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YorkshireSteve

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Posts posted by YorkshireSteve

  1. Absolutely.

     

    I also want to add in this topic something that I discovered recently that shook my world.

     

    My latest Neurologist was exasperated at my questions so he pulled out the blue book.

     

    The Blue book gives advice to doctors on what to do for a particular condition. He flips to post SAH advice and literally, in its entirety, this is what it says....

     

    Post SAH headache, more research needs to be done in this area.

     

    That was ALL!

     

  2. Some of the prescription drugs given can be very strong, this will tune down his concentration, memory, alertness and appetites. Codeine is especially effective for pain but the side effects can be bad for digestion. 

     

    Morphine based drugs, jeez, I had spells talking to my bed adjuster panel and saw my brother wearing a 7th cavalry costume whist in a wheelchair scooting around the room. 

     

    gl

  3. I also want to add in this topic something that I discovered recently that shook my world and it pertains to the title of the thread.

     

    My latest Neurologist (by far the the rudest health professional I have ever met and due to get the sack from me) was exasperated at my questions so he pulled out the blue book.

     

    The Blue book gives advice to doctors on what to do for a particular condition. He flips to post SAH advice and literally, in its entirety this is what it says....

     

    Post SAH headache, more research needs to be done in this area.

     

    That was ALL!

     

    And they have been pushing pills and stuff on me for years, basically guessing, it was staggering.

    • Like 1
  4. On 3/31/2017 at 21:00, RachelR said:

    Has anyone experienced a minor leak or a SAH that wasn't picked up by CT scans or an MRI-MRA, but showed positive on a lumbar puncture? Do I have cause to feel so worried since my scans all came back negative?  Thanks in advance.

    Similar, I never used to get headaches ever but started getting little 'knocks' that last 20 seconds or so. I had these for three weeks until the SAH. When they scanned me they said the Aneurysm had destroyed itself and I was all clear.  

     

    I doubted it and thought there was a weakness in there as I didn't like the explanation they gave me and was expecting it to 'blow' again but it never did. 6 years & 3 months on I am still here.

     

    I have seen approx 7 neurologists, at best they are patronising, some are rude and all but one were pill pushers. Find the 'one' and stick to him like a limpet.

     

    GL

    • Like 1
  5.  

    I had a headache for 6 years and 2 months and seen numerous 'specialists'. The drugs doled out by the NHS were outrageous with ridiculous side effects and I even tried acupuncture.

     

    I had a particularly bad run last summer starting in June for about 3-4 months then again in December ending in March. A bad runs leave me basically living in a basic sub-human existence, dopey, tired, irritable etc.

     

    After the bad run in March I went on a mission to find something, anything to ease this situation, total free thinking exercise before another relapse.

     

    Currently my only medication is Botox as a side effect migraine sufferers found it beneficial. I had the odd paracetamol/Ibuprofen but nothing else but At last I am doing better starting from when I started taking CBD via a vape. 

     

     I think I may have turned a corner, like a fog has been cleared in my mind and my old energy is there too.

     

    CBD is the non-hallucinatory / high part of cannabis and is legal in the UK for some medical conditions like MS as It helps the internal cannabinoid receptor system in the brain. I had thought for a while my headache symptoms were false, like people who have lost a leg and get cramps there if you know what I mean.

     

    I don't want to promote anything here but look into it folks if like me you have literally tried everything.

     

    I thought it can't be that good, so stopped taking it for 36 hours and all the old symptoms came back, constant left temporal headache, headache 'bangs' (like a punch on the bare brain), lethargy, drowsiness.

     

    Hope this helps someone, Im happy to message if you want to discuss but am also aware that on the forum we can't promote any solution or medication. 

     

    I am so revved up I had to share, my little voice is asking "where is the headache fella", and singing Etta James ....

     

    At last, 
    My headache has now gone,

    My days of pain are over,
    And life is like a song!

     

  6. I think you have to retrain your memory. The problem with having a permanent headache / mental lethargy / prescription drug haze is that your concentration can be a joke. My wife will be chatting with my and I lose the thread almost immediately as I can't soak it in lol.

    • Like 1
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