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AMI

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  1. Thank you Daffodil for the very prompt response. I did have hydrocephalus at the time of SAH, which was mild though and need any kind of drainage. In fact it was decreasing at the time of second scan about 4 days later. Now the fluid leaking is small in 'quantity, not sufficient for sampling, its most often droplets. I did not taste it, it doesn't go backwards inside my mouth. It drips from the nose on one side slowly especially when I bend forwards or strain. It is very clear, watery, not any thing like nasal mucus. I did put the drops on paper napkins thrice, it doesn't stiffen like normal nasal secretions. It looks as though the neurologist isn't convinced about the fluid being CSF in the first place. He said CSF leak is usually copious in 'quantity. Even the neurosurgeon said there was no urgency for the scan, the risk of meningitis is minimal as it is a high pressure leak. So I am actually worried that I am thinking too much and imagining my symptoms (like head ache, low stamina etc). I have done so well so far and this is all very demoralising. Anyway thank you very much for the response, good to speak to someone who had similar symptoms. How much was the 'quantity of leak in your case?
  2. Hi all I am exactly one year post PMSAH. My recovery has been decent till October, I am almost back to full time work with some minor adjustments. In November 2019, 10 months after SAH, I started having clear watery discharge from nose, thrice in 24 hours initially, then randomly about another 5 - 6 times. Suspecting a CSF leak, I met the neurosurgeon. He said there is a possibility of high pressure leak secondary to hydrocephalus, so asked for an MRV, possible LP Shunt if hydrocephalus is there. Another neurologist that I know said spontaneous leaks heal on their own, so no need for a scan, just not to exert myself too much, wait and watch. Two very different opinions. My 'question is- did anybody else suffer from a CSF leak after SAH? What are your experiences? I feel generally unwell these days and my recovery seems to have slowed down in the last 2 months. My headaches are worse in duration, though not in severity. I am not sure if it is just my stress and anxiety. My fatigue is better in that I do not have those episodes where I cannot walk a few steps also, but again in general my stamina is low compared to earlier. I know you cannot give me medical advice, I just want to know the experience of others here, which always has proven useful in the last one year. Thank you in advance.
  3. Does any one have eye twitching on and off after NASAH? I am 9 months post bleed and have been having this random eye twitching only on the right side for almost 3 weeks now. No other new symptoms other than this (of course the routine fatigue, occasional headaches and neck pains are there always) Is this normal/ expected? Should I see a doctor?
  4. Thank you all once again. Ben, I am really not sure why he said that, may he was worried about a rebleed and I asked this question of when I could run again on the 3rd day after I had my SAH. May be my question was too soon. But when he said that, I did break down. Till that time, I handled my diagnosis so bravely (in fact I made my diagnosis at home and went to the hospital very soon after the onset of headache - I am a doctor) After the DSA, I met another neurologist who gave me a clearance. Good to know you are back cycling. Keep it up.
  5. Thank you all 😊 Yes, I had tears in my eyes and it was a very emotional moment, the finish line. The first neurologist who managed me 7 months ago said I could never run in my life again, at the most, may be a 5 K, definitely not more than that. Thanks again for all the kind words.
  6. I am so soo glad to share with all of you, I just finished a half marathon. I am 7 months post NASAH. Feeling very emotional right now. Thank you all for the extensive support. You guys are the first ones I am sharing this with. Thanks again.
  7. Hi all Thanks a lot for all the kind words. Sorry for the delay in reply. After the meeting and another small get together (in which I could not stay because of the loud sound), I was totally knocked off and needed a long time to recover. However I am glad to share my meeting went on well. Boss was very very understanding and accommodating. He is ok with my current schedule and infact offered more liberty in timings. Colleagues still had some concerns but they also seem to be settling down now. Feeling better for the last three days now. Hope the good days last a little longer. Thanks again for the support in difficult times. There was no way I could have shared all these things with anyone else other than this forum.
  8. I am 4 and a half months post PMSAH. I am back to work with slightly reduced hours. I am doing 24 hour shifts (about 3 to 4 per month) also but with breaks in between. Now we have some staff shortage and my colleagues expect me to share the work load which means about six 24 hour shifts per month. I am needing at least 48 to 72 hours after the duty for recovering and I am in no stage to handle so many. I have a meeting with the boss in two days (which may be pleasant or unpleasant if I insist that I cannot do more, though I have to say he has been extremely supportive so far). My colleagues have been very cooperative initially, now that it is 4 and a half months, they expect me to be back to normal. They don't seem to understand my battles. They say I don't look so unwell. It takes a lot of energy just to be up and about. I am completely alright on the outside, in fact have gained some weight also. My activity is good in the morning when I am at work. Most of the evenings I am just having to rest, rest and rest. We have been a friendly bunch earlier, now this seems to be affecting my work relations. Just frustrated, tearful and feel low. Worried about the upcoming meeting also. Sorry for venting. I just needed someone to talk to. I know BTG will listen.
  9. Thank you Crazy. I will definitely let you guys know when I have my big moment. Could not have survived without this site.
  10. Wow, Congratulations Crazy, on completion of a marathon. These wins will certainly be sweetest. May I ask you when your PMSAH was? I had mine in Jan 2019 and I have registered for a half marathon in August. I am able to run walk upto 10 K now (though my husband doesn't allow me to run alone anymore and my pace is no where near what it was earlier). I was actually looking for some inspiration and found your message. Thanks for that. I keep visualising my finish line. Hope I will be able to cross the line.
  11. Thank you so much Daffodil and Clare. So glad to have found this site within a month of my SAH. You guys are extremely supportive and understand exactly what we go through. Will post my story soon. Thanks again. Going through the posts that you suggested.
  12. Thank you Clare. Feels good to know I am not alone.
  13. Hi all How many in this group are medical professionals? My question is Are there any particular problems faced by doctors with SAH when returning back to work? I am a neonatologist, a baby doctor. I don't seem to remember faces of patients who I met for the first time, in the time period of about 4 to 5 months prior to SAH. My memory was excellent earlier.
  14. Thanks for the suggestion Tina. I will visit an orthopedic.
  15. Thank you for the response. No, MRI wasn't done. Three different neurologists were sure it was periarthritis and had nothing to do with SAH. Physio said even if it were something else the only treatment would be physiotherapy. Just wondered if anyone else was in similar situation.
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