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MarkH

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  1. Hi again Dave. Great to hear your headaches are subsiding and you are already able to manage without pain killers. That's fantastic news. The fatigue will slowly improve as you become more active but it is important not to overdo it as in my experience it can set you back a bit. I went back to work (quite full on office based job) after two months which in hindsight was probably a bit too soon. I coped okay with the work itself but it was exhausting and for the first month I was pretty much unable to do anything in the evenings or at the weekends because I was so tired. You should absolutely be guided by your doctor about what you should and shouldn't do. Mine advised exercise was fine when I felt up to it but to avoid lifting heavy weights. I started gentle running after three months and gradually picked up the frequency and intensity of my runs. I'm not back up to the distances I used to run yet (half marathons) but am very comfortable doing an energetic 10k. My doctor confirmed it was fine to give blood and I have resumed doing that with no ill effects. I was also advised to get a blood pressure monitor to keep tabs on my blood pressure which I have done. Good luck with the GP appointment and I hope your energy levels start to pick up soon. It's still very early days for you though you so don't try to do too much!
  2. Hi Dave. I think everyone's experience is different. Reading your post brought back some awful memories for me though and I really sympathise with you. It is such a traumatic experience. I was misdiagnosed initially so was in agony (head, neck and back) for five days before I was admitted to hospital. At that point I was given a paracetamol drip and and valium which really helped. I stayed in hospital for eight days on paracetamol and codeine but initially really struggled between doses and had to take morphine at night. For me the really excruciating pain started to abate around day 10 but I had constant headaches and a stiff neck for several weeks afterwards accompanied by intermittent shooting pains. The intensity of the headaches slowly reduced and they became more intermittent after a while. I'd say it took about three months or so before I stopped having to take regular painkillers. I'm now 14 months on and whilst I'm slightly more prone to headaches than I used to be and get tired more easily, I feel pretty much back to normal. A word of warning on the DVLA front. Their admin is extremely slow. It took them over a year to confirm they weren't going to revoke my licence. When you feel up to it I'd seriously suggest you try to get a letter from your consultant or doctor confirming you are fit to drive while you wait for their formal confirmation. WIshing you all the best for your continued recovery!
  3. 1 Sudden stiff neck while out running - completely locked - with pain radiating through back of head and into forehead 2 Felt confused - body felt like it was shutting down and wanted to sit down but managed to walk two miles home 3 My wife took one look at me and drove me to A&E where I promptly vomited and was diagnosed with v high blood pressure 4 CT scan did not show any issues - given painkillers and discharged with suspected neck spasm 5 Vomited all night - relentless pain in neck and head and developed eye pain and aversion to TV/loud noises 6 Back to A&E next day - treated with anti-sickness medication which worked and painkillers which didn't and sent home 7 Day at home in agony - now getting severe lower backache whenever sitting or standing as well as ongoing neck pain, headache 8 Next day saw GP who consulted with A&E and prescribed stronger painkillers - didn't help 9 Next day pain worse than ever - saw an osteopath who took two minutes to confirm it was not musculoskeletal and wrote a letter to A&E suggesting an urgent MRI scan - back at A&E had a second CT scan (contrast and non-contrast) which revealed a bleed and possible AVM - admitted to hospital and finally given painkillers which had some effect 10 Following day transferred to a hospital with specialist neurology department - still in a lot of pain 11 Day after admission had catheter angio which did not reveal any structural issues 12 Kept in for a week on nimodipine during which time blood pressure normalised and pain slowly started to improve 13 Had a further CT scan after seven days which reconfirmed no structural problems - diagnosed as NAPSAH 14 Now home (bleed plus 28 days) suffering from ongoing headaches and fatigue but v relieved about prognosis and thankful the intense pain has subsided! 14 This site is fantastic - it has been really helpful to read others' experiences and know I am not alone in what I have been through - thank you all so much for sharing
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