caz

hi Zoe, i have just been reading back onthe last few days of Richards recovery and wow hes coming on great from the last week or so. it brings tears to my eyes to read how well he is doing and how much happier and relieved you are becoming.keep up your strength and remember this s early days lots of improving still to go but hes obviously a fighter and determined to win back his health. Thinking of you both, best wishes Caz x

thanks to you all, it was an emotional day for me re thinking of what hapened but also how far everything has progressed. No more check ups for 2 yrs now. they are then doing another angio just to check on my annie that has opened a little more lately. so heres to two yrs of fun!!!! love cazx

Hi all, just wanted to tell everyone my happy news. Its 2 years today since i had my annie and all is well. Its been a long two years but i have learned a lot about myself. everyone here is wonderful and i want to say thank you to each and every one of you. Love to all caz xx

Hi angela welcome to you and your partner. as everyone has said before it is like a family on here that understands the problems, joys and acheivements only too well. Time and patience will win. Its my 2 year annie-versary today and i feel elated but emotional.thanks to surgeons all is going well Take care both of you best wishes caz x

Hi Zoe, Sorry to hear Richard is still not too well. Stay positive as like the others have said it takes time. Keep talking to him and ask others to do so too. I remember that is what kept me going after my sah. Every time i heard my sons speak i knew i had to keep alive for them and it gave me the drive to live. I dont know how old your son is but maybe he could record a few words for dad too. The only other thing i can say is that being unconcious or semi concious is very peaceful you feel floaty and as if you are in a warm bed so richard will not be in pain. Keep up your own strength as you will need it later take care and god bless you both zoe best wishes caz x

hi melbury sorry to hear hubby is having problems. I too have had dizzy spells since sah and have tablets to try and help with this so worth talking to gp about it. i also have regurgitation and reflux which they think was caused by pain killers that i had post craniotomy and coiling. i dont know if this is the same for hubby bvut diet can help a bit if it is the same. best wishes to you caz x

Hi Zoe, i am so sorry to hear your news it must have been so frightening for you. All i can say is it is very early days and from experience you have to go along with the surgeons advice and just let them do their job. brain surgery has come on a long way and i am sure everything possible is being done to help the brain recover. lots of people are either kept sedated or are unconcious for a fair while to allow the brain to adapt to the changes. keep us informed and if you need to talk to someone i and many others are here for you please let us know. take care god bless you both caz x

Hi, i can only agree with what the others have said. I think you try to put a brave face on things but inside it is a huge shock when you have a bleed and it takes a long time toi come to terms with it. two years ago this month and i still get bad days and panic sets in. i see the neuro psychologist at the hospital regularly and she is great. the surgeon set it up for me so maybe this would help your hubby, i wish you both well and i am sure in time he will open up. best wishes to you both caz

thanks to you all for your good wishes. I have got so much strength from you all and i can only say thank you for that xx as for the yoga, i am back doing some yoga as i used to enjoy it before haemmorage. I am just waiting to hear from hospital whether or not i can go for hydrotherapy as the physios seem to think it will be good to strengthn up my back and neck muscles which have been affected and also get some stamina back so fingers crossed.I have a couple of days off this week and am enjoying relaxing and being on the pc to you all again. take care everyone god bless caz x

hi all, sorry haven't been in for a while. too tired after work but wanted to let you know i had good news this week. went for a angiogram last week to check on clipped and coiled annies and clipped one perfect and coiled has a moved a bit but nothing too much so i havent got to have another angio until march 2012!! gives me time now to get my strength built up and improve my fitness in case of next round with 2nd annie but fingers crossed it wont move any more. i was so pleased and hope you can share this with me. i also hope this gives some encouragement to those just starting on their journey. it can be a long process but have faith and go with it as it is worth every minute. i still get very tired and dizzy but am back to work 3 hrs a day and manage to do a lot of things now. you just have to know when to stop and rest. I think and pray for all of you often and hope you are all well or at least having all the help you need. god bless take care love caz x

thanks keith. i found a bit online about it yesterday and it seems very similar to an ordinary angio. (if ive got it right to !!) also spoke to angio secretary today and she said all was looking ok and not to worry too much. they seem to think this is just a precaution and thats why surgeon wants to see me again to decide on whether or not to go ahead with dsa or leave alone for a year which would be fabulous. thanks for replying keith take care and best wishes carol

Hi all, I have had terrible pins and needles and cramps but was caused by statin(simvastatin) so if any of you are on this maybe you could ask dr for a change but please dont go without before discussing with gp first. This is my proffesional head working here !!! lol take care all love carol x

Hi all hope everyone is ok x I was wondering if anyone has had a D.S.A? I have been waiting for results of a M.R.A scan since 21st dec and had a letter sat saying my sugeon wanted tosee me again which worried me so much as he said he did not want to see me again unless i needed more surgery. I phoned hospital this morning and spoke to his P.A who is treasure. she told me he wants to see me about a D.S.A as the the clip he put inside my head in may has left a blind spot on te scan and so they cant give a 100% result. this has made me more relieved than another craniotomy but would like to know more about it fromanyone who has had one. thank you all take care carol x

Hi Sarah, Welcome to you, i too had been told i had a bad headache or migraine even though the pain was so intense, my speach was slurred, right side pretty useless and no sight. My sone and hubby had to get me into a car and to the hospital so i can understand how frightened you must have been. I send you my best wishes and hope to hear from you again soon carol x

Hi John, sorry but have not been in for a few days to read new posts, welcome to your new family on here. everyone tries to help when you have a question or problem and also encourages you when days are a struggle.Yes it is hard at first and each day as it comes is the best way forward. so keep smiling and be positive and you will get through it all take care carol

I feel so sorry for sara and her entire family. This poor woman has suffered so much and yet fights on for what is right and for her family. God bless her i will be praying for her tonight x

hi diane, yes i get pins and needles a lot since sah but i dont know if you are on a statin for cholesteral as simvastatin can have that side effect and if his is the case dr may want to change them best wishes carol x

Hi Helen, I have been back at work working in pharmacy in swindon for about a month now doing 2 hours a day 5 day week. I only get paid for what i do and it is hard on the finances. Dont know if you have mortgage but my mortgage company nationwide are still paying mortgage under my insurance with them until i go over 16 hours a week. Not sure if you have anything like this but it is worth looking into. Im trying at present to get involved with support group for sah in oxford jr as i thnk people there will have lots of answers to our questions on this sort of thing. neuropsychologist at jr is settingit up for me so will let u knw if you are interested best wishes carol x

Thanks to everyone who took the time to read my query. i appreciate your comments. Went back to physio yesterday and she said accupuncture was still the best option for me and by te reaction i had means my body is very receptive to it but she understood i didnt want to feel that bad again and has agreed to just treat my jaw for a week or two but then she wants to ty again leavin the centre needle in my head out. fingers crossed all will be ok but not looking forward to it. sorry not been in for a few days but been in torquay for weekend. love t all caz x

I have been having acupuncture at my local hospital for my jaw which was very stiff since my craniotomy and it is going really well but the physio decided to try it into my skull yesterday to try and bring back sensation to my head but i have been feeling really poorly since about 30 minutes after she did it. really dizzy, sick and a massive headache has anyone else had this treatment and have you had similar reaction thanks all best wishes carol x

hi laanka, welcome to you from us all, i think like a lot of us on here having been given the choice i would of opted for treatment before a rupture than going through extra pain and discomfort. Its a brave decision and hard to make but you will be well looked after these neuro guys are so good. Talk plenty with your family and friends and good luck to you xx please let us know how you get on. we will be here for you love caz xx

Hi Leo, Just wanted to let you know that slow is best. I started back at work a week and a half ago for just 2 hours a day on theadvice of the neuropsychologist. I thought 3 hours would be fine but now i realise how much effort and concentration it takes and that makes you tired and dizzy. Psycho says i have a lot of anxiety and that could be making things worse and i think she is right the more we worry about not doing enough or our job properly the more pressure we are putting on ourselves and that makes us more tired and anxious. she is trying to teach me to say one thing at a time and dont worry about the things that are out of my control. It may help you to try that too. we will see if itworks for either of us Best of luck and best wishes caz x

Hi Anne, ive only just gone back last week after 6 months post clipping and have been told that if i have to have any more time off for more surgery etc then they will prob let me go and after 30 yrs that is hard. I sort of know what you mean about panic starting something new as i wasnt sure if i could go back to my job as it is very stressful ( i work in a pharmacy making up prescriptions etc) but you start to ask yourself what else can i learn now?? all i can say is little steps one at a time. Could you ask at the job centre if anyone on the disability side could help you?? ive heard they are pretty good and can also tell you what help money wise you can get. hope all goes well love caz x

thanks to all for your replies xx Yes i am finding it hard at the moment and want to scream when its not going to plan or when patients are being impatient waiting for prescriptions etc but i guess it will get better as it goes along. soooooo tired but think im the lucky one to get back to work take care all love caz x

Just wanted to tell everyone that thursday i went back to work after 6 months......just for two hours a day at the moment as that is all the drs would allow but at least i can see a light at the end of a very long tunnel. managed to go back after initial sah but after 2nd op it seemed an eternity.Found it terrifying on thurs and fri and was so tired i could hardly get myself home afterwards even though i only live 5 minutes walk from the pharmacy where i work. It knocked me for six and i have slept and slept (4 hours yesterday afternoon) Today i feel fairly good though and ready for my two hours tomorrow. had results back from neuropsychologist and all pretty good so i think its just time that is going to help me improve although back to see her thursday. Has anyone else got any tips on how to prepare for going back to work? housework is going out the window im afraid. I will keep pushing myself to do more but dont know how long it will take. Lots of hospital appointments for areas affected but I feel i am very lucky though, so all that are in early stages of recovery dont give up ! Take care everyone Love caz xx