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Super Mario

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Everything posted by Super Mario

  1. Carmen, it may be worth looking into early retirement through ill health if you can't manage returning to work and are in the pension scheme. If you are in a union they could possibly help you with an application.
  2. She will need legal advice on that one. Tell her to contact a solicitor who can give 30 mins free advice. Andrea should have some paperwork about it. I have POA for myself so the appointed person can take over my finances and health and wellbeing should I not be capable of it myself and I have the paperwork. As to the question, can it be done without her consent, yes it can but it is very expensive to get POA that way. The only way to get POA in that case is if the person does not have the mental capacity to make decisions.
  3. Andrea, just had a quick look and found this on Scope. https://www.scope.org.uk/advice-and-support/removing-an-appointee/?gclid=CjwKCAjw2OiaBhBSEiwAh2ZSPx8FjElY7b_UUDAlci-ur7FMbgNJmXtn2ZGOIsluGeYXylelIG2UaxoCb1wQAvD_BwE It is not strictly true that PIP will be stopped, the advice above says may be paused. If you had control of the payment you could use it to pay a carer or top up carers allowance for anyone who claims it, help with anything you used to do and are unable to do now. Hope that helps. Please come back and let us know how you get on, there may be others in the same situation which your experience could help.
  4. The easiest option would be to ask her to transfer the money to your account when she receives it then you have it to pay for any help you need. Would she do that? Does anyone claim carer's allowance to look after you? I am busy this morning, but I will look into how to get the appointee removed later. Do not despair.
  5. These are this year's rates https://www.gov.uk/pip/how-much-youll-get Andrea, do you control your own finances? If so, there is nothing to stop your allowance being paid into your bank account. Your care allowance would not stop if it was paid into your bank. I would change the bank into which your allowance is paid to your own account by contacting the DWP asap.
  6. Faith, welcome to BTG. We are not medically trained so we are unable to give medical advice. There are members on here who have had vasospasms and I hope somebody with more experience of them will pop in to answer you. Until the doctors find out what has actually happened there is no point in guessing. Not really very supportive I know. I can imagine how worried and upset you are now, that is only natural, but you must look after yourself too. It is only 4 days since his SAH and sadly nobody can predict the outcome. Talk to the doctors, they are the best ones to keep you informed. Thinking of you both.
  7. I often think about our Win, really miss her and her sense of humour and singing.
  8. May I suggest that when you return to work you don't go full on. Ask for a phased return gradually building up the hours you do over a good few weeks.
  9. Hi Helena, another warm welcome to BTG. Apparently I was extremely confused after my SAH, not as though I can remember but have been told. I was insisting I was in a different hospital to where I really was. I was saying that I was being looked after really well because I worked there. Wrong hospital but yes I did work in the one where I thought I was (but I wasn't) in my late teens and early 20's many moons ago now. I even accused the staff of trying to poison me then immediately offered the said cake to my young grandson. Confusion is a dreadful thing to witness and no doubt your mum is frightened. Possibly she doesn't realise what has happened to her. Recovery can be a very long slow proccess but things should get better as she progresses in her recovery. Wishing your mum well for her future recovery and please stay in touch. Every little bit of information may be of help to our members, old and new.
  10. It really does appear that your mum does not understand what she is being asked/told and so is refusing all. She must be very frightened. If you are not with her I wonder if you could be spoken to on the phone and you, in turn, translate over the phone for your mum and then relay her answers to the staff still over the phone. I realise that could be very awkward but it is the only way I can think of if there is no interpretater available.
  11. Daffodil, many congratulations on making the decade. Your contribution to this forum is very welcome and the advice given to others unbeatable. Thank you.
  12. Congratulations Kathy, you certainly have the correct positive attitude. Onwards and upwards.
  13. Thank you all for your comments. Looking forward to another year of freedom.
  14. Well, here I am 18 years later, after hubby been told little chance of survival. I can only thank the surgeons for my survival. Life is very different, I lost my sense of balance but that hasn't stopped me managing to complete almost all of my bucket list which was helped by being given early retirement through ill health. That gave me the free time to pursue that list. Life has had its ups and downs like for most folk but, hey, I am still living it to the full the best I can,
  15. Many congratulations for 22 years. You are an inspiration to all us survivors.
  16. Sadly, in the UK, SAH is notifiable to DVLA and you will have to wait for their decision after you have infirmed them. Quite possible, everyone is different in their recovery. Try doing much less on the "great day" and see what happens the following day. As for your other 2 questions, they need to be asked of your medical professionals.
  17. Welcome back, hope you find lots of information to support you.
  18. I had a cardiac angiogram done through my radial artery in 2013, so not that recent.
  19. It is common practice now to use either the groin or wrist for any type of angiogram.
  20. Welcome to BTG. We can't give medical advice as none of us are qualified to do so. Any concerns you have seek advice from a medical professional. That would be the correct way to go regarding the weeping from the lump and the weeping sutures. Healing after a SAH is a very long slow process in most cases but of course everyone is different. There is no right pace. Taking it easy is the correct thing to do, baby steps only or you could find yourself going backwards. Tiredness is common afterwards, you need to nap as required. Listen to your body. You may well need more time off work than you think, there is no magic recovery. It is not like a broken leg, fixed and back to work. It is advised that when you return to work do it on a slow phased return. To help with the headaches make sure that you keep well hydrated, lots of drinks, preferably caffeine free.
  21. So pleased you are actually getting somewhere with a possible diagnosis. The not knowing is dreadful. Hope the new MRI gives you some answers and pleased you feel much calmer. Panic and worry always seems to make things appear worse.
  22. Whether or not this will work or not I don't know. In the UK we have a charity called The Samaritans who are on the other end of the phone to give you support for those thoughts. I have taken this off Google so please try to use the numbers provided for The Samaritans. " Freephone number to call from Poland is: 800 012 274. No matter what someone's reason for calling is, Samaritans offers a space to explore how they are feeling, in their own time and their own way."
  23. Welcome to BTG, I'm sure you will have realised that we can't give medical advice as we are not medically qualified but we can give you lots of support. Recovery is not like having a broken limb, pot comes off and the fracture has repaired. It can take months or even, in extreme cases, years. You may look okay but your brain has had a serious assault and needs time to heal. You may even find that you end up with a different life. The key to recovery is to take baby steps, if you don't you may well find yourself taking backward steps. Rest and nap when you need to, listen to your body. To help alleviate any headaches drink plenty of fluid. As for retaining information, use props like sticky notes or have a notebook and write everything down. Do you have anyone to help you look after your son? If you have ask for help with him, even if it is only for a couple of hours a day. You will not be neglecting him by asking for that help. Have a read through the forums and you will glean lots of information from other member's experiences but bear in mind that a SAH does not run to hard fast rules, everyone is different.
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