fimac77

Hi. I had my SAH in November 2013 and had constant headaches afterwards. After a few months my neurosurgeon referred me to a headache specialist and he told me that they were related to migraine even though the symptoms weren't typical of migraine at all. Luckily for me, paracetamol and ibuprofen often did work, but didn't want to take them all day every day. I was prescribed propranolol to take every day as a prophylactic and it's worked for me - I now get maybe a handful of serious headaches each year. I hope you find something to ease your pain - I know how debilitating headaches can be.

Hi Gareth. If you do want to speak to someone for medical support, the Brain & Spine Foundation have a neuro support line which is staffed by neuro nurses. They can be contacted by phone or email and are really helpful. It sounds like your partner is doing well. Allthe best Fiona

Hi Robert, Have you been in touch with the Brain & Spine Foundation? They have some useful guides on dealing with the after effects of SAH and a helpline run by neuro nurses. They also have a Facebook page for SAH survivors. I hope you find the help you need. Fiona

Just to let you all know that the Brain and Spine foundation is holding a conference in London on 5th November. Aimed at those who have had SAH, cared for someone with SAH. I think tickets are still available from their website.

Hi Claudette, I had my SAH in Nov 2013 and had daily headaches afterwards, I've also been hospitalised with headaches twice since my SAH. I was referred to a neurologist who specialises in headaches and apparently it can be migraine related, so I was prescribed migraine prophylactics. It's definitely worth asking to see a headache specialist if there's one near you. Other than that, like everyone says, low stress, plenty of water and exercise help. Meditation works for me, but we're all different. All the best!

Hi Sarah, I know we can't give medical advice, but I had my SAH (coiled) at the start of November 2013, and had headaches well into January. My neurosurgeon referred me to a neurologist who specialises in headaches and he thinks my headaches were linked to migraines that I had pre-SAH and the blood sloshing around my head caused further irritation. Things have improved since I started on beta blocker to prevent migraine. But go see your doctor if you're worried - I've found them very kind even when it's a false alarm. The worrying definitely won't help. All the best, Fiona