2blackcats

i'm fortunate to be able to communicate, i had a huge bleed from an aneurism i didn't know about, i've had holes drilled in my head and the aneurism had to be clipped from inside my brain... i missed pretty much all of it, my daughter took the brunt. i'm mostly inured to the effects of insensitive comments, i have ms and you wouldn't believe the comments i've heard (including from doctors) about it, BUT, i get THOSE headaches, the ones so many of us end up with, when they happen, i can't think straight, string a sentence together, get my balance or even cope with much light, it's definitely the worst after 'gift' i got from my SAH. i'm used to people not understanding invisible ms symptoms, but why, oh why does almost everyone seem to think that they know what these headaches feel like, and therefore just dismiss them as trivial, yeesh! well, thank you to anyone who read my rant, it's good to get things off your chest from time to time wendy x

i couldn't have been having sex... no such luck. i was making flipping tea . ah well... wendy x

thanks tony, i'll be trying that. i had SAH last april and i get head pain most days, horribly if i have so much as a sniffle, just hope that my MS can cope with continuous heat on head (MS can cause overheating). great suggestion though! thanks again. wendy x

hi, it's only just dawned on me to look for a site where i can talk about my SAH and find out what others experience has been like. i'm 49, have also been diagnosed with MS since 2004, i had my SAH april 2012 ('cos MS just isn't enough ). out of the blue i had a 'thunderclap headache' i was told it's called, it felt like someone had slammed a pickaxe into the top of my head, luckily, my daughter (a student nurse) was upstairs, i managed to get to my phone and call her, i must have scared her half to death. i have very little memory from this point on, apparently, i started saying that i was ok and didn't need to go to hospital, thank god my daughter wasn't about to not insist on me going to A&E, i vaguely remember being at the local hospital, then the next thing i know it was about a month later and i was at the bigger (much better) hospital in middlesbrough. i'd had a SAH from an aneurism just above my brain stem. they tried a coil, that didn't work, so they operated, to do a burr hole (which left a big dent in my head) and to clip the aneurism. i've been very lucky, to come through the whole thing so well, james cook hospital, neurosurgical ward were just amazing, i can't praise them all enough. i've just been assessed by a neuro psychologist, he found that my short term memory has been affected, which i could tell, he also determined that, cognitively, i tire very easily which i hadn't worked out, but now see that it's true, otherwise my brains working as well as ever. it's a little difficult to see where the SAH starts and the MS ends, if that makes sense. the SAH seems to have moved my MS on a bit as if it's suddenly jumped a decade or so. i missed the whole thing in every real sense, thankfully my daughter has a wonderful fiance and my sister and brother in law where there for her every day. but i feel terrible that she went through this without me to love and support her, a few months afterwards she told me that in the midst of it all she'd thought 'i need to speak to my mum' and then she'd remembered, when she told me, we both just burst into tears. we've always been really close, so this has been traumatic for her, to say the least. all in all, i'm very glad to have come through this largely unscathed. thanks for reading this. wendy x