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Everything posted by Sallios

  1. Thanks Michelle for your reply. It’s really worrying and easy to wonder if it’s (SAH) happening again. Guess it’s a case of keep calm and carry on. Wishing you well Sally x
  2. Thanks everyone for your replies. As if we don’t all have enough to deal with with our various deficits our minds play these tricks on us. I hope we all find peace from the memories at some point. Thanks again
  3. Really disappointed tonight: haven’t had an aura for six months and I’ve just been woken up with one. Trying not to be scared. Also feels like my brain is being squeezed slightly. Just when I thought I was getting somewhere.
  4. Thanks Skippy. It’s driving me daft at the moment. I don’t want to keep thinking about it but it just pops in.
  5. Does anyone else keep reliving the event. Many times a day I go over what happened, how it felt and the sequence of events. I’m back there on that dreadful evening. I want to stop thinking about it and move forward but I can’t.
  6. Dear Mike What an achievement well done. Very inspirational. Congratulations on being back at the gym too. Thanks for replying Sally
  7. Dear all Don’t know where I should put this but I’ve noticed that the replies I put on my thread thanking those who’ve taken time to write aren’t appearing. I’d hate for anyone to think I’m not grateful for their input. I know entries are moderated but I didn’t think I’d put anything inappropriate. So to all of you who’ve contacted me on the thread I’d like to say a big thank you. Sally
  8. Dear Skippy Thanks so much for taking the time to reply. It’s reassuring to know that others either feel or have felt the same way. Working through the cards we’ve been dealt is tough but it’s good to have the support on here and the most important thing is we are still alive. Thanks
  9. For the first couple of months everything I ate tasted as if a pot of salt had been emptied on it I’ve lost my appetite for good food and tend to eat cakes, biscuits, cereals and chocolates rather than a proper meal a lot of the time. Also I just can’t be bothered to cook.
  10. I’m just six months from SAH. At first I was so grateful to be alive (I still am of course) that I was determined that nothing was going to get me down and be grateful for every day. Trouble is gradually every day life and problems build over time as they always do. Now I’m becoming so conscious that I can’t do what I used to do. I used to be a driven personality never stopping always determined to get things done straight away etc not wanting to waste a moment. (I also run a business.) Maybe being driven was why I had the SAH? Now I can’t be bothered. I’ve lost my mojo. I never used to sit round watching telly but everything now seems such a massive effort. I still try to walk every day though but I have to make myself get out. I know I’ll never be the same again and really shouldn’t compare the old me to who I am now but just now I’m finding it hard not to feel as if I’m living in a box. Living with the fear and the constant don’t do this and that in case something goes wrong. My confidence which used to be so good is gradually eeking away. Not helped by silly things being said like my mum asking my son if I was OK to use the coffee machine in the kitchen. I don’t like this feeling so I finally made an appointment to see my GP. I don’t hold out much hope as generally I’ve found that GPs don’t know much about SAH and only tend to give platitudes. Sorry to rant on. It’s just where I’m at at the moment. I’ve had almost back to back virus since the beginning of December and the one I currently have has such a bad cough that I’ve been scaring myself thinking I’ll burst something. Does anyone know if SAH messes up your immune system?
  11. I lost my appetite for ages and everything I ate tasted of salt. For a couple of months all I wanted to eat was biscuits and sweets. A really bad diet. I have gone off some foods I used to enjoy as well. I’m only five months post SAH so I can’t say whether my appetite will improve.
  12. Had my follow up today. Consultant not surprised when I told him I tend to veer off to the right. He did a few simple tests and said bleed had damaged the part of brain that controls balance. He said it’s still early days and to be patient. If after a year I still do it he says it’s likely to be permanent but to wait and see as it might improve. Showed me the scan pictures which showed I had a very big bleed as it covered everywhere. I’ve been lucky not to be far worse off. Memory is ropey. I had an appointment for a blood test at doctor’s this morning. Walked from home then found myself near the car park by the local shop (I live in a village). Stopped and asked myself where I was going. Turned round and saw the surgery about 100 metres away on the other side of the road. I’d walked straight past!
  13. I’ve lost my appetite since my SAH in July. To start with everything tasted extremely salty. I’ve gone off most things except biscuits which Is not good. I just don’t enjoy food any more. Maybe it will improve?
  14. When I’m walking I often find I start to head off towards the right particularly if I’ve been walking for a while. I wonder if it’s a balance problem caused by the SAH. I’ve my first follow up visit in a couple of weeks so I will ask but I just wondered if anyone else has experienced anything similar.
  15. Thanks everyone for the responses. I guess it must definitely be as a result of SAH that we can’t remember dreaming. It’s just very strange after always remembering dreams in great detail to just have a complete blank. Occasionally during the day I’ll see something for example a fire extinguisher (that happened a couple of days ago) and it seems significant but I have no idea why. Maybe an extinguisher featured in a dream that I can’t remember. I’ve no idea. Sally
  16. Thanks for your reply. Much appreciated. Sally 😊
  17. Since SAH I can’t remember any dreams. I used to remember my dreams in great detail before SAH but nothing now. Does anyone else have this? Sally
  18. It’s good to read the posts in this thread as I’ve been feeling cold and getting goose pimples all over even when it’s not cold. Hot water bottle, blanket and log fire all necessities now. It does feel strange: not like real cold if that makes sense?
  19. Dear Sarah Good luck with the angiogram. I hope it all goes well and doesn’t set off any auras. Sally Dear Michelle Thanks for your response. The auras are worrying but GPs don’t seem to be too concerned. I hope yours continue to be few and far between. Good idea to stay calm while they are happening. Sally x
  20. You’re right we should all avoid Dr Google but the problem is once you’ve read it’s hard to forget it. I just hope I can get my follow up soon.
  21. Dear Sarah Thanks for your reply. My experience of the auras sounds very similar to yours. Started in hospital and has continued ever since (11 weeks since SAH) getting more frequent. They start as a small flickering blob in the distance which quickly gets bigger and bigger until it covers my vision. Both eyes involved: open or closed. Zig-zag silver/black ovoid which flickers. Lasts between 20 minutes and half an hour but no headache. It is reassuring to know that someone else has the same thing and that you are still OK. Unfortunately I’ve looked this up on Google and it says that aura without headache can be a precursor to a stroke. So this is preying on my mind. Like yours my GP didn’t have much to say about it. I’m still waiting for my follow up. So pleased to hear yours are finally reducing in frequency. Thanks again. Sally
  22. Thanks Super Mario. The admin team at my surgery have apparently been on the case for the last two weeks but to no avail ☹️ I’ll keep trying.
  23. I had SAH with coiling and EVD 11 weeks ago. How long before I should get a follow up appointment? My GP says I should have one as does my contact from the Stroke Association and someone at Headway. I still have back pain although it’s not as bad as it was. What’s worrying me more and more are the auras. They are getting more frequent around 3 times a week. My GP knows about them and says to ring for a follow up hospital appointment. I keep trying but all I get is an answerphone and I leave a message but no appointment materialises. At a bit of a loss to know what else to do. It’s like a brick wall. Does/did anyone else have frequent auras ?
  24. Dear V Mama Thanks for your reply: much appreciated. There is so much support on this site. Glad I’ve found it.
  25. Hello Matt I had my SAH with coils and EVD 9 weeks ago and I still have pain in the back and neck, which spreads to my chest and makes walking uncomfortable. I too use hot pads but be careful with them as I used them so much I ended up with blisters. I’ve been told to take it easy and to rest as often as my body tells me. The initial fatigue is unbelievable but it does slowly get better. It’s nowhere near as bad now for me as it was in the first month but I still try to have a nap in the middle of the day. Keep hydrated. It really does make a difference.
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