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Susan McGoldrick-Meerdink

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Susan McGoldrick-Meerdink last won the day on June 25 2014

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About Susan McGoldrick-Meerdink

  • Rank
    Member
  • Birthday 01/10/1965

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  • Location
    New Jersey, USA
  • Occupation
    Stay at home Mommy
  • SAH/Stroke Date
    June 7, 2013

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  1. Hi Everyone~ I joined here 4 years ago after my SAH. Since then, I've had a series of mini-strokes and at least 2 "big" ones. The most recent was just this last month. It's so frustrating. They can never find a real cause. I know when they happen 3 things are generally true: 1) I have a migraine bad enough for my oxy and or Fiorcet about a week before; 2) I am under an abnormal amount of stress; and 3) I am taking prednisone at the time. My heart is good and my last cerebral angiogram was clear and I was released from future angiograms and MRI follow-ups to my NA-SAH on the 4 year annivers
  2. Anyone have any real world truth to share? I only ever had one when I was unconscious the day of my SAH so I wasn't "awake" to understand what was happening. LOL Now, 3 years later they are insisting I have to have an angiogram of my brain because I never had the 6 month follow up one and now I need spinal surgery, which I can't have until they clear me. It's ridiculous. My doctors' clearances now need clearances! I'm very afraid of this angiogram because I have to be awake. They will use sedation but how much? Is it the kind where you really have no idea what is happening or is just a l
  3. My brother has a clip from a ruptured aneurysm. The neurosurgeon who performed his surgery is the first doctor to tell me he would be worried. I sort of dismissed him as it was in a social situation as we run in the same local social circle. Then my neurologist whose been following me told me no general anesthesia but that was the first year after the SAH. Recently, two orthopedic surgeons and anesthesiologist told me they would not touch me with a 10 foot pole. Perhaps the fear of lawsuits is too great in the USA. Well this current doctor was a very well known and respected doctor for who
  4. Has anyone had any major surgery since their P-SAH? I was told by 3 doctors that it was not safe for me to have major surgery but today a 4th doctor informs me I need my entire spine FUSED. Apparently, unless the neurosurgeon says the risk is too great, it needs to be done asap! I knew I was in pain but wow..... bone loss, missing disks, spinal cord compression, etc. They need to fuse from the middle down to the butt. I'm slightly afraid of my brain. I was told because I didn't need intervention to stop the bleeding and because they don't know why it bled, that created a risk of it happ
  5. Hi! I am like you too! Daily headaches. I expected them however. The doctors told my husband while i was still in ICU that was expected for the rest of my life. Mostly now, at almost 3 years post SAH, I don't notice them as much. But it is draining. I was a type A person and am now finding I am the person who needs the most help. The fatigue is just part of having a TBI. I am extremely fatigued. But again, you have to find ways to manage it. I can say now I take very little medications for the headaches and for the lack of sleep. During the first year, I was on a TON of pills. Migrai
  6. Hi All! It's been almost 3 years since my PM-SAH. In those 3 years, I've had a couple TIA's and been diagnosed with mystery autoimmune disorder for which I am taking biologics. I've also gained a BOATLOAD of weight!! Since my release from the rehabilitation hospital almost 3 years ago, I have gained 50lbs. Some of it is from the new medicines for the auto immune disorder but I am beginning to think some it is because of the brain damage. I was diagnosed with severe cognitive impairment a year AFTER my SAH. I have little or no working memory and executive function. I just don't th
  7. Today is the one year anniversary to my SAH! We call it re-set day! My husband said it's not really a birthday and an anniversary is for happier things so today is re-set day! The day my brain took a holiday and re-set itself........ like a computer! LOL I can't believe it. In so many ways it *feels* like yesterday. Literally. My cognitive deficit makes me lose track of time......... a month feels like a week to me! (These are the jokes people! ) I'm actually a little emotional today. My health is not exactly where I wanted it to be at the one year mark but because I survived what I d
  8. Teechur at least we are all miserable together!!! I swear no one else but this group really understands.
  9. Iola ~ Yes we went to KKI! They are awesome there and I'll be going once a month now with my son. As for walking around after I left the rehab place.... I have come to the conclusion I was high! LOL When I look back at how many drugs I was on Oxycotin, steroids, etc. I felt like Wonderwoman!!! I didn't "hit the wall" until they took away my drugs than I realized it was the drugs keeping me active. Anita ~ FIVE??? God Bless You!!!! I can't imagine putting on a happy face when faced with the amount of laundry and daily activities you must have with 5 children! I only have the one and he wears
  10. Boy do I push myself! It started when Kessler was begging me not to leave to take my son to Fenway! Literally the day after I was released/left, I got in a car with my family and drove to Boston. I walked all over that city, with my walker and my wheelchair! I have continued to push myself beyond my physical limits and most certainly my emotional limits this year. This past weekend I walked all over the Inner Harbor in Baltimore so that my son could have fun before being poked at Johns Hopkins. I find I push my physical limits more for them... the family. So that it feels normal. Inside I'm
  11. Almost a year to the anniversary of my PMSAH and I feel worse. You are right Chris. They don't think we should have wide spread pain. Even my new neurologist who had so much promise for getting to the bottom of things, he seemed interested, no longer shows interest. The honeymoon period of a new doctor relationship is over. Yesterday he basically acted like I was wasting his time. He rattled off the list of known things wrong with me, small fiber neuropathy, sensory neuropathy, etc., and then said I needed surgery to my wrists, elbows and shoulders to release the nerves so it would stop caus
  12. Iola, Isn't it odd that we all seem to have the same kind of aches and pains regardless of how far post PM-SAH we are? There must be a correlation.
  13. With respect to the folks to talking about neuropathy, I was just diagnosed with Small Fiber Neuropathy and Peripharal Neuropathy. Neither of which I had before my SAH. The neurologoist is stumped. He said the most frequent explanation for the SFN is diabetitis but my blood work came back fine. It is has gotten so bad I can barely walk now. I feel like something is happening in my body. My nervous system seems to be deterioating. Arms, hands, legs, etc. I'm on Neurontin and Vicodin for the pain (which I'm not even taking since I'd rather find the root cause than be drugged) and topamax to pr
  14. I knew this but seeing the test results in black and white and hearing the doctor discuss my options has been depressing. I told him the other doctor told me it was impossible after a Perimesencephalic SAH and he laughed. He said blood in your brain is blood in your brain…. it ain't good! He did make me laugh. But apparently, I have moderate cognitive deficiencies, mostly in executive functions and organization/processing. This doctor said there is a pill he could prescribe to help with my memory and cognitive issues. I turned it down and opted for outpatient therapy instead. Has anyone here
  15. Hendo ~ The emg and nerve conduction tests are pretty good indicators. I did not know I had neuropathy in both arms and both legs. My left leg bothered me before the SAH and then after the SAH I was just thankful to be alive so I didn't really care about the discomfort. The nerve conduction test, the one that is like a taser gun zapping you, shows the nerve signals. The EMG, the one with the needle in a muscle with an impulse, showed the muscles in my legs are strong despite the neuropathy. Perhaps go back to the doctor you are most comfortable with and ask for the nerve conduction if he didn'
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