Everything posted by Jessica
Thank you all so much for your kind notes. And to Daffodil for the recommendation - I'll look into them. We were in the ER on Saturday where she endured her first full MRI without any anesthesia, a huge achievement for us both, though of course she gets full credit! Though we saw strange symptoms that led us there in the first place, the scans show largely good news. So, phew. But the follow-up conversation with her neurologist opened a can of worms about the performance and longevity of a stent placed in a young child as the decades tick on...so that's my latest quest. To self-educate about how stents age with patients. Never seems to end. Much love, and thank you again, from both of us.
Hi everyone, last December my 7 year old daughter was rushed to the hospital with an enormous cerebral aneurysm and SAH. She was treated endoscopically with coil embolism and flow diverter at UCSF - it was the absolute best care we could have hoped for. It’s been about two months and I am struggle for resources focused on pediatrics. Granted, the population is so small that I can understand why there isn’t much literature. But I spend 95% of my research sifting through studies on adults, and I am hoping that someone has found more information focused on kids? Thanks in advance. I’m learning to ask for help when I’m struggling and I’m hopeful this post will reveal some decent resources.