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Jane

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  1. I don't remember it happening but my husband told me I was brushing my teeth before going to bed. He heard me weakly calling his name and found me lying on the bathroom floor. He asked me what had happened and I said that my head felt as though it was going to explode. Luckily he called an ambulance straight away. We went to our nearest hospital 25 miles away where they did a scan. They saw it was an SAH and we had to go to Frenchay in Bristol as they couldn't deal with it at the first hospital.
  2. Hi Fern, I know exactly how you are feeling and I sympathise. I had an SAH in January 2012. The scans showed I also had a small unruptured aneurysm. Some months later they offered to coil it and gave me all the scary statistics. I decided to have it done so that I wouldn't have to keep on worrying about it. My husband pointed out that if I didn't have it coiled I could end up having another SAH several years later and would then be having to recover from the effects of the bleed when much older than last time. I had it coiled just before Christmas and I am so glad I did. I felt so happy and relieved when I came to afterwards. As the doctor said when she woke me up "There, you can put it all behind you and get on with life now". I suppose they do have to give you the statistics but it does make it scary. I felt fine afterwards, just a bit tired, but nothing like recovering from the SAH. Wishing you all the best. Jane
  3. Hi Karen. Sorry to hear that you and Jimmy are having such a hard time. I've had a couple of thoughts while reading your posts. I hope you won't be offended but in the past I have worked a bit with children with communication difficulties. They used to have a set of small laminated photos of things that they could point to to indicate what they wanted. I wondered if this might help Jimmy while he is getting back to talking and communicating like he used to. So for instance you could have a set of photos showing a toilet/ bath /shower/ razor/ bed/ drink/ different foods etc. Then Jimmy could just point to the thing he is wanting. I feel this could reduce frustration for him. It must be dreadful to not to be able to communicate - no wonder he gets annoyed with people. Another thing we used to do was use the Somerset Total Communication system: http://www.somerset.gov.uk/irj/public/services/directory/service?rid=/wpccontent/Sites/SCC/Web%20Pages/Services/Services/Community/Somerset%20Total%20Communication It was developed for stroke victims if I remember correctly. As well as diagrams there were also physical signs that made things easier such as a 'thumbs up' for yes, rubbing the heart for 'sorry' etc. I hope this makes sense! I just wondered if this would help you both. Thinking of you and hope everything goes well.
  4. Hello Neil, I'm sorry to hear you have all this worry but pleased you have decided not to go to the Philipines. I feel it would be better to stay in this country for a while until you get it sorted. After my SAH the Registrar told me to be mindful of where I go on holiday now. She said that after having a shunt it's better to be somewhere they have CT scanners in case there's a problem. She mentioned Africa as not being suitable. Sounds a bit alarmist I know but it does make you think a bit. The trouble is you just want to get back to normal and not have to keep on worrying about it. I hope you manage to get it fixed soon. I wonder sometimes if some of these people have any idea what it's like! All the best, Jane.
  5. Has your son been tested for Coeliac Disease? I understand this can be triggered by surgery. I hope you manage to get it sorted soon. Jane
  6. I had an SAH followed by vasospasms and a shunt in January this year. I seemed to progress really well after the stunt and was expecting to keep improving at the same rate. I now realise that's not how it works! I've found it reassuring reading about the experiences others have had. Looking forward to chatting on here.
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