. Ruth x
  6. Hi everyone, It took me 18 months to find this forum, and all I wanted, before then, was to read other people's stories, so I decided to write mine. I have done it all as a blog on wordpress. It's my 2 year anniversary today and I'll be posting a new blog every day or so for the next week. Would love to hear from you, and hopefully it will help someone else to read about my story. Spoiler alert - I'm pretty good these days, 2 years on. I got off lightly. Here is the link to my first blog post: Https://asmallbleedonthebrain.home.b
  7. Thanks Iola, Yes I know that feeling - i was so scared i was doing the puzzle page in the newspaper all the time. 5 years ago - it must have been a long journey. Would you be up for a little chat some time? I'm feeling so much better now, but it does tend to be a little up and down. Ruth
  8. If anyone reads this, even months or years later, please do send me a message. I'd love to talk to you x
  9. Thank you both - yes, I am starting to read other people's words about their haemorrhages, but i would love so much to actually talk to a few people. Work was OK but now I have started to actually listen to my tiredness, and I am realising just how tired I am, I just pushed really hard for 6 months, working intensely and 6 days a week mainly.
  10. Hello everyone, I am so happy to have found this place!! I have felt totally alone with this for the last year and a half, and put a lot of pressure on myself to just get back to normal. I had my perimesencephalic subarachnoid haemorrhage in May 2017, and then developed hydrocephalus, so had an EVD in for 8 days. I was in hospital for a total of 11 days, and went back to full time, energetic work in the September. Now I can see it was way too early, but all I could find at the time online about this type of haemorrhage was that the prognosis was really good. I didn't see any storie
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