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Found 5 results

  1. Riti

    Riti

    Hello All, I found this forum awhile ago, but wasn’t ready to share my experience or read too much of others’ yet. I am today. About 2 yrs ago I suffered a ruptured SAH. At 24 yrs old, this was undoubtedly the most traumatic experience in my life, still holds that title, and most likely will for the rest of my life. It occurred during the first week of my new job, my first stepping stone into the corporate world. I woke up one night to a ridiculous headache and vomiting water. I naively thought I had some sort of flu, but also knew something was definitely wrong. Luckily, with heavy emphasis on luckily, my mother took me immediately to the ER. The Dr. who thought it could just be a migraine, fortunately decided to get me a scan just in case. I was in the “very healthy” category up until this happened with none of the risk factors, and genetic testing coming up short in answers and long in questions. I also have 1 small unruptured aneurysm that is “not in a great location”, which is getting looked at via angiogram tomorrow. My current symptoms include: Difficulty accepting new reality Feeling 95 in a 25 year old body Hypochondriac tendencies Challenges relating to peers, and non-peers Over-stimulation (ie: at a symphony, department stores, etc) Migraines, fatigue, trigeminal neuralgia Nonetheless, I do feel incredibly blessed to be here, and to now be in the virtual company of all of you. -Riti
  2. I am in the unenviable position of having to make a decision about whether or not to have my aneurysm treated for the third time. Unfortunately, decision making is not my forte😨 Background is that in November 2008 I had a subarachnoid haemorrhage caused by the rupture of an aneurysm situated at the apex of the basilar artery in the brain stem. This was coiled 11 days later and again a year later. Since then, I have had this aneurysm, which has a wide neck, plus another unruptured one, monitored annually. Yesterday I finally had a meeting with the consultant neuroradiologist following the MRI which I had 5 months ago and also had to chase it up twice. What he suggested was to have more coils put in the base of the aneurysm where there is a gap and at the same time insert a flow diverter which, as the name suggests, diverts the blood away from the aneurysm eliminating risk of rupture which currently stands at a risk of 1% per year. All this appears to be a sensible idea but to achieve this I would need to put myself through a procedure which fills me with fear. I was also told there was a 5% chance of having a stroke during the procedure. Although I've turned this round to a 95% chance of not having a stroke it's not made my decision any easier. The other option is doing nothing now and continue being monitored on an annual basis which presumably is just delaying the decision. Anyway I came away from the meeting having agreed to an angiogram being arranged so he can get a more detailed picture of what he's working with. He also said he would get a second opinion from some consultant in Birmingham before going ahead with any procedure because of it's complexity. I have asked for another meeting with him after the angiogram before I try and make a final decision. Sarah
  3. Hi everyone! My name is Sharon, I am 46 and had subarachnoid hemorhage 4 months due to a ruptured aneurysm. They coiled two of them but I have one left that is only suitable to clipping, due to its irregular shape, I think. The neurosurgeon said it is half of 1% a year that it would rupture and 3 to 5% of something going wrong in operation. The other aneurysm that ruptured was only 3mm ( they not sure which one) and this remaining one is also only 3mm so he said he can't guarantee that in the coming years it won't rupture, and my life long expectancy. And no point in monitoring it because of this. So the decision is mine to make on whether I can live with it and take the chance or get it clipped , the neurosurgeon said he is willing to do the clipping soon if I come to the decision to go ahead with operation. Has anyone here had to make a similar decision? Or had clipping of an unruptured aneurysm? I am so afraid. Thanks for reading my post. Sharon x
  4. Hi all, After one year since my SAH, my 2mm unruptured aneurysm will be coiled tomorrow (fingers crossed). The aneurysm appears to have a branch coming out of it so if the doctors say that the coiling is not successful, they will consider clipping. Either way, I'll let you all know. Thank you Gail
  5. Hi, my name is Jan, I had my SAH 7th June 2015 Thunderclap headache - ambulance - blue lighted to hospital I remember very little after that. An aneurysm had burst, this was clipped (craniotomy). I spent five days in critical care conscious but totally unaware of what had happened. I was then transferred to a neuro ward, having no idea why I was in hospital i asked a nurse, she said 'you've had an SAH' I'd never heard of one..helpful? Not! Anyway very long story short I'm left with weakness and numbness in my left arm and leg, my short term memory is rubbish (can't remember where it went!) I also have an unruptured aneurysm found at first follow up scan. My neurosurgeon said it was too small to worry about and the wrong shape to coil..a ticking time bomb I am!! I was very active prior to the SAH working full time in my own business. I now struggle with the fatigue and the frustrations of what I can't achieve yet. I no longer yearn for the 'old Jan' but haven't adjusted to the new one yet. Thank you for reading This wonderful site has helped me enormously reading advice and comments from others.
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