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poppy1

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poppy1 last won the day on May 7 2015

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About poppy1

  • Rank
    New Member
  • Birthday 11/08/1961

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  • Gender
    Female
  • Location
    East Lothian

Converted

  • Location
    East Lothian Scotland
  • SAH/Stroke Date
    27/12/2013

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  1. Evening all, Early hours and that insomnia gremlin just won't fluff off! Lou, thanks for your kind words, we must catch up soon for a blether. Daff, good vibes right back at you. Sarah, feel free - any questions fire them over, so many folks on here have helped me. Win, you brighten my day with your cheery posts, just reading through the chat gives me a feel good warm feeling. My main issue after the 2nd procedure was the clopidogrel which I was on for 3 months, I reacted very badly to it and it took forever for my body to flush it away. The pain was impossible to manage and becaus
  2. Evening all, Daff you inspired me to write down my thoughts tonight. I haven't posted for a while, as I haven't been at all well and didn't want to be a moanin myrtle , cos I had nothing positive to report. Since last August when I had a stent fitted and further coiling, it's been downhill all the way. The pain, medications, side effects, nausea, chronic insomnia, memory/balance loss. my neuro functions have deteriorated - noise & bright lights set off an attack and to my acute humiliation, my whole body starts to shake. Last but not least, I regularly pee my pants ! lol,.. However, i
  3. Hi Brenda/guys, I can totally empathise with you on this, my sleeping pattern has never settled down, 15 months post SAH. Last week I was awake for 48 hours. I have taken sleeping meds Zoplicone etc, I get a few nights ok then it doesn't work. Even 20mg Tamazepam I was still awake. Was back at Doc last week and we have went back to the drawing board, the dreaded Amitriptylene! I have been on and off it, 1 or 2 a night for pain - and I had a bad reaction when I stopped taking it, I have no life, this past weekend was spent resting as I was absolutely exhausted and it was so gorgeous outsid
  4. Hi Ollie, Sorry to hear your news, but you are in extremely good company here. One thing that helped me understand what was actually going on, was reading "letter from my brain" which you will find pinned on this forum. That more than anything else joined the dots for me. It's been 11 months now - from the day I came home, my sleeping pattern was upside down. Even now if I get 5 hours, I feel thankful. There are meds which help but unfortunately my experience with them wasn't great due to side effects and withdrawal. , I found my neuro nurse at the hospital very helpful. I quote from my
  5. Guys, it was tongue in cheek and makes me smile every time. Because that is just how it is. It's been 11 months now and you know, it's the people around you that make you see the funny side every time. Di.x
  6. My Rememberer's Broke My Forgettor's getting better But my Rememberer's broke To you that might seem funny But to me, it is no joke For when I'm "here" I am wondering If I should really be "there" And when I try to think it through I haven't really got a clue! Oft times I walk into a room Say "what am I here for?" I wrack my brain, but all in vain A big fat zero is my score At times, I put something away Where it is safe, but Gee, The person it's safest from Is, generally me! When shopping, I may see someone, Say "hi", and have a chat. Then, when that person walks awa
  7. My Rememberer's Broke My Forgettor's getting better But my Rememberer's broke To you that might seem funny But to me, it is no joke For when I'm "here" I am wondering If I should really be "there" And when I try to think it through I haven't really got a clue! Oft times I walk into a room Say "what am I here for?" I wrack my brain, but all in vain A big fat zero is my score At times, I put something away Where it is safe, but Gee, The person it's safest from Is, generally me! When shopping, I may see someone, Say "hi", and have a chat. Then, when that person walks away I as
  8. Oh my goodness Janet, you and your family have been through a lot. I had SAH 27th December last year, then a follow up 41/2 hour op mid August and I'm struggling with extreme fatigue and pain behind my right eye, my anni was behind the right optic nerve. I've not had much luck with pain relief medication, although the Amitriptylene has helped with the disturbed sleep patterns. I also smoked socially before anni, but haven't had 1 since my surgeon enlightened me! The vapour pipes helped immensely, still do when the stress comes on, more of a comfort thing really. With so much going on it will
  9. Hi Remy, Di here.. Following SAH 27th Dec 2013, I had coiling, and was due for 6 month MRI in June, however, I was experiencing severe headaches and the MRI was brought forward, which showed Significant Coil compaction I posted here under this thread at the time looking for some reassurance as I was so so anxious, in terms of going back to hospital for more brain surgery. The hospital did offer to book an appointment with neuro department to discuss risks etc..they call it elective surgery. But I took the view - it had to be done and that was that and also some of the lovely people on her
  10. Good luck Kelley, I too would want answers. Neuroscience has progressed such a lot over the last 10- 20 years, even if the docs don't have all the answers, it would be good to have them explain the reason why they don't know. Instead you are left in the dark and more importantly a degree of mistrust will be hovering. I agree with Macca, write the questions on a piece of paper. It totally helped me. Poppy xx
  11. Hi folks, Thank you all for your kind words and best wishes.. It's been a week now and I have virtually slept around the clock. Making up for all those sleepless nights no doubt. But well rested. Cabin fever is setting in now though lol. Lots of fluids yes and lots of visits to the bathroom as well! Headaches not so bad but then I've been asleep most of the time. Do you think that's my brain saying "right! We will shut her down for a wee while to stop her getting any ideas" lol. I feel nauseous most days which doc has put down to the blood thinning meds, yuk. I couldn't even face my
  12. Hi folks, Well I made it!. 4 hour op on Wednesday morning, additional coiling and a stent placed. It all went remarkably well. Didn't sleep on the Tuesday. Doc came and explained the plan, also covered the risks involved which in an attempt to bury my head in the sand I previously didn't want to know. I forgot his name and asked him " I'm sorry doctor, short term memory and all that, what was your name?" DR Downer he replied. I thought, yep that sounds about right lol. Such a lovely man, we had a very positive chat then I had a big fat greet when he left lol. No time to dwell though, a cons
  13. Hi everyone, Just a wee update. Going into hospital tomorrow, scheduled for surgery Wednesday morning. More coiling and a stent as well. As you can imagine a few, well more than a few to be honest, sleepless nights this last week. Got butterflies tonight but am trying to be so positive for all the family etc. etc. hopefully, I can update you more by the end of the week. Re-reading all your kind words and assurances has helped tonight. Positive vibes and good thoughts to all of you.. Poppy xx
  14. Thank you so much for your words of encouragement. Feel back to normal, whatever that is lol. Got the phone call and going back in for more coiling and a stent as well. Hopefully, sooner rather than later.. Poppy xx
  15. Hi everyone, Had an angiogram yesterday, and wondered if anyone has experienced burning afterwards. The angiogram itself was rather traumatic due to a large bleed at the groin puncture and agonising pain when the doc put pressure on and plugged the puncture wound, I kid you not, I screamed very loudly.. All last night I had an intense burning on the inside of my thigh, and nagging pain in my groin - today it has eased of a bit, however, I was very shaky on my feet this morning, but again feel much better tonight. I have left a message with my neuro nurse to ring me but I would be very gratef
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