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Super Mario

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Everything posted by Super Mario

  1. There should be someone at your GP's who deals with appointments. Ring them again and ask for them to chase it up. I had a similar problem and the person at the GP's who deals with the above told the department that she was putting it all on my notes and hey presto, I got an appointment for the following week. You will have to keep pushing.
  2. If I were you I would contact DVLA to clarify your position. After all those years of the previous regulations I wonder what has made them change the driving criteria.
  3. Hi Julian, I wonder if your consumption of water has decreased over time as your headaches diminished to the point where you are not drinking enough. It is quite easy to become complacent. May be worth a try to increase your intake to see if that helps as well as visiting your doctor.
  4. I have copied and pasted this post into a new thread in Subarachnoid Haemorrhage Forum where it will be seen easily and you will receive more replies. Title is "trish1013, copied from General by Super Mario" https://web.behindthegray.net/topic/7318-trish1013-copied-from-general-by-super-mario/
  5. This thread has been copied to Introduce Yourself forum where it is more appropriate. https://web.behindthegray.net/topic/7291-the-fright-of-my-life-posted-on-behalf-of-sue-b/?tab=comments#comment-131251
  6. If you are disabled it may be possible to have your Council Tax dropped by one band or if you are in the lowest band a discount is given. The criteria stated on the back of the council tax bill states "an extra kitchen or bathroom for the disabled person's use" This is just a guideline, every council has their own criteria to be met. I know of people who have received the reduction just for being disabled. I had to have an extra bathroom made to suit my needs. This was done in the style of an en-suite and I got the reduction. This is just an example. The procedure is to contact your council for a form, fill your bit in and take it to your doctors for them to complete. Once the council have received the application they will send out somebody to inspect your property for obvious reasons. A bonus can be, if you are awarded the reduction, it can be backdated at the council's discretion, to the date the disability began. That could be a bonus as I know of someone who had it backdated for several years, hence no council tax to pay for quite a while. Obviously every council is different but there can be no harm in initially applying. They can only say no or it could be to your advantage..
  7. Sophie, how wonderful to hear from you and for posting such positive news of your progress. Your post will give so much support to others by showing that there is a good life after a SAH Best of luck for the future and that all your ambitions will be achieved.
  8. My heart tests were fine when at rest could you request a stress test when you are wired up and go on a tread mill. For me that was the only thing that showed up a problem. One of those may put your mind at rest. Diabetes could also be the root of your problems. Keep pestering the medics.
  9. I have no creases on my earlobes , checked this morning after reading the post but have both the named conditions
  10. So pleased for you and enjoy the wedding when the time comes.
  11. Tori. I think the majority of us, in the very early days, had confusion and talked nonsense. I knew I was in hospital but thought I was in the one where I worked in my late teens according to my family. I even accused them of trying to poison me. Short term memory problems are also a common result of a SAH. In the main a modicum of normality does return over time, maybe not to the same level as pre SAH. I am 13 years on and still come out with the wrong words or I lose words and get very frustrated when I know what I want to say but cannot recall the correct one. All in all it sounds as if your mum is making progress, slow but sure. Nothing in the recovery is fast, it can take goodness knows how long.
  12. Welcome to BTG although I am sure that you wish you didn't need to be here. I'm sure you realise that we cannot give medical advice. Because of what you describe it would be in his best interests to go back to the hospital because after an SAH there can be a fluid build up in the brain. The lumber puncture will have relieved the pressure but who is to say that it isn't building up again causing headaches which he is not admitting to. Please try and persuade him to seek medical attention, even if it is only a visit to his GP who should then take the necessary action.
  13. It has been said before time and time again that it is easy to blame ensuing health problems on the SAH and in some cases that is not the case. I would suggest that you get medical advice and a thorough health check.
  14. Spain is often excluded from some insurances unless you take out the more expensive cover. You have to be careful as insurance goes in zones. Don't know why that is. I have found All Clear will cover me at a price. It is better to ring up for a quote than to do it online. I find that many throw their hands up when I say I have a shunt for hydrocephalus, don't know why as I have never had a problem with it. If it is only your shunt and nothing else try The Post Office in the first instance because they are quite reasonable. They used to cover me but altered their criteria which excludes my other conditions. You must declare everything, and I mean everything, or if you are unfortunate to have to make a claim they will use undeclared conditions to wriggle out of paying up.
  15. Aandrea, calm down please although I know that is not easy. You don't want it cancelled again but it will be if you make yourself ill. Try and distract yourself by making yourself as busy as you can possibly manage After all you have been through previously it is nothing. Listen to other members who have had the same procedure.
  16. Are you sure it is caused by not eating? It could be caused by not keeping very well hydrated, try drinking lots of water and see if that alleviates the symptoms. Solid food does contain water so that could make you feel better. Failing that working it would be wise to discuss your concerns with your doctor
  17. I am another one who has flown frequently after my SAH with no side effects at all. As Macca says, just make sure you have declared it for travel insurance.
  18. I ended up with Tersons Syndrome after my SAH. The blood had forced its way down my left optic nerve and when the blood cleared it left debris in the back of my eye. I was almost blind in that eye, it was like looking through water only worse. The eye was operated on and the debris cleared giving me back my vision. It may well be worth asking about that syndrome.
  19. Xmartz, if this member does share what their neuro team have said regards diving you must remember that it will not be relevant to you as each person's case is different. If you wish to pursue those activities then you must take the advice of your own doctors.
  20. I would strongly advise that your husband seeks medical attention. Better for him to be checked out. We are not medically qualified so cannot give medical advice.
  21. Yoyo, if I were you I would finish the NHS sessions and then see how you feel before going to a private therapist. The time to do that is if you feel you would benefit from more counselling. Recovery is a very slow process and you may not think that you have made any, but you will have, the progress will be so minute that you can't recognise it yourself. It has been suggested at times on here that you keep a day to day diary then you will be able to see what progress you have made in reality. As for making no sense, you do make sense to us and for you to be able to spill out your concerns on here can only help as it is an outlet.
  22. Those are questions that you need to be asking of your neurologist or doctor. They may or may not tell you to refrain from those activities. You must listen to their advice and not take it upon yourself to do them without medical advice.
  23. Thank you Clare, I am going to ask but in my case I suspect the benefit outweighs the risk as I have tried others that either do not work or give me horrendous side effects. Trying the new injection is being talked about now because it has now been approved by NICE. Goodness knows how much that will cost.
  24. I take max atorvastatin as simvastatin doesn't do anything for me nothing was mentioned to me about the risk I am going to investigate from further when I see the consultant
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