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charming

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  1. Hey guys! Thank you so much for your advice and experiences! I had a wonderful trip. Plane didn't bother me at all. I was tired some of the days while I was there but that didn't stop me. I've had trouble sleeping since I had my SAH so I have Lunesta, which knocks me right out. Glad I had those on the trip. I only had to use pain medicine once while I was there - but oddly - since I've been home I have had horrible headaches every day. It's really weird, actually, since I've been feeling so well. Going to call the neuro doc next week if I keep having them. Again, I appreciate everyone for replying and letting me know what has been going on with you. ❤️
  2. Hello all, I know a lot of you have had your SAH years ago and I was wondering if I could get a little knowledge from your experiences. I had my SAH in April 2019. I've been doing really well - went back to work about a month after I was released from my 3 week hospital visit. I struggled with that in the beginning - being tired all of the time and having headaches. I was also horribly depressed after. The tiredness went first, then the depression. Now I'm only having headaches every so often, and they are in no way as bad as they were. So, here comes the question. What are some limitations you've experienced after your SAH? I'm flying out this week to California - and I had to ask my neurologist if I could. He gave me permission. I also asked about roller coasters, and he gave me a firm no on that one. This has me wondering - what are other things that we shouldn't do, or should avoid other than roller coasters? Are there things you've done but struggled with that you believe someone that has had a stroke shouldn't do?
  3. Hello all, I'm so glad that I've found this! I've been looking for a support group since I had my SAH in April. Mine was very much unexpected. I was getting ready for bed on a Friday night, brushing my teeth. While I was in the middle of it I got the worst headache, ever. It was so painful I had to lay down, with a mouthful of toothpaste. I also had a super stiff neck and I was so dizzy that I thought I was going to pass out. I've never fainted or anything before so that definitely freaked me out. I ended up able to get back up to clean out my mouth and get my phone to call my mom but the intense pain never left. And, that's when I started throwing up. Over and over and over. It felt like it would never stop. My mom didn't know what was happening, so she told me to take something and try to get some sleep, lol. But, I knew something was wrong after the pain wouldn't go away so I ended up taking an uber to the hospital. I brought a trash bag with me in case I needed to throw up. I didn't in the car, luckily, but as soon as I was walking into the hospital it started again. Once I got inside the hospital I signed in and they pretty much brought me back instantly. This is where I stopped remembering things. I have no memory of anything that happened at this hospital or me being transferred to a bigger hospital for my treatment. A few days later I finally came to in the hospital bed. They ended up coiling my aneurysm. They had put a drain in my brain. My mom and my brother had come to the hospital but i don't remember that. Once I came to myself and realized what was happening it was so very scary. I couldn't get up and walk without having to call a nurse because of my drain. I had days and times when I was in a lot of pain. If I sat up quickly when someone came to visit, I'd get this crazy pressure in my head and I couldn't move. The only thing that made it go away was when I eventually threw up. I had that happen a few times. I was in the hospital until April 21st, after they were able to remove to drain. One thing that surprised everyone - especially the nurses - was how I was able to do everything for myself from the beginning. I never needed help walking or going to the bathroom. It was like I was the same person just tired and in pain. I watched a lot of TV. During the first few days the only thing I noticed that was hard and I was struggling with was texting people. I was typing a bunch of gibberish, but that went away within a few days. I'm told I'm lucky. Most who live through this have deficits. I don't have any. I went back to work a month from leaving the hospital and I was driving right away. I was alone in my apartment within a day or two after leaving the hospital. What I have now are almost daily headaches. I get tired easily. I end up working from home at the end of most days because working exhausts me. All of my CTs so far look good. I'll have a cerebral angiogram in Feb 2020. If that looks good he told me I won't have to see my neurosurgeon again. I feel blessed to be alive. I hope so badly that the headaches will start to lessen. It's so nice to meet you all.
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