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Everything posted by Carolyn250

  1. I spoke to Headway support person today. Really lovely and supportive and saying much as you are - “be patient. It will get easier”. It’s all about managing expectations. If they’d told me it’ll be a year in first place I’d prob be worrying less!! 🙄
  2. I’ve raised it with GP but standard - “well we can try but with COVID.......”
  3. Hi everyone I hope this finds you all well I am now 5 months post NASAH and with no one to talk to about this I'm just looking for a bit of reassurance on progress - or not! I am certainly improving compared to how I was 6 weeks in but improvements are incredibly slow and frustrating. Maybe I am expecting too much? I have headaches and neck aches/stifness as a daily constant. The buzzing/busy head is also pretty constant although when it isn't it's usually when I am more able to do things and feel more 'normal' The memory is pretty bad compared to bef
  4. Oh blimey worry not. I’ve driven 3 times so far and just locally and only when my brain feels clear and with a fall back plan in my head! I haven’t lost confidence in driving but I know I need to consider my head state each and every time. I’m a long way from being a “hop in the car whenever I need to” driver again!!! 👍👍
  5. Thank you so much for your continuing support. I have posted an update in 'Adjusting mentally' so won't re-do here However what I would say about having a NASAH in the time of Covid is that I think you are required to push that little bit more. Covid backlogs meant that I wasn't even on the list to get an appointment for a follow up, never mind have an appointment! So I searched for my consultant named on discharge notes to see if he practised privately. He did so having spoken to him I feel like I have had my follow up! He also had my notes with him which was helpful an
  6. Hi all and thanks very much for your wise words, advice and support. Really appreciated. I'm now day 65 and there are some changes. I managed to track down my consultant as follow up appt at 8 weeks was never going to happen because of covid. I decided it was better to pay to see him rather than wait. Too many unanswered questions. I had 30 mins with him on a video consult and he didn't charge me. Nice man. He said the chat we had was what he would have done at a follow up. So I felt re-assured. In summary My various symptoms ongoing were to be expected. He
  7. Thank you all so much for your replies. Your support is massively appreciated
  8. Also does anyone else get this. When someone comes to see you they say how much better you are looking and stay for a cuppa etc for an hour or more. I can most often chat fine with people and if I start to get tired they don’t always see it. Just remark how well I look. I feel they think I’m fine but inside my head is a different matter. It’s buzzing/tiring etc. I wonder if people think I’m putting it on because I look well. Inside vs outside??? How do I explain that?
  9. Thanks - I’ll see if there is anything like that for me. Covid has made things more tricky it seems. I’ve had next to no support apart from 3 x 10 min phone calls from a GP who’s never met me. Still no follow up from hospital
  10. Thank you all for your replies. It’s always very reassuring to hear from people further on than me. Did anyone get any mental support and if so what? NHS or private and did it help a little or a lot? onward and upward
  11. Hi it’s me again - sorry to bombard you all with questions! I’m now 6.5 weeks (not that I’m counting lol) post a NASAH. I have no side effects physically so feeling very lucky. I am finding the speed of recovery a bit challenging as I’m a get up and do person and sitting around isn’t really me. I have however become best friends with daytime TV (arghhhh!) as I simply can’t sit and do nothing. My question today is how you managed with this whole thing mentally. I don’t mean the anxiety attacks that wash over me unexpectedly but the whole thing about what just happened to
  12. Thanks Skippy i fully plan to live freely - I’ve no intention of being defined by this but I guess it’s early days although tbh I thought I’d be back to normal by now!!! Lol silly me! thanks for the inspiration and wise words x
  13. Oh no not harsh. Sound advice im not driving either!!
  14. Thanks guys Very lovely to hear from you. at least I don’t feel it’s simply a Covid thing! spoke to GP today who is chasing the consultant neurologist who saw me to see if I can get to chat to him As my out patient appt could be months away! Driving - GP says he thinks I’m prob fit to drive. Will await official confirmation but won’t advise DVLA because I’m OK again so why tell them? Like many I’m still struggling with realisation this isn’t going to be a quick fix - can’t get my head round that! Anxiety - hmmmmm that usually becomes more startling as I tell people and experie
  15. Hi there is there anyone who can tell me how much medical support to expect normally post NASAH in the UK? i had mine end of June 2020 and reading posts on here I feel I’ve had little support - maybe becos of Covid? I called my GP 4 days after discharge from 5 day stay in hospital. They didn’t call me despite having my discharge notes. I have had 2 x 10 min phone consults from the GP and tho he is very nice he’s told me SO little. The hospital just said go home and rest An 8 week FOllow Up by hospital neurologist is not confirmed because....“we don’t know when as we
  16. Thank you for your lovely reply and letter to my brain 👍🏻👍🏻 does anyone know whether I can legally drive or if I need to report this to DVLA? Reading some of the posts on here has really helped me to understand a) I’m not alone b) my symptoms are not uncommon c) I think I’m doing ok considering d) I’m not going to recover as fast as I had ignorantly imagined! All of these are a great help thank you x onward and upward
  17. Hi there I’m posting to ask for some simple advice as I feel very short of info. I had my NASAH (Grade 1) on June 28th - middle of a field, out of nowhere, thunderclap headache, vomiting, light sensitivity, stiff neck. Assumed it was a violent start to a migraine! Husband came to get me. Felt appalling, made no sense talking and tried to sleep the ‘migraine’ off. Next day headache lessened a little but all other symptoms still there and now with a really fuzzy and uncomfortable brain feeling. I tried to work that week but it was too hard. I’m self employe
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