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Super Mario

Super Moderators
  • Content Count

    13,224
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Super Mario last won the day on September 23

Super Mario had the most liked content!

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About Super Mario

  • Rank
    Super Moderator
  • Birthday 11/08/1949

Profile Information

  • Gender
    Female
  • Location
    N Derbyshire

Converted

  • Location
    North Derbyshire
  • Interests
    Family including grandchildren, my doggy, voluntary work, keeping busy, busy, busy. Foreign travel
  • Occupation
    Lady of Leisure
  • SAH/Stroke Date
    SAH 4th February 2004

Recent Profile Visitors

3,538 profile views
  1. Macca, congratulations on 10 years and also your 8th wedding anniversary. You have a long time to go before that licence runs out. Here's to the next decade. 🙌
  2. Sarah, the words are so beautiful, brought tears to my eyes.
  3. Headway has a branch in London. https://www.headway.org.uk/supporting-you/in-your-area/
  4. It is a legal requirement to inform DVLA regardless of what you may think. See the DVLA site https://www.gov.uk/brain-haemorrhage-and-driving Your insurance will be invalid if you haven't informed them of the SAH. Not worth the risk. Sorry to seem harsh but the law is the law.
  5. Hi Matthew, great replies above. Has the need for the naps been consistent since you SAH or has it diminished then come back with a vengeance? If it has reappeared more than what it had settled to then I suggest you get the need to nap more frequently than you did investigated. It is so easy to blame the SAH for everything that happens later and that is not always the case.
  6. I was told at my first clinic appointment after my SAH, that if I ever needed a MRI scan I needed to inform them of my shunt. Our local hospital can't reset shunts so for any MRI I have to go to a hospital that has a neuro dept and the facilities to check and reset my type of shunt. Initially, approx. 14 years ago, the procedure was to have a skull xray before the scan and then one afterwards to see if the setting had changed. The radiographer was very good and showed me the before and after films and yes it had moved. I then had to have it reset to the original setting which, at
  7. Sean, I am another member of the shunt club, mine is also altered magnetically. I can't even remember having it fitted so I don't know if I had it reset in the early days. I have had later MRI's which have altered my shunt setting due to the magnetic field. It was just set again to the original setting. That is a very easy procedure which only takes a couple of minutes. As Daffodil says, it can take quite a while to get the correct setting for you, bit like trial and error. Have you ever thought of asking for a sedative prior to a MRI in the hope that it may
  8. Welcome to BTG, although we don't give advice on Benefits there may be some members with recent experience of PIP, Age UK have experienced benefit advisors as does your local council or county council. Search for Welfare Rights Advisors on their websites. You could also try the Stroke Association or your local Law Centre if you have one. Online you could try youreable forums. Although not qualified advisors there is a certain chap on there that really knows his stuff and gives excellent advice. https://www.youreable.com/forums/forum.php In the first instance r
  9. Oh no Sarah, devastated by your news. My sincere condolences to you all. Win was a member of this forum who always brought a laugh and a smile to me, and her singing, well. She will most certainly be missed on here. God bless you all.
  10. Gem, my sincere condolences to you and your family at this difficult time.
  11. Matt, you have not in any way trivialised having a SAH. Share and vent any frustrations you may have on here and you will get plenty of support from our members.
  12. I relived the event for ages afterwards but in time the frequency got less. In fact, just over 16 years later, it still happens but very rarely. Think there must be a trigger but for the life of me can't identify what that trigger is.
  13. These are examples of v pillows on a UK site. https://www.dunelm.com/search?q=v+shaped+pillow&&msclkid=74751da8fa881d6fed6343f03244a502&gclid=CPC0g_Tj8-cCFdOFhQod61EKnQ&gclsrc=ds
  14. Sarah, I entirely agree with what Karen and Macca have posted. Don't let that 1 to 2% worry you, many have problems that pose a much higher risk. Stay positive and live your life to the full. (Not work, work and more work)
  15. Sarah, I hope you get all the answers to your questions tomorrow and that your worries/concerns are alleviated.
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