kellieone

Gp put me on 10 told me to start taking 2 after a week, then go back to him to see how I'm getting on. One thing I have seen change is that's sleep is not disturbed by pain.

Hi all I haven't been on here for a while. its 5 years on March 21st since sah and stroke and for the last 3 years I have suffered with a lot of pain in my unaffected side mainly in my hand, leg and feet. Overtime it has worsened where I have pain, pins needles and numbness, great difficulty in walking and my right knee giving way. After many trips to the doctors with continueing worsening symptoms which have also started on my effected side I was sent for an MRI as GP suspected MS. I had the scan and it came back with nothing new just old scarring from SAH. GP is now saying that I have neuropathy pain and that the stroke has caused nerve damage all over my body and this is why I am in so much pain. I have also suffered with constant fatigue for all this time. GP has put me on 20mg amitriptyline to start with. I feel that I am more disabled than I was 3 years ago!! everything hurts I have pain with even the slightest thing and the tiredness is unreal!! has anybody else had all of this after SAH or stroke? I feel that I should be refered to neurologist, not just told this then left with meds!!

Hi all, I have found an interesting site on how the brain recovers after damage. there are also other good links on the page. http://psychology.wikia.com/wiki/Brain_injury:Recovery

hi i had no pins and needles right before sah, i get more now in both my right and left side especially when waking. my gp said its because the wrong signals are going from my brain down my effected side. x

hi paul sorry to hear about your TIA, i have a lady from headway come once a week and shes great, they can find things out and do things for you. they have been a great support to me . xx

as karen said many people are unfortunantly mis-diagnosed and if they are, as janet said would it have made a difference anyway? it will effect services in the long run. like many of us my memory has been effected but not as bad as many others. i hate what has happened to me but i am grateful to be here. i can walk, talk, see, many people will never do that again. alot of us don't get that much care from the local authority or can't afford to pay for the care needed, then they end up with a poor quality of life when they deserve so much more. i've just read cristina malcolms story, and as her bleed was a level 5 i'd say she was a very lucky lady. besides her memory loss she does not have any other problems. i don't mean that her memory loss is minor but compaired to how she could have been effected, like many people on here i think she has done really well.

i don't think i could take that amount of money from the health service

hi and welcome!! my sah was non anurysm, any questions please feel free to ask and ill help in anyway i can xx

hi mine was non aneurysm xx

good luck to you both, thinking of you xx

hi janet i had mine in march of this year, i get strange sensations in head, i had left side paralysis which is now good but still not recovered. now winters coming ive noticed my left is colder than my right, i often although this has not long started wake up with pins needles and numbness in my left hand, spoke to gp about this and she said it is cause of the stroke, sometimes i feel of balance, not with it etc xx

hi john and welcome sorry to hear about the loss of your father and sorry to hear what you have ben through. you need to rest to recover both physically and mentally. speak to your gp or contact social services and ask for a community care assessment. you are entitled to help and support so you should get it. don't try to manage on your own it will get on top of you. you have alot to deal with at present and your house mate is n't helping! please get the help you are entitled to! im new to this site and it has been a great help, you can ask anything and there will always be a reply. take care xx ps i am only 30, i dont think these things discriminate against age.

thanks everyone! glad its not just me being over sensitive xx

hi all i have been out today and it is quiet cold and windy and noticed my head felt very cold and had a few short lived pains. is this something to expect during the cold? xx

hi all just an update on blood tests. they have all come back ok, got a follow up appointment on monday but gp thinks that symptoms are mainly down to anxiety. i will beat this thing!! i have been referred to a psychotherapist so hopefully it wont take long and it will help. kelly xx