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jus

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Everything posted by jus

  1. Aww Bev my pal.... I have wondered where youv'e been!!! I only know that they are the most common of seizures and that it is a waiting game to see if any more occur...that's why they don't give any medication the first time round....i will pm you!!! Rest now your on sick leave and your right to cut the booze out a bit ( ive made you sound like you have an issue with it ) i know you haven't!!!! Don't start worrying loads over this i think the aniexty youv'e had has led to this more than the bleed ( aniexty limits oxygen levels) which can be a factor in seizures.
  2. Hi Dawn.. Firstly i'm sorry all this is happening to you, secondly well done with your 8 hour shifts and finally do not let them get you down or make you feel like your not doing the best you can. I would be as brutal with them as they are with you....youv'e obviously tried the proffessional approach (biting your lip thingy and not saying what you really think etc) but be how they are with you...you don't owe them anything!! Ask them a direct question along the lines of " Would you prefer it if i no longer worked here?" i know lots of people may say that's rude etc but enough is enough...maybe there are things you don't do as you did before or as well as you did before....but so be it. A major trauma happened to you and your doing what you can to get some normality back....they should be working with you, without unjustified references to you appearing flustered etc!!! I said before they have a duty to you...so the breaks and computer and extra phasing are an expectation they must meet, they need to be reminded that your managers have other areas of your return that require something much harder it seems.....a heart and compassion. Tell them exactly how you feel and if they don't like the " i think" start you use try " fed up because....." I wish i could do it for you
  3. Hi Dawn I read your post and i can't believe how some people go about themselves or how they sleep at night. I often want these people to walk in our shoes for a day and then see if they have a better understanding! I've recently returned to work so am facing my own struggles aswell...like you noise is an issue..i teach though so ear plugs isn't an option ... I know that there was a new disability act brought out though which my occupational health appointment brought to light - its where people like ourselves are classed as having protected characteristics of disability. I've been informed that the workplace has a duty to ensure adjustments are implemented to accomadate any disability. Could you make an appointment with occupational health? I'm sure they would back your corner for you and help make sure that your 'disabilities' are properly managed and accomadated without you having to deal with these people on your own. I really do wish you well and would personally speak to them for you if i thought it would make a difference!!!!!
  4. Awww Michelle...i feel for you I teach and have a whole classroom full of little individuals.Some of my little people have specific medical needs,others educational needs - they are all different and i feel it's my job to know these things about them so i can best help,educate, and nurture them. It's really difficult when your child does not want special attention (as they see it) however you know this would help him get through each day. I know in high school they have different subject tutors..so they see lots of classrooms and teachers however could you maybe ask to see his Head of Year so you can explain the situation (he doesn't have to know this), I would have thought that after they have met you and have a better understanding of the struggle he faces daily then they would work alongside you to get an action plan in place that best suits his needs. I'm thinking of you xx
  5. I thankyou all from the bottom of my heart for your replies...I will not let this text bother me anymore xx
  6. Macca, Dawn....thankyou...iv'e thought about what everybody has said and your all right in everything you say....it's just hard to comprehend how some people think...but like a lot of you say it is obviously the ignorance that produces such hurtful remarks...and before this happened to me, i will put my hands up and admit, i knew nothing about it...but boy oh boy i sure do now
  7. Winb143....I shall raise my glass of water to that...cheers xxxx
  8. I shall read this spoon theroy....and see if it helps thanks, i feel comforted knowing you all get my anger and hurt, and that it's not because of my head explosion that i feel like this xx
  9. Winter...make the leaflet!!!! it's a really good idea...words are hard to find sometimes
  10. That's it Mary B....i feel like i must have bored them by being ill and now everyone is like "c-mon..get your finger out!"...am shaking my head side to side as i type because people really are strange!!!!
  11. Awww Bev,Penny i feel really sad when i read that... it's just seems like everytime you get over one thing something else crops up...i knew today was going to be a stressy one when my cat woke me at 4am opera singing (he doesn't meow like a normal cat!!!)
  12. Hello Scoobs and David...and thanks....think i will leave information about our horrendous carry on lying around...and see if that makes a difference... i keep screwing up my face as though everyone can see how mad and peeved i am!!!!
  13. Carolyn your hugs are gratefully recieved....Have got headache now cos its really bothered me...I haven't had to deal with any of this before so it's completly thrown me.....am really dreading seeing this person because i really want to shake her very hard (that's putting it mildly!) I shall take all of your wise advice though and not waste my energy xx
  14. Awwww thankyou.....am so mad i'm finding it hard to type.....wasn't sure if it was just me who found that completly insensitive and stupid. I will have to work with this person quite closley in Sept so i think i will have her take a peek at this site!!!!
  15. Please tell me if it's just me being overly sensitive or would this really get to you too? I have just recieved a text from a work collegue asking if i'm normal now and is everything working correctly and that i shouldnt worry about returning full time to work cos i've got the perfect excuse not to do much....the text ends with lucky you! I am frothing... i feel like i'm being seen as a washing machine thats been in for repair!
  16. oh my word.....:lol:why do that??? i fear no sleep tonight due to all this entertainment...im now fully awake so will go clean the kitchen floor in order to stop laughing...thanks to you all...i feel better xx
  17. It is!!!! enjoy your day tomz and let us know how you've gone on (sat in the window laughing)its been really good to "chat"xxx
  18. What job do you do?? I hope you have a good day whatever and if you feel a a bit pensive ever just remember razors...thongs.... and lip gloss only us would know its nothing to do with brothels:lol::-Dxx
  19. Bev....its official...i have just wet myself laughing!!!!!!!!!!!!!!! xxxx
  20. :lol:Oh Michelle....your reply has made me laugh.....i can just picture the scene!!!!!!!!!!! hairy woman doesn't seem that bad now...thankyou:-Dxxx
  21. Thankyou Gill,Jess and Mary B I've already read your replies about 200 times because i find it reassuring xx Bev...I dont think anyone ever forgets an experience like ours....(and i did laugh at the image of you re-acting the hospital checks) i thought only i did that!!! My legs have never been as sleek and shaved.....at the time of my SAH i hadnt shaved them for ages (It was winter and i needed the extra warmth ) so i was mortified when i finally realised the whole of Bradford and Leeds NHS staff may have confused me for a man!!!! that will never occur again. I think what helps me when i panic is that i am known to have this medical issue (and your known to have had yours) so the medical proffesion do know about us and will keep a check on us. I also have been back to work (part time) and am due back full time in Sept. Thats another hurdle we will have to tackle....not really looking forward to that but then i feel guilty and think i may be punished for seeming ungrateful at been able to return to work...everything seems complicated now because i know i always over think things whereas before all this happened i just sort of lived my life with a "what will be will be" attitude now its like "oh my word what if this happens cos of this" attitude xxx
  22. Have just checked the site again and again i cry....its just so comforting to see people actually take the time to read my waffle and reply! hello Bev...i wasnt under Dr Phillips care but Dr Ross whom i only ever saw once before my coiling procedure...and have never seen since.Thats what is so hard about all this head exploding thing....you can't seem to get any straight answers from anyone and all iv'e ever been told is i'm incredibly lucky....of course i am and everybody else who has had to go through this terrible life changing experience but i cant help but think its similar to being hit by a bus (you dont feel that lucky!)I seem to have good days and bad days....some days i can get through a whole day without having to take any pain relief and then others i get twinges and throbbing around the site that exploded and i go into panic mode and sit holding my head as though that will stop any explosion....thats how irrational i've become. I've also found that the people i thought were my friends were not really. I am really lucky to have one true friend though, Wendy,....she completly understands everything ive gone through as her own mum had a SAH and she calms,counsels and never judges me.Its thanks to Wendy that im out and about now....in the early days i was so scared of going out and it happening that i didnt do anything...go anywhere...or see anyone other than my family and Wendy...i will always be eternally gratefully to her for not letting me sink into despair. i never really thought about how it must feel to have a bleed and not know why Bev, i understand your worry in a different kind of way,although i can't completly understand what that must feel like...it just seems so unfair all this carry on! Anyway now i shall think of you often and include you in my daily prayer.
  23. Thankyou so much for your quick,kind,and understanding replies,....it made me cry because at last i'm amongst people who truely understand....thankyou
  24. Well i say new but i've been using it for months now and not dared register before now....not sure why really because i have found it to be a great comfort to me since my head exploded (SAH) on the 27th January 2012. It was a Friday and i had just come home from work about 4.20 pm from my teaching job,my husband handed me a coffee and bang my head exploded! I can remember falling to the floor and been violently sick..my 2 children aged 17 and 10 at the time went to get their dad who had wandered into the garden who called the ambulance. After my local hospital confirmed a bleed i was transfered to Leeds General. I can't really remember any more details but have been told i was having fits and was unable to move down one side. I was monitored over the weekend and then coiled on the Monday morning.....I spent a while in the HDU ward and then moved to a different one before i was allowed home.I've found it really hard to cope....i still look at my 2 boys and husband and animals and wonder how long i've got with them....and recent M.R.I. results have really freaked me out because it states my operation was complicated by substantial coil protrusion on the parent artery thus requiring me to be on Aspirin for life....not sure what that all means but it worries me a lot!!!! Have i got 2 dodgy arteries? Will i have another SAH because of this and Aspirin thins the blood so oh my word if i did this would completly finish me!!! Anyway thats me and my story and thanks to everyone on this site i no longer feel quite so lonely.
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