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Super Mario

Super Moderators
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Super Mario last won the day on December 3

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About Super Mario

  • Rank
    Super Moderator
  • Birthday 11/08/1949

Profile Information

  • Gender
    Female
  • Location
    N Derbyshire

Converted

  • Location
    North Derbyshire
  • Interests
    Family including grandchildren, my doggy, voluntary work, keeping busy, busy, busy. Foreign travel
  • Occupation
    Lady of Leisure
  • SAH/Stroke Date
    SAH 4th February 2004

Recent Profile Visitors

3,048 profile views
  1. Jenni, as a suggestion, many shops, including supermarkets and shopping areas now have quiet times mainly geared up for the autistic, although not exclusively for them. Would it be worthwhile going with your daughter during those times. I always go to the supermarket early evening when it is much quieter as I cannot cope with crowds and noise easily. You may have to change your routine a little to suit yourself.
  2. For you to have those worries is only natural. I don't think there is anyone on this site who hasn't had those worries. Yes it is hard not to worry and regardless of what anyone says you will still worry. You should have peace of mind once the MRI is done and you get the results. Have you thought about asking your GP for counselling to help you over those worries so that you may be able to sleep? Sleep deprivation will not help your recovery. There is no shame in counselling, we have many members who have taken the opportunity of it and benefitted.
  3. Jenni, when I go shopping I tend to go in an evening when the supermarket is fairly quiet as I get really disorientated in crowded places. You may well be able to cope better at quiet times. As for the film, I still can't cope with noise and watching movement, makes me feel very sickly. I have been to see films with the teenagers I used to mentor. I schooled myself to switch off to the noise and movement, almost like being asleep but also aware if the person I had taken made a move they shouldn't. Took some practice to do that. In fact now, I never watch television for the same reasons. Not the same but my SAH left me virtually blind in my left eye. Turns out it was Terson's Syndrome which was caused by the blood looking for an escape and forced its way down my optic nerve. When the blood dissipated it left behind debris, hence the sight loss. I did get it corrected by an eye surgeon who literally took my eye to pieces, cleared the debris away and gave me back my sight in that eye. Sounds awful but it wasn't and I had that done with a local anaesthetic. Without raising your hopes the blind spots may be down to something that can easily corrected. January will soon come round. Meanwhile, listen to your body and do what it tells you, nap when you have to and do not force yourself to overdo it. Recovery is all about taking tiny steps forward with the occasional step backwards if you try to do too much. Very slowly and steady is the way to go. Jenni, suffering from a SAH does give you a completely different outlook on life. In many respects I have found my new life to be preferable to the one I had formerly even though it left me with little sense of balance.
  4. Congratulations on 5 years. Good to hear how much progress you have made. Enjoy retirement and the volunteering.
  5. Louise, many congratulations for your 20 years. You have come so far over that time.
  6. I have a shunt but I can't remember having it fitted or the recovery time as it was just after my SAH, whilst I was still in hospital. I have never had a problem with it and only had it reset after MRIs, because they can alter the setting on the type I have fitted.
  7. Sally, to be honest, Dr Google is not your best friend. The answers are not specific to you and cover a very wide range. Tempting as it may be to consult Dr Google, don't. Wait until you have a face to face consultation.
  8. Keep pushing the admin team to keep it foremost in their minds. I took them about 6 weeks to get me an appointment. Another ploy could be for you to contact PALS at your treating hospital, they will chase it up for you and are successful.
  9. There should be someone at your GP's who deals with appointments. Ring them again and ask for them to chase it up. I had a similar problem and the person at the GP's who deals with the above told the department that she was putting it all on my notes and hey presto, I got an appointment for the following week. You will have to keep pushing.
  10. Welcome to BTG Matt75. Don't know about the lack of sleep but for the headaches it is advisable to keep well hydrated ie drink lots of water. It really does help. It is very early days in your partner's recovery as recovery times can go on for months or even years depending on the individual and severity of the bleeds. Rest is important so to take naps when fatigue occurs is imperative regardless of the time of day, do not try to fight it.
  11. So very true. Congratulation for your Ruby wedding anniversary. Enjoy your holiday and any celebrations planned.
  12. Sarah, it could be the changes in your neuro team that has precipitated that conclusion. Doctors often have differing opinions as what is the best treatment. Possibly the new team are being cautious. As others have said, do not make any decision until you have discussed the results of the angiogram with them.
  13. That is a very good positive attitude to have. There is no point in looking back so enjoy the future to the best of your ability.
  14. Ben, just a word of warning before you try to get travel insurance. You must get the all clear to fly from either your neurosurgeon or your doctor. I really do not want to put a dampener on your future plans but I suspect travel insurance at such an early stage in your recovery will be extortionate or not available. A good reason why insurance should be taken out as soon as a trip is booked. That way you would be able to claim the costs in the case of an unpredicted event. I travel about 5 times a year and an annual insurance for Europe only including The Canaries costs me almost £500 and that is 15 years after the event. I really hope that your trip will be able to go ahead as you are obviously looking forward to it.
  15. I would say everything you have stated could be true but it must be a proven fact if DVLA say that there is a risk of seizure for 6 months. This is something you can't challenge. To get specific answers you need to contact your doctor, neurosurgeon or nurse specialist at the hospital you were treated.
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