hendo24

Hi Sandi, Hows the head/face/sinus pain now. I am coming up on my 3 yr anniversary and still have constant head/face pain all day every day, some days worse than others. I haven't been on BTG in quite a while but I recall reading a lot of your posts that were helpful. Thanks!!!

Hi Iola, I would be interested in PM comparing supplements and essential oils, etc. and just how you are doing. I haven't been on BTG for a while. Coming up on 3 yr anniversary and remember reading your posts about the same time.

Hey Brian, What are your symptoms now? I am about 13 months out from PMSAH & just curious how you are doing?

Hey Kris, I am 43yo male, about 13 months out and I have CONSTANT calf muscle fasciculations since my PNSAH. Never stop, but seem worse right when I awake or after I work-out. Sometimes goes up into my upper leg minimally. Does this mean I have neuropathy? My EMG was totally normal & I have seen 5 neurologists with no explanation, including Mayo clinic. Never had this before the SAH. I don't feel any weakness or pain in legs. However, I don't enjoy my workouts near as much because of a constant continual headache & just head discomfort as well. Other persisting symptoms are constant swimminess, constant tinnitus, occasional insomnia, off& on hot flashes & heat pains down my trunk & arms sometimes, occasional sound sensitivity, & micro-tremulousness (can't see it but I feel it). Just curious to your thoughts. Thanks, Wade

Hello Scooby-doo and Everyone, I am sort-of in the same spot as Scooby-doo. I had my SAH in Jan 2013 while exercising. I am 42yo just 3 months out but can't walk across the parking lot without feeling very unwell. I used to workout 5-6 days a week and usually did 100km or more per week on my bike. How long did it take you to get to each stage of your exercise? What happened if you pushed too hard? Also, did you have other symptoms besides headaches? Any heat, chills, shivering or tremors, dizziness? I am frustrated that I don't feel any better at 3 months than I did the week that I came home from the hospital and certainly can't exercise? Thanks, Wade

Anybody get the shakes? Thank you all so much for responding. It is helpful to hear from people who understand. It is just difficult to explain to anyone what this is like and very hard for me to accept that you can't just push through it. I had to take off work this week and it has been a tough setback. I went back into the ER and they did an MRI which was normal. Its so amazing how fragile the brain is. Anyone else get the shakes or chills? I have these episodes that start with a warm liquid feeling inside my head, especially around the ears, then my whole body gets hot and I start shaking profusely and I sweat all over. I had this in the hospital right after the heme but none since until this week and have had 3 days in a row. It flattens me and I can't function and is quite miserable. I've checked my blood pressure and pulse and temperature as all this is happening and it is totally normal! I just try to relax and breathe my way through it. Anyone else? Wade

Thank you all so much for responding. It is helpful to hear from people who understand. It is just difficult to explain to anyone what this is like and very hard for me to accept that you can't just push through it. I had to take off work this week and it has been a tough setback. I went back into the ER and they did an MRI which was normal. Its so amazing how fragile the brain is. Anyone else get the shakes or chills? I have these episodes that start with a warm liquid feeling inside my head, especially around the ears, then my whole body gets hot and I start shaking profusely and I sweat all over. I had this in the hospital right after the heme but none since until this week and have had 3 days in a row. It flattens me and I can't function and is quite miserable. I've checked my blood pressure and pulse and temperature as all this is happening and it is totally normal! I just try to relax and breathe my way through it. Anyone else? Wade

I'm not sure how to ask this because I feel crazy even trying to describe it. I am 42yo male and now just over 2 months from PMSAH. Although I have been back to work, I still have yet to feel even close to recovered. I have to stay seated and can't move around for very long or my symptoms dramatically increase. My headaches are better, but I have a constant 'pressure/swimmy/dizzy' feeling....not exactly dizzy as if I want to fall down, but very uncomfortable....like the worst hangover-type of feeling. I also go through episodes where it feels like someone is pouring hot water inside my skull, especially around my ears. Sometimes I am a little nauseated but more often just uneasy. In addition, I have constant ringing in one ear. I am hoping someone can chime in as to their experiences and let me know how they have recovered and how long it took. I have been trying to keep my mind distracted so that I don't focus on my discomfort....but I had another setback this weekend....and finally started crying in front of my wife. She has been through so much with this and I really don't want to add to her pressure. I know she is sad because she cannot relieve my misery. I know that I have to deal with it. I am generally a very positive guy and always thought that I could endure a lot but I am very discouraged this weekend and have no one to talk to that can relate to my symptoms, and I don't want to sound like I am just complaining....but I go through episodes where I am just miserable. Wade

Thank you all so much for responding. I, like many that I have read about here, have really had to research my problem, as my primary care physician and even general neurologist were relatively unfamiliar with PNSAH. I have read virtually every article and book that I could get my hands on. I only learned of one individual that apparently suffered this a second time. Ironically and unfortunately, he too, was a triathlete so...??? It makes you wander, is there no to little recurrance because people change or limit their lifestyles? Or does the venous system truly scar and repair itself better than the original defect so that there is virtually no chance to happen again??? Would be nice to know how much we can resume our previous lifestyles physically? I love it but not enough to die a young man for it I did get to review the CT, CTA, and cerebral 3D angiogram and all were definatively free of aneurysm or other defect except perimesencephalic blood in the SA. Anyway, for now I am still not even 2 months out so I can't really even try to force anything or I get an immediate dizzying headache. I have tried a very controlled form of Yoga, stretching, and isometrics while wearing a heartrate monitor and keeping my pulse below 100. Its not much but sitting without exercise really doesn't agree with me, it torques my back and my body just doesn't like it! Unfortunately, I can't really go for walks either....I'm fine at work moving from chair to chair but if I really try to get into a long stride: ....headache! But getting slowly better I think. It really helps to hear about other's experiences that have been through this. I am grateful for your responses. Best wishes to all of you and my prayers for you!!!! Wade

Thank you all so much for responding. I, like many that I have read about here, have really had to research my problem, as my primary care physician and even general neurologist were relatively unfamiliar with PNSAH. I have read virtually every article and book that I could get my hands on. I only learned of one individual that apparently suffered this a second time. Ironically and unfortunately, he too, was a triathlete so...??? It makes you wander, is there no to little recurrance because people change or limit their lifestyles? Or does the venous system truly scar and repair itself better than the original defect so that there is virtually no chance to happen again??? Would be nice to know how much we can resume our previous lifestyles physically? I love it but not enough to die a young man for it I did get to review the CT, CTA, and cerebral 3D angiogram and all were definatively free of aneurysm or other defect except perimesencephalic blood in the SA. Anyway, for now I am still not even 2 months out so I can't really even try to force anything or I get an immediate dizzying headache. I have tried a very controlled form of Yoga, stretching, and isometrics while wearing a heartrate monitor and keeping my pulse below 100. Its not much but sitting without exercise really doesn't agree with me, it torques my back and my body just doesn't like it! Unfortunately, I can't really go for walks either....I'm fine at work moving from chair to chair but if I really try to get into a long stride: ....headache! But getting slowly better I think. It really helps to hear about other's experiences that have been through this. I am grateful for your responses. Best wishes to all of you and my prayers for you!!!! Wade

Hello, Well...Im a new member to this site and a 42yo male. Its only been 1 month since my SAH and I'm still trying to get an understanding of what happened and what to expect. In January, I was working out in my home gym and suddenly, without trauma....massive headache, vomiting, etc. 3-4 hours later, I'm in the emergency room and the doctor is telling my wife that I have a brain hemorrhage and to get our children and parents and loved ones there immediately. Good news is, scans and angiography are good and apparently its Nonaneurysmal Paramesencephalic. I have been trying to research quite a bit and from what I understand the longterm prognosis can be very good. Honestly, I am so grateful to just be alive....but also, I am pretty frustrated and worried about what I will be able to do.... and if & when. Still have constant headaches and just feeling a bit 'swirly' all the time. Also constant ringing in my right ear and lost some hearing in the high frequency range. Im starting to feel better until I get up and cover any distance, and then the 'swirling' comes back and I feel like Im 100yrs old! I don't want to let this beat me and I tend to want to push, but I've quickly learned that doesn't seem to be a good strategy. I have really never been sick a day in my life, and I'm a big health and fitness geek. I have been an endurance athlete all of my life and routinely do cross-country triathlon-style extreme adventure races, most lasting 12 hours up to 48 hours, and also have always trained rigorously running or biking 60-100miles a week....its my therapy! I have been trying to do very limited stretching and isometric stuff while wearing a heart monitor to make sure it doesn't elevate...but maybe its too soon? not sure... Anyway, would love to hear from others about what to expect. And particularly, those that have a pretty active lifestyle....how are you doing now? how long did it take? are there things that you just won't ever be able to do again? any advice on training (or not)? Thanks for letting me share. My sincerest prayers and respect for all of you that have suffered this and worse. I appreciate your advice! Wade

Hello all, I am a newbie 42yo male and recently suffered a SAH while working out doing burpees in my home gym. It has only been a month now. I am an avid competitive endurance athlete. I was averaging 60 to 100 miles of running and mountain biking a week as well as 12 or more hour adventure races, etc. I am so grateful to be alive and I am improving. But I am very worried about what is to come and what I will be able to do when all is said and done. And although I know the general prognosis seems very good, how many people that this happens to are highly physically active beforehand, and are we at greater risk if we try to resume our lifestyle, ya know? Anyway, I would appreciate anyone's input on advice they have been given resuming activities, exercise, and just what to expect in general. I am right at one month out,....and doing relatively well....as long as I keep my butt planted on the sofa Again, I am so thankful to be alive, so don't want to have a pity party. Just never been very good at sitting still and curious of if and when I'll be able to push back!!! My prayers to all of you that have suffered this and worse!!!! Thanks, Wade