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Super Mario

Super Moderators
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Super Mario last won the day on January 18

Super Mario had the most liked content!

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About Super Mario

  • Rank
    Super Moderator
  • Birthday 11/08/1949

Profile Information

  • Gender
    Female
  • Location
    N Derbyshire

Converted

  • Location
    North Derbyshire
  • Interests
    Family including grandchildren, my doggy, voluntary work, keeping busy, busy, busy. Foreign travel
  • Occupation
    Lady of Leisure
  • SAH/Stroke Date
    SAH 4th February 2004

Recent Profile Visitors

3,098 profile views
  1. Sarah, I entirely agree with what Karen and Macca have posted. Don't let that 1 to 2% worry you, many have problems that pose a much higher risk. Stay positive and live your life to the full. (Not work, work and more work)
  2. Sarah, I hope you get all the answers to your questions tomorrow and that your worries/concerns are alleviated.
  3. Jenni, all those answers you want to know you must ask your consultant when you next see him. Write a list and take someone with you as a second pair of ears. I know it has been said before but you are very early on in your recovery and some things take loads of time to resolve themselves. Difficult as it is, stop wondering about events until you see someone who can give you answers. I know it is hard but please try not dwell on the "I wonders", try to adapt your life to your limitations, that may only be in the short term, no one knows how long for. As to your blurred vision but not the blind spots, I had blurred vision in one eye, so much so I was just about blind in that eye. There was a reason for it and a good eye surgeon corrected it although I am left with floaters that can be annoying at times. At least I have my sight back. As a conclusion I will tell you, that in my case, I now look on my SAH as a blessing in disguise. It gave me a good life other than all work and no play. Yes, I lost my sense of balance and have to use a frame BUT I have a wonderful life, doing just what I want to do when I want. Please try and stay positive. PS all those cuddles in front of the TV will mean as much to your daughter as being active with her. (I wish my mother had cuddled me)
  4. Sarah, at least you are nearer to getting an explanation. The spinal injuries unit at NGH goes hand in glove with Neurology at the H. BIL is attending both for his Parkinsons. Hope the week doesn't seem to last forever.
  5. I rang PALS for Sheffield Teaching Hospitals, didn't actually go to see them. It could probably just been the person you spoke to. https://www.sth.nhs.uk/patients/patient-services
  6. Sarah, as you know I am in the same boundary situation as you. I did use PALS for a similar reason as yourself at the same teaching hospital group and I did get a result, In my opinion you should at least give PALS a go.
  7. Sarah, not surprised you were in tears, What a shock and to say you haven't been contacted by the hospital is appalling. You do need to get back to see neurology asap for an explanation of everything. You do need to contact them for an urgent appointment, you can't be left on a knife's edge. I do wonder if that letter was not for your eyes only the GP's as they are allowed to withhold information that is thought to be detrimental. In your shoes I would be feeling exactly like you. The Hallamshire is notorious for messing appointments up and not sending for you, especially neurology. I had problems a few years ago and a secretary at my GP's had to threaten them with logging everything on my patient record in the end to get a result. Referral letter they said they hadn't got in spite of it being faxed several times and receipt received. It was miraculously found on a shelf after the threats.
  8. Jenni, as a suggestion, many shops, including supermarkets and shopping areas now have quiet times mainly geared up for the autistic, although not exclusively for them. Would it be worthwhile going with your daughter during those times. I always go to the supermarket early evening when it is much quieter as I cannot cope with crowds and noise easily. You may have to change your routine a little to suit yourself.
  9. For you to have those worries is only natural. I don't think there is anyone on this site who hasn't had those worries. Yes it is hard not to worry and regardless of what anyone says you will still worry. You should have peace of mind once the MRI is done and you get the results. Have you thought about asking your GP for counselling to help you over those worries so that you may be able to sleep? Sleep deprivation will not help your recovery. There is no shame in counselling, we have many members who have taken the opportunity of it and benefitted.
  10. Jenni, when I go shopping I tend to go in an evening when the supermarket is fairly quiet as I get really disorientated in crowded places. You may well be able to cope better at quiet times. As for the film, I still can't cope with noise and watching movement, makes me feel very sickly. I have been to see films with the teenagers I used to mentor. I schooled myself to switch off to the noise and movement, almost like being asleep but also aware if the person I had taken made a move they shouldn't. Took some practice to do that. In fact now, I never watch television for the same reasons. Not the same but my SAH left me virtually blind in my left eye. Turns out it was Terson's Syndrome which was caused by the blood looking for an escape and forced its way down my optic nerve. When the blood dissipated it left behind debris, hence the sight loss. I did get it corrected by an eye surgeon who literally took my eye to pieces, cleared the debris away and gave me back my sight in that eye. Sounds awful but it wasn't and I had that done with a local anaesthetic. Without raising your hopes the blind spots may be down to something that can easily corrected. January will soon come round. Meanwhile, listen to your body and do what it tells you, nap when you have to and do not force yourself to overdo it. Recovery is all about taking tiny steps forward with the occasional step backwards if you try to do too much. Very slowly and steady is the way to go. Jenni, suffering from a SAH does give you a completely different outlook on life. In many respects I have found my new life to be preferable to the one I had formerly even though it left me with little sense of balance.
  11. Congratulations on 5 years. Good to hear how much progress you have made. Enjoy retirement and the volunteering.
  12. Louise, many congratulations for your 20 years. You have come so far over that time.
  13. I have a shunt but I can't remember having it fitted or the recovery time as it was just after my SAH, whilst I was still in hospital. I have never had a problem with it and only had it reset after MRIs, because they can alter the setting on the type I have fitted.
  14. Sally, to be honest, Dr Google is not your best friend. The answers are not specific to you and cover a very wide range. Tempting as it may be to consult Dr Google, don't. Wait until you have a face to face consultation.
  15. Keep pushing the admin team to keep it foremost in their minds. I took them about 6 weeks to get me an appointment. Another ploy could be for you to contact PALS at your treating hospital, they will chase it up for you and are successful.
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