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Doonhamer

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Everything posted by Doonhamer

  1. The same thing happened in February and I was checked out then, when the consultant decided it was a migraine. I think I should probably still let my doctor know so she's got it for my records. It's so weird.
  2. For all I've said, I had a migraine yesterday and I could really do without it, as it's so frightening. 1.30pm and I suddenly realised that my hand was completely numb. I knew this would be a migraine based on last trip to the hospital, but once I found my husband then I couldn't speak at all. He started panicking thinking that he'd need to take me to hospital again. I managed to find a pen and write 'migraine' on the kitchen fridge, so then he got me to go and lie down. The right side of my head and my arm/hand were completely numb, and I couldn't speak at all. The numbness left and then came back, and it was the best part of an hour. I took Solpadeine as soon as it happened, so there was no headache. It is a bit scary though. It's really hard to convince yourself it's a migraine aura, when I used to have standard flashing lights and an expanded 'blanked out' ring. Does anyone else get brainstem aura as a result of SAH?
  3. Hi Sally, I'm late here... again. Please don't worry about migraines. I had them for years and years beforehand. Often due to oestrogen - I got many more when on combined contraception. Usually the full aura, but not always with a headache. I've not had many in the last 10 years. However I did get some really scary ones this year - but this means a migraine starts with different symptoms - something like a brainstem aura. I'm so glad it's a migraine and not the stroke I thought it might be. I think the SAH gives you different symptoms from what you had before. For migraines, try and see what might cause it. If it does start, make sure you take time out and have some rest. Calm always wins. Fiona x
  4. The ophthalmic consultant did some tests on my eyes in April last year - ones where they add drops, but nothing I'd ever had before in the optician that also needed drops - sorry I can't remember the names. The pictures showed clearly that there were some blank spots on both eyes - but also in a way that suggested that it might not be permanent. The only way to check this is to see this again. By the end of June, I was able to pass driving, and that was key. So I don't know whether there is still any permanent blank spots given that they got past my driving. If I was unable to drive, they would need to keep checking this. The consultant was actually a bit cross with me for demanding my DVLA test as he thought I could still be blind despite my test (he'd been unable to schedule an appointment each month, so I forced it). For me, the double vision was worse. I'm less sure about what causes any blurring. I think that the left eye is still less 'clear' (colours etc) than the right eye, but not a problem. That's good that you will have some further tests, they might get to the bottom of that for you. Just annoying for you as everything will appear like a long wait. For your daughter - well, what's good is that you are still here for her. You feel terrible just now, but you *are* here and she has got you.
  5. The blinds spots weren't defined properly as I couldn't see anything at the time. I really should get them to do the same scans (not done since April) to see what has improved. Only I've had since then is the optometrist and the DVLA testing. There isn't any blind spots now, but I still get flashing. It does seem that timing needs to be at least 12-18 months with no intervention. If you get proper test, that will help a fair amount. Hope this all goes well! xx
  6. Hi Jenni, I wouldn't go so far as to say I'd lost my eyes, but both eyes were affected - there were blank spots for each eye. The right eye was also affected by the muscle (it was going all over the place!) - leaving the right eye pointing at 42 degrees - looking very cross-eyed! Once I realised I could see, without double-vision, if I shut off an eye, I thought this would solve everything, but the consultant wanted to make sure that I could actually see. It turned out that there were both blank/blind spots for both eyes, and this took a bit of time to return. So my eyesight returned very slowly. At 4 months I'd written off the right eye, and always wore a patch or frosted glass. I also tried a black contact lens (very expensive and stupid - worn once). However prisms *do* make a difference - eventually I tried this out and could use both eyes. They are pretty horrible when wearing them, but there is another answer - the optician can make glasses. My consultant told me not to bother (yes, it's expensive) but I went there when I couldn't get an appointment when my eyes had improved a bit - and my prism was wrong for driving! The prescription specs were AMAZING. It's like getting your life back. I've spent a fortune with my optician - three sets of prism glasses since I had got as far as 10 degrees - but this is well worth the money. I'm due another optometrist appointment next month, and I think she'll sign me off. At 4 months you are still very early, so there may be some change - fingers crossed - hope this is some blood hanging around that will eventually disappear, with positive effects. So terribly annoying that you had to put up with 5 days! Fiona x
  7. Hello Jenni, So sorry to hear you are sad. At 4 months, you won't know where you are going to end up... but we can say that 4 months is very early days. I know this is hard as there are no answers when you feel so bad. I had my SAH on 7th February, and I wouldn't have lasted any further if someone hadn't made me go to hospital that day. With the brain bleed, my eyesight was damaged, with still about 42 degrees at 4 months. I took to prove that I could manage driving with only one eye - this happened over time. It's only yesterday that the optician says I can actually drive without prisms (your brain makes up for the squint, it's not quite there yet). You mention flashes - I do still get this. What I hope is that some additional time - give you at least a year - before you worry about the longer term. If blood is left in your brain (this is what happened to me!), it takes a long time for it to eventually disappear. Fiona x
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