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  1. I am in the unenviable position of having to make a decision about whether or not to have my aneurysm treated for the third time. Unfortunately, decision making is not my forte😨 Background is that in November 2008 I had a subarachnoid haemorrhage caused by the rupture of an aneurysm situated at the apex of the basilar artery in the brain stem. This was coiled 11 days later and again a year later. Since then, I have had this aneurysm, which has a wide neck, plus another unruptured one, monitored annually. Yesterday I finally had a meeting with the consultant neuroradiolo
  2. Hi everyone! My name is Sharon, I am 46 and had subarachnoid hemorhage 4 months due to a ruptured aneurysm. They coiled two of them but I have one left that is only suitable to clipping, due to its irregular shape, I think. The neurosurgeon said it is half of 1% a year that it would rupture and 3 to 5% of something going wrong in operation. The other aneurysm that ruptured was only 3mm ( they not sure which one) and this remaining one is also only 3mm so he said he can't guarantee that in the coming years it won't rupture, and my life long expectancy. And n
  3. Riti

    Riti

    Hello All, I found this forum awhile ago, but wasn’t ready to share my experience or read too much of others’ yet. I am today. About 2 yrs ago I suffered a ruptured SAH. At 24 yrs old, this was undoubtedly the most traumatic experience in my life, still holds that title, and most likely will for the rest of my life. It occurred during the first week of my new job, my first stepping stone into the corporate world. I woke up one night to a ridiculous headache and vomiting water. I naively thought I had some sort of flu, but also knew something was definitel
  4. My two unrupured aneurysms are ‘small and stable’ according to neurologist two years ago who discharged me on that basis.. so now nobody is keeping an eye on this situation. Feeling very uncared for!! Is this the usual deal?
  5. Hi all A newbie here. I came across this site by accident and wish I'd known about it before. I had an unruptured right sided ophthalmic aneurysm clipped 2 years ago and was diagnosed with another on the opposite side, same place, last September. They found the second one as I was still having visual problems so they investigated. To be honest I was surprised to hear I had another one but had no obvious symptoms and was told it would be treated. I was seen in December 19 and advised a flow diversion stent will be fitted which was booked for end of March 20 which of cou
  6. Hello Sharon There are many threads on this site discussing `unruptured aneurysms`. Follow this link to access the information. I hope you will be able to relate to some of the discussions and find the comments helpful. https://web.behindthegray.net/search/?&q=unruptured&search_and_or=or&sortby=relevancy Surviving SAH is challenging enough and the added emotions when discovering that you have unruptured aneurysms creates a totally different set of challenges as you seek to recover. Take the time you need to gather informa
  7. HI everybody. I am new here. I have just been diagnosed with ophtalmic aneyresm recently. Can anybody give me advice please. I am so worried have little children. I live in London. Can anybody recommend a good neurosurgeon. I will have first appointment in January and further angiography. Thank you very much.
  8. I have had treatment for an unruptured aneurysm. Has any one here had non-intrusive operation - meaning through the groin to have flow diverter stent inserted? If so, How long was your hospital stay? How long did your recovery take? How long after your operation did you return to work?
  9. Hi Sharon I have had a ruptured one clipped and an unruptured one 3 months later I didn't want a ticking time bomb however everyone is different xxx I was in a week with the unruptured one Good luck with whatever you decide to do xxx
  10. Hi- I had an 8 mm cerebral aneurysm in my left ICA that had a small leak and then was repaired on Monday. I had a stent and coiling performed. I had a vasospasm in my ICA during the procedure and had excellent packing (37%). I am incredibly grateful for how well it went but I don't feel like I was prepared for the recovery. The headache behind my left eye has been awful. The (mild) confusion and exhaustion was more than I bargained for and today I tried to sign my name and couldn't. I had a minor leak/bleed before the surgery so I don't know what's going on.
  11. Hi Liz Bit of a mixed one for me as I had a rupture repair and an unruptured packed. Ask your specialist for information as you say you had a "small leak". Even a small leak may leave lasting effects on the brain - my blood was clotting almost immediately as it was leaving the aneurysm but it still managed to damage my brain, even if not severely. Ask them for more information as it was a small bleed to the ICA it could have had more of an effect than you would imagine as it flows behind the eyes.
  12. I'm 53 years old and have been having headaches for quite a while. My GP has referred me to have a check by a neurosurgeon who has ordered me an MRI. It resulted that I have an un-ruptured aneurysm. I then had an ct angio scan which again confirmed that I have an 8 x 7 aneurysm. Now I am waiting for an appointment to have it coiled or clipped. I fear this prolonged waiting from the hospital to have this done as I suffer from headaches and at times these headaches are terrible. However doctor told me that these headaches has nothing to do with the aneurysm and I have to wait as there is a
  13. Hello all I am a 26 year old female who because of a scheduled MRI was found to have a 13.5mm fusiform left vertebral artery aneurysm that is pressing on my brain stem. My only symptom is a tingly right hand and foot, which the neurologist isnt even sure its a real symptom. We have decided not too do surgery, as the risks outweigh the benefits. They say they havent seen many aneurysms so complicated before (yay) I worry that I am a ticking time bomb, and my family and fiance are obviously worried and upset, we are planning our wedding, so trying to think positive thoughts! its hard, and i fe
  14. Four weeks ago I was diagnosed with an 8x7 aneurysm. I am waiting to have it coiled or clipped however headaches persists day and night. Doctor said they are migraines. Are these symptoms prior to a rupture cause I fear this may happen before it is coiled?
  15. Hi everyone I have copied and pasted my original intro story in here, along with a little update at 7 weeks post op. I hope it helps someone xx I'm Gemma. I'm 34 and live near southend in essex with my husband and our three year old son. I work full time as a HR manager and have never had any serious medical conditions. In October 2013 I was diagnosed, by chance, with a brain aneurysm. I'm underwent coil embolisation in early December 2013 and recovered well. I was so surprised to have found an active forum like this one, i felt quite isolated, but there seems to b
  16. Hi All, I thought I'd post this for those that are looking for something positive if they are having the same op. You might have read about my wife in the welcome section, well on Tuesday this week she had her Aneurysm succesfully coiled at Walton. The Aneurysm was 4mm in size and she had two platinum coils fitted, she had no adverse affects during the op and it took 2 hours in total. They didnt go through her groin as stated at lot on the web - they actually went through an arterey in her leg just to the left of her groin and in line with her hip - no shaving involved! And no major bleading
  17. Hi everyone and I hope you are all well. Just wanted to let you know of a meeting I had with my neurosurgeon yesterday and how he answered a few of my questions on my 2 anuerysms(think I can finally spell it now!). I had a lot of questions but to cut this short he told me that the chance of rupture of my remaining anuerysm(I only have 1 and not 2 as I had previously thought) is less than 0.5%. And what I didn't know was that the type of anuerysm that I had that did rupture was a different type and probably formed only a few days or weeks before the rupture. There are longer lasting anu
  18. Hi I am hoping for some advice my husband had a SAH in Jan 2017, he had it coiled, and was away from work for about 8wks. He then went back working his normal 12hr days x 5 weekly. The question I have is he is constantly asleep on his days off, he wakes after 9hrs sleep can stay awake for about an 1hr then will go back again for about 4hrs, he is getting frustrated with this and says he should not be like this now. Second question his short term memory appears to be getting worse he can't remember little things like shopping lists, I have to write them down now, he al
  19. At the time of the SAH, I was a few weeks short of my 51st birthday. My ritual in those days was to get up, make coffee, and take my cup out to the deck, where I sat in peace and smoked a cigarette, listening to whatever was moving on or in the river. Being the first Saturday of the month, a local group called Friends Of the River San Bernard was having the neighborhood breakfast at a nearby restaurant, which my husband, Al, and I almost always attended. Al was chiding me for dragging along that morning, kind of pushing me to get in the shower and get moving. I was pretty grouchy;
  20. My SAH happened on 10th February 2015 whilst on a skiing holiday in Italy with my husband. It was a perfect day, blue skies, powdery snow and we'd just caught a cable lift to the top of the mountain & stopped for a lovely cappucino. We decided where we were aiming to ski to for lunch (always a very important decision!) and set off again. I hadn't got very far when I had a small fall - didn't hit my head just sort of fell back on my bottom - felt ok at that point but then heaved myself back up to a standing position and suddenly all hell was let loose in my head. I had a weird s
  21. Hi Rachel Sorry to hear what has happened to you and all the worry it has caused. I would not worry too much about the journal article you linked to - it is specifically is talking about early warning bleeds in the context of aneurysmal rupture - once an aneurysm has bled it is likely to rebleed in the next month if not dealt with. Your MRA should have indicated whether you had an aneurysm (ruptured or unruptured) and you said it came back with no abnormalities. Although the diagnosis of a bleed by CT scan or MRI/MRA would become less reliable over time, I
  22. Hi Andrea I know it can be a bit disconcerting when you are expecting a certain level of monitoring and then that changes. My hospital neurosurgeon suggested we scan my very small unruptured aneurysm at 6 months and then at increasing intervals of 1 year, 2 years and 3 years. He said if it had not changed in all that time (6 and a half years) we could safely forget about it. I was happy with that plan - I think mine is quite low risk because I've never had an aneurysm rupture (my bleed was non-aneurysmal). After the second scan though, I saw a different neur
  23. I asked my GP to refer me again but the hospital stated I didn’t need monitoring again ! I was aghast! I have 2 unruptured yet they have left me to it!
  24. Hi Irene I guess they want to know if you have any unruptured aneurysms. I had a non-aneurysmal SAH (probably perimesencephalic - all the blood seen on my CT scan was in the perimesencephalic area) but they also found an unruptured aneurysm that I have monitored.
  25. Hello, my name is Aimee. I have read some of your stories and wanted to thank all you for sharing. I wanted to say I am sorry for all who have gone through this. I never knew that aneurysms were so prevalent. It all started 2 years ago when I had a headache that would not go away. I was just getting over a sinus infection and thought it was a headache from that but it wasn't. It turns out that I have chronic migraines and this diagnosis would have not been possible without the persistence of my primary care physician. In November of 2016 when I started going to a head
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