Jump to content
Search In
  • More options...
Find results that contain...
Find results in...

Hello!

By registering with us, you'll be able to view our forums in full as well as discuss, share and private message other members of Behind The Gray. Why not join us now?

JanetY

Members
  • Content Count

    4
  • Joined

  • Last visited

Community Reputation

5 Neutral

About JanetY

  • Rank
    Newbie

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. I found this thread to be very comforting. It is 2 months since my bleed and I am still adjusting to life as a recovering person. I’ve always been full of energy and purpose- often with plans to accomplish numerous tasks or fun during the day. I’ve always felt the need to “live life to its fullest!” Now, suffering from dizziness and fatigue, I plan only one or two things (if any). I feel so guilty if my son comes home from school and I’m in bed (which I call “my nest”) resting. I am very fortunate that I am able to reduce my working hours to just one day a week. I love my job, but I have to be realistic about the exhaustion and lack of energy. People look at me and say I look great. They say "how are you doing?", and I know they are expecting me to say “I’m fine, feeling great!” Instead, my honest answer is “I’m hanging in there. The recovery is slow.” I wonder if I should just change my answer to “I’m fine.” The problem is, I’m not fine. I am grateful to be alive. But I’m not the energetic person that I once was. I consider myself an optimist, but sometimes I get very sad about this.
  2. CAW, do you find that you startle easily? If someone drops something or there is a loud noise near me, my startle reflex is over the top. My teenage children will say, "Mom! It's just a noise!" My heart pounds and I feel that surge of adrelenine as if it were something terrible- not just someone dropping a spoon on their plate!
  3. I can really relate to this topic. It has been 2 months since my brain bleed, and I am struggling with fatigue. I've gone back to work one day a week, and I am struggling. After working 8 hours yesterday, I came home exhausted! I paid for it today, when I had little or no energy. I wish I could have my energy back! My family wants me to quit my part-time job (which I love!). I'm afraid I might have to. I used to be a super-busy, productive person. I feel like I've lost my identity.
  4. JanetY

    Janet's Story

    Hello All! My story began 2 months ago, when I woke one morning feeling very dizzy. I interupted my busy schedule to visit the doctor and was given medication for vertigo. A few days later (still feeling dizzy) I helped my sister move my 93 year old mother into an Assisted Living Facility nearby. Yes, I was literally moving heavy furniture! I was extremely stressed over this move for my mother and agonized over whether this was best for her since she had experienced 3 years of depression due to the isolation of living alone (it was!). Two days later, when I awoke, the dizziness and nausea was so intense that I couldn't even get out of bed. My family had gone out for the day to move my daughter into college (another stressful event for me!). As I sat in bed alone, I thought that surely I could cure myself of the vertigo. I found some helpful videos online that gave exercises that could "cure" a person of vertigo. As I rolled around on the floor, the nausea overpowered me. It was all I could do to crawl into the bathroom. When my husband came home, he insisted on taking me to the hospital. Thank goodness he did! After a CT scan, I was sent to see a neurosurgeon, who told me that I had a "small" brain bleed. When I asked if it was still bleeding, he said, "Oh no! If it were, we wouldn't be having this conversation!". Scary, indeed! I had an MRI and angiogram. He said that it was like a bruise on my brain and I would continue to have dizziness until the blood reabsorbed into my body. The nurse said that she would bring me a stroke folder with information. My naive reaction was, "Why on earth do I need that? I had a brain bleed, not a stroke." She had the pleasant task of explaining that what I had experienced was, indeed, a stroke. I confess that I'm still having a hard time with that one! I thought that it was a simple matter of taking it easy for a week or two. Here I am, 2 months later, still experiencing constant dizziness (although much less than before!) and now I have stroke fatigue. Most days I hit a wall doing a fraction of the activities I had done before. The good news is that a recent CT scan shows that most of the blood has been reabsorbed. Here are my questions: 1. For goodness sake, how long does this recovery take? As many of you have mentioned, I appear "normal" to people who don't know me. For those who do (including myself), I don't have any energy. I've been told that the light is gone from my eyes and I appear and feel very unenergetic. I want to return to my busy life, but my body says no! 2. Should I quit my part-time job? I have a wonderful job where I work for a non-profit 3 days a week. I took off the entire month of February and am working only 1 day a week this month. Yesterday I worked an 8 hour day and was totally exhausted! My family fears that I am pushing myself too hard. Fortunately, I don't have to work, but I love what I do. I don't love laying in bed- but that seems to be what my body wants me to do. Am I risking another stroke if I work to exhaustion? 3. What is up with this stroke exhaustion? Every day I feel like I hit a wall. I tell people that I used to do that, that, that , that and that. Now I just do that. If I do anything else, I hit the wall and have to climb into bed for a while to rest. I think that a major part of what defines me is that I live life to the fullest, and enjoy being active. Now I can't. 4. My main question is, what caused this? The strange thing is, I had no headaches, hits on the head, etc. The one odd thing is that I had the "worst headache of my life" six months prior. I went to the hospital, had a CT scan and it showed nothing. I can't help but wonder if the two events were related. Thanks for taking the time to read this. I have so much to be grateful for, and yet I can't help but wish I could have my energy back!
×
×
  • Create New...