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CaseyR last won the day on November 18 2015

CaseyR had the most liked content!

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251 Excellent

About CaseyR

  • Rank
    Established Member
  • Birthday 25/08/1951

Profile Information

  • Gender
  • Location
    Arkansas, USA
  • Interests
    grandkids, gardening, fishing, hunting, camping


  • Biography
    Male, married, retired, Grandpa
  • Location
  • Interests
    Grandkids, gardening, hunting/fishing
  • Occupation
  • SAH/Stroke Date

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  1. CaseyR


    I went through a spell of something like vertigo early in my recovery. It would hit me suddenly if I looked up. Sometimes it came on for no apparent reason. It mostly passed in a few months. Although I still occasionaly suffer from the “staggers”.
  2. Jimble, I had a siezure while in the emergency room, and another when I was transitioning from iv meds to oral. I was weaned off siezure meds in the first 6 months after release from hospital. No problems since then
  3. Odd sensations and headaches are not unusual. You should report them to your doctor though. It’s a good idea to have a journal to enter how you are doing daily. It’s helpful when your doctor asks how you have been doing. Also you can look over it and see your progress. Drink plenty of water, and rest when you need to. Let us know how you are doing often.
  4. CaseyR

    SAH, 14 years on.

    I get ya Bill. It gets tiresome to try to educate people. If they press I just tell them I had a stroke. And I suppose I sorta did. I hope you have a good time at your gig!
  5. Dee Dee, next month I will be 7 years out from my nasah. I get what you are saying. Someone once told me “ a bad back is like country music. It’s here to stay!” Apparently for some of us nasah syptoms are too!
  6. CaseyR


    I had a nasah as well. I’m almost 7 years out from it. I still get headaches, though not as bad/often as early in my recovery. Listen to your body. My triggers are pushing through stuff. Not stopping when my body tells me that I’ve had enough and should rest. Of course failing to adequately hydrate. Also a sudden weather change will do it. We call it barometer head on here. If you pay attention you will be able to identify your triggers. Of course see your doctor to be sure it’s not something that needs medical attention. Good luck.
  7. CaseyR

    Body Chills

    I had chills often after my nasah. They weren’t addressed by my neurologist. I suspected my hypothalumus must have been affected. I can remember dressing in “long handles’ while my fishing buddy was wearing shorts. I’m not often bothered by them any longer. I have noticed I seldom sweat much though. Just another strange deficit.
  8. Simon, I am six years out on my nasah. Mine came much later than yours. I was 61 when it occurred. I often wonder if my deficits are a result of the event or due to normal aging. I have come to decide it doesn’t matter really. It is what it is. I count my blessings and move along. I, like you, have not had as rough a time as many on here and feel a little guilty about complaining. We shouldn’t though. I expect there are many like us that could benefit the site by sharing their experience. Thank you for posting. Remember to be kind to yourself, stay hydrated and rest when you need to.
  9. K89, two months isn’t much time. This is a long haul. I had my nasah in 2012. Everyone is different it seems, some recover quickly and others (like me) take two steps forward and one back. I can relate to the noise. It is maddening. Mine sounds like an orchestra tuning sometimes. I have found that music helps me to take my mind off it. Some suggest keeping a journal to track your progress and also discover triggers that may cause bad days. Drink plenty of water. Staying well hydrated is important. And keep in touch. Come on here and let us know how you are coming along.
  10. CaseyR

    Complicated SAH

    Lori D. My bleed was unexplained. I had 5 angiograms with negative results each time. I’m not sure how large my bleed was. It occurred near the brain stem. They wouldn’t operate to drain it because of the location. Finally they said it was a perimensaphalic sub arachnoid hemorage. Which basically means unexplained.
  11. Vermont Girl, sorry I can’t help but it is an interesting issue. Please keep us posted on how it goes. I bet someone on here has experience with it.
  12. CaseyR

    New Member - Charlotte

    Charlotte, welcome to the site. You will find lot’s of support and information here. I think it is quite common to be anxious at this point in your recovery. I know I was! Have you discussed the possibility of another bleed with your doctor? It might be helpful to also discuss your anxiety about one with him. I think there are meds available to help you deal with it. Be kind to yourself. Get plenty of rest and stay well hydrated. Talk to your doctor and let us know your progress. Good luck!
  13. I had my event 6+ years ago. I was 60 when it occurred. I weighed 215 and dropped to 152. I eat a little breakfast and try to eat a good lunch. No evening meal though. I’m just not hungry. I have managed to put about 20 lbs back on.
  14. CaseyR

    Night sweats

    I recall having night sweats in the weeks prior to my event. Since I rarely sweat at all, and I have low tolerance for cold. Maybe our hypothalamus can be affected one way or the other.
  15. CaseyR


    I have learned to listen to my body. It tells me when I have reached my limit and need to recoup. And, if I choose to ignore it I usually regret it.