Carolyn250

Do too much and your body rebels and bites back. Knowing what “too much” is can be challenging - 2.5 years on and I still don’t know what it is but fatigue is a regular thing but not at regular intervals or at the same depth or length! Anxiety is a partner it seems. Apparently PTSD is not uncommon either but I certainly get subconscious anxiety that then becomes horrible jittery anxious feelings that are also tiring! Pfffft - frustrating isn’t it but not uncommon I think. Not sure if this is helpful but I hope it does help a little x

I am on HRT - estrogel and utrogestan at lowest dose. I was a bit higher dose when it happened so we lowered it but they didn’t feel it was caused by HRT so I carried on using it maybe speak to menopause specialist not just GP??

Hi Dave I’m a UK NASAH person. Based near Leeds. Mine was 2 years ago mid covid so I was a week at home before going to hospital. I didn’t take enough time to recover and wish I’d been advised to do so but GP suggested 2 weeks off work and there was no neuro follow up as nurses had been covid re-deployed! Timing huh! But yes headaches - I had dihydracodeine for bad days and after first 6 months I barely needed. I still get fatigued - there seems to be no rhyme or reason as to why but several times a week I may be wiped for a few hours or a day. I don’t think there’s anything to fix this. My head gets jittery and light headed and spacey. I had to stop working because that much mental effort was too much. I also think anxiety subconscious or otherwise has a role to play in these symptoms. But this is me and everyone is different and I’m telling you this so you don’t try and follow a pattern of symptoms. Everyone is different. I’ve been told that after 2 years whatever your symptoms are is how you’ll be for the long term - anyone else heard this? I’ve also been told this isn’t true!! It’s a little understood happening but as you were told it’s very rare for it to happen again. Tinnitus - yep! Think that’s common. DVLA - nobody told me til several weeks in so I asked the GP who asked the neuro dept for me and said not to bother as they were happy for me to drive at that stage. So I didn’t drive but I didn’t inform dvla either good luck with your recovery. You can’t DO anything to speed it up so patience is your friend.

Wow Helen that’s really useful. And good (in a bad way) to hear they others get set backs i did speak to Headway but not the one you mention. Will give it a look thank you so much. And I hope you continue to improve. cx

Hi Clare Thanks for replying. My NASAH was relatively small I think not like yours but my brain has certainly been insulted by it!!! I asked to see a neuro psychologist but was advised by doc to go private. I explained I had no idea what I’d be looking for in a private NP and online many are there to assess for insurance claims it seems so since that didn’t apply I went no further down the private route. The docs seem to think this latest development is down to anxiety and are treating accordingly but I’m previously not an anxious person at all - I’m a get on and do person! Whilst I accept anxiety is assoc with this I am experiencing headaches, constant brain fizz, fatigue at times as well as neck ache and random aches and pains that I don’t get when I was well before Xmas!! These are symptoms I suffered in first 6 months after initial event in 2020. I only work 2 days a week following this as could not manage a full week as I feel now. I will keep trying with NHS and/or ho back to private neurosurgeon and pay if necessary. I just need answers! If this is the norm and I gave to live with it then I’ll just have to get on with it. Thanks so much for the support on here. It means a lot. 🙏🏼

Hi Tina Thanks for your reply - very good advice. Maybe now covid is receeding a little I may get further with a request. I was doing well until Xmas - something happened!! I don’t know what but I’m definitely back many months with symptoms. You’re right - it’s all about sufficient peace of mind Do you mind me asking how long ago your NASAH was and how far your recovery has gone. thank you cx Thanks for your reply 🙏🏼 I had a phone call from the neuro out of the blue a year ago. He asked me about 5 questions and then said he was signing me off. That was it. I paid to see a neuro for a review last May too. But I’m still not right. The doctor has put me on pregabalin (low dose) but I feel no different as yet

Thanks for your reply 🙏🏼 I had a phone call from the neuro out of the blue a year ago. He asked me about 5 questions and then said he was signing me off. That was it. I paid to see a neuro for a review last May too. But I’m still not right. The doctor has put me on pregabalin (low dose) but I feel no different as yet

Hi I’m Carolyn, based near Leeds and had my event in June 2020 i have posted this to see what experiences of follow up support post hospital people have had and what they found useful Sadly I had none and am now looking for possible ongoing support but no idea what’s out there Any experiences or ideas gratefully received I was doing well and largely back to normal - 95% - then at Xmas had a weird episode that put me back to head jitters, head aches and fatigue so am keen to see what may be out there for support thanks

Hi there whereabouts in the UK are you? I think support in UK for this condition is abysmal! please listen to posts about taking time. You aren’t going to “get back to normal” quickly and you can’t “push through” you just gave to be patient. There is no magic formula sadly I am near Leeds and 18 months in. It took a 9 months to a year before I started to feel normal on a regular and daily basis although have recently had a set back be patient, listen to your body and head, good luck with your recovery. It will happen 🙏🏼👏👏

I hope you’re father is improving! I live near Leeds and had a nasah 18 months ago. There seems to be little to no follow up care or support available locally. Is this the same for you and your dad? It’s the not knowing that’s hard as in my experience you get all sorts of weird and anxiety causing pains and side effects. From this site I feel these are normal but I wish I knew for sure! be patient. It really takes time to recover - think months and maybe years rather than weeks x