Sarah

Hi Bessie, My mum had a similar thing when she was discharged from hospital onto a neuro rehab unit. She had very low awareness and would sleep alot and would rarely talk and was like this for a good 3-4 months. The rehab hospital were about to discharge her when they wanted to make sure that they had covered everything and decided to send her back to the hospital where she had just come from. The scan confirmed that she had hydrocephlus and she was transferred back to the initial neuro hospital she was at when she had her SAH. A shunt was fitted inside the back of her head which was linked to her stomach and within a week she had woken from this minimally aware state to be telling people my name and just generally being more with it. I am not sure if this will really help but having resigned myself to the fact that she was going to be that way forever she is at least 50% better than what she was. Also in regards to the tilting head the same thing happened with my mum, again whilst in rehab she was given a number of botox injections to (I am not sure if contract is the right word) but it basically relaxed the stiffness in her neck to allow it to sit straight. She had the same thing in her knee and arm as she has left side paralysis and it did seem to work. Also recently my mum has moved into a nursing home and the same thing has happened with the physio. Whilst in rehab she was getting it 3 times a week and now we have been told due to funding it is better that the family and staff at the home continue with the 'maintenance' of her limbs. Funnily enough despite the fact that her left leg has started to move having been told it never would we still won't get any the joys of social services!!. Anyway if I can be of any more help, please get in touch. Good Luck Sarah

Hello, I am new to this discussion group and am writing on behalf of my mum who recently had a SAH back in March this year. She was lucky to survive a large bleed and is thankfully still with us a couple of major operations on. I am really writing to see if anyone on this discussion group knew of any good rehabilitation centres in the London/Surrey area. We are currently battling with the NHS hospital that my mum is in as she has been turned down by two of the three rehab centres in our area. Our last hope is the Royal Neuro-disibility Hospital in Putney SW london. We are trying to get her into this hospital but the NHS hospital she is currently in is saying that this is no better that her being in a general hospital. Does anyone have any views of any rehabs as we are trying to find alternatives whilst they are arguing about money as this is a charity run hospital. I really feel that I am banging my head against a brick wall with the NHS. Any help would be greatly appreciated. Many Thanks Sarah