babybhelles

Win - Thanks for sticking with me! I have had some good days and some not so good. I have my follow-up MRI coming up next Monday, and as it gets closer I am getting more nervous. I'm hoping and expecting some good news, although still struggling with fear of not-so-good news. Today's a good day. The weather has improved a bit, so I was able to get out and take a walk in the fresh air. That was helpful. Yesterday I had an awful headache and didn't spend any time outdoors. There is probably a correlation! Anyway, so glad to hear that you were able to get out to the restaurant and enjoy time with your husband. Keep on smiling - I know you will! -BB

Win That sounds like something I need to tell my sister! I am dreading next summer when they all want to visit (her and my parents). Both times I had stroke symptoms (one was never officially diagnosed as a stroke - they thought it was my migraines acting weird) one of my parents was visiting. I had to work but they wouldn't give me time to work. They just want to chat away all day. I love my family but I can't take the stress anymore. My husband and kids, on the other hand, have been wonderful. Enjoy that hotel! That sounds like a lot of fun and you deserve the break!!

Thank you to all who replied!!! This is a great site that is already helping me after only one day. I'm going to go get on my exercise bike now and get some more positive thoughts into my head. Today we got some prices on a gym membership in town. I'm thinking about it.

Daffodil That's a great idea about the book. I enjoy writing and maybe I can turn it into part of the healing process. Thank you so much!!

Thank you, Louise! I guess sometimes it's better to be told that by someone who has been through it. My husband can talk until he's blue in the face sometimes and it doesn't help because he's always been very healthy.

Win, I'm trying to work on that - getting out into the real world to try to do some normal things. What you said about stress before - how do you avoid it? I still work and have deadlines, so sometimes I feel the pressure there. People used to vent to me and now I just can't take it. Right now I have a terrible headache because a friend vented on the phone about problems at work at my old job. I had to lay down and take a nap afterward! I've been pushing people away for the most part because I can't handle it, but this woman works for me as well and I wanted to be a friend. I try deep breathing but that doesn't seem to calm me.

Thank you Iola! That's how I felt at first, like I was going to die, and I still have those fears whenever something is the slightest bit off. I've only been on this site for a day and already you are helping. I went on a WalMart trip yesterday and I went to the grocery store today, trying to do normal things. Thank you so much for helping me - continue to take care of yourself.

Thank you so much for your answer. I received it by email when I was riding in the car with my husband and I couldn't even read it aloud because I was bawling my head off. I just really, really need the support. I managed to get out and take a WalMart shopping trip and it felt good to do something sort of normal, even though it made me very tired. Staying positive is so hard when I feel a little weird thing and my imagination goes crazy. Thank you and any more advice you could suggest would be so much appreciated. I know it's still early in my recovery.

Hi Everyone, I had a series of minor strokes on October 3. After lots of time in the hospital they finally did an angiogram and found vasoconstrictions. After other tests they determined I had RCVS. It's rare and I really need some input from someone else who has it. It's been two months now and the biggest problem I have is fear, as well as not feeling normal and wondering if I ever will. I have deficits in my right arm and leg and my left hand that constantly remind me of what happened and scare me about what might happen. Any little headache or weird feeling in my head makes me scared, and the past couple of days my vision has been weird, so I'm afraid of what might happen. This was brought on my birth control pills (which I took to prevent endometriosis pain), pseudoephedrine allergy pills and a boatload of stress from family visits when I was too busy at work and school over the summer/fall. I have been off the birth control since the stroke, have totally changed my eating habits so I get tons of vegetables every day and I'm riding my exercise bike at least 30 minutes per day. I'm trying to lose weight and it's coming off slowly. My husband tells me I'm fine, the doctors say I'm fine, but I don't feel fine. I get exhausted just taking a shower or any time I have to stand in one place, because both legs shake like crazy. I'm really tired all the time, but it's not a sleepy tired, more like exhaustion. I can't even have a conversation in person or on the phone without feeling exhausted afterward. I no longer drive because I'm scared and I don't go out in public if I can avoid it because I don't want to get stuck in a line or something while I'm so tired. I have a follow-up MRI scheduled just before Christmas so they can tell me what things look like in there. Until then, my imagination is running away with me. I know you're not supposed to let fear control your life but I need to know how to make that happen. Anyway thanks for reading and any advice will help. Thank you.