Sarahsilly

Maybe because I had the headaches I panicked but it didn't feel like it if you know what I mean! Aghh I was so looking forward to no getting up at night! I might get my BP checked today x

Hi all! I was so looking forward to not taking these meds every four hours. Well 24 hours later and I've been up most of the night with a rapid heartbeat and panicky feeling, with the headaches from hell!!! It's been a truely awful night. Anyone else have this after finishing these meds? X

Thank you again. It's reassuring to hear its normal!! I hate taking painkillers but maybe I need to keep on top of them regularly and at least I know that dang blood is going away through my body xx

Hello all, I'm three weeks post op for grade 1 SAH and I'm experiencing headaches mostly in my temples and behind by eyes and ears . I know its early days but at what time do I worry? I'm obviously worried my coiling hasn't been successful (I'm sure you all experience this fear or similar!). When do I call 111 or my doctor ? If anyone? So scared its something sinister rather than healing xxxx

Gosh! Thank you so much for your supportive messages! It's nice to know I'm not alone. I rang my gp who wasnt even aware of my SAH and said he would get me help ASAP but I don't know in what form. I've not got a good network of friends and family really as nobody can drive to me or they are not in my area. Its sad how this horrible event affects our children so much isn't it? Poor little things. I would love to know what my prognosis is long term but googling it doesn't help. Every sneeze and cough worries me and if I have a headache I'm paranoid! How do you all reconcile yourselves with your futures? Am I always to be careful? Or has this now coiled aneurysm secured me a normal lifespan? Sorry all the questions! Xxx

Hi Alison, No I've not had any support from an OT? I had a test from one in hospital who said I had visual problems and recall plus speech issues and would refer to speech therapy but that will be months ? x

Hi Louise, Thank you for your post. Any help or suggestions are great. I've been discharged from hospital with no support really and even less information apart from giving up the dreaded cigs which I have done since my bleed. I feel so sorry for my daughter as she was running around a car lot pleading passers by, and I feel so guilty that she now has anxieties a ten year old should never bear. Life seems to pick up where its left, her friends come by, their mums not. Nobody wants to know or help probably due to lack of interest as they have their own lives. Im isolated and as such I do wallow a bit, scared of even visiting a shop - I'm desperate for cash machine but I might screw it up.  I hope the being scared does ease. I don't have many people around me but I've bitten the bullet and booked a cleaner at least! You all seem like a great bunch and reading your stories help me, and I hope the scared feeling of bleeding again will go eventually xxxxx

Hello from a newbie here I suffered a SAH a few weeks ago in the company of my ten year old, understandably she is worried about me now I'm home and we are both alone as I am a single parent. I had an unexpected bleed caused by a burst aneurysm and I was taken to hospital to undergo coiling, although they have said I have another aneurysm but they have left this one alone saying they rarely bleed in this location?!! I am left with double vision and speech problems and sometimes I get weakness on my left side if I do too much. I don't know if that's normal? I unfortunately had vasoapasm which was treated by the noradrenaline route and I nearly died. I feel on egg shells, conscious of my little girls worries, who now sleeps with her door wide open in fear of my demise. I try to be flippant however this has been a major shock and I am scared to even sneeze let alone cough! I am sure I am not alone? How the heck do we get through this?!!! I don't know how to begin. I've no cash and need to visit the shop up the road for example and I can't even dare to do this! Fear of falling down, becoming ill again. Any advice will be greatly appreciated!!! Thank you Sarah xxx