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When I was back in hospital in 2012 I was pretty destroyed if I am honest. I had my grade 4 event, grand mal seizures, acquired hydrocephalus , EVD surgery, coiling surgery and , endured the weeks of intensive care, of hospital stay. It was a long 7 weeks before I was allowed home and then when I did get go to home I could do nothing. I had sitters, I couldn't Cook, wash, sleep normally, let alone do any of the grown up things like look after my young girls or cook, work, or drive. I was 39 years old. But I tried to start putting the pieces back together but three months afterwa
It seems a long time ago when my brain sprung a leak but my memories from that day, the days in hospital afterwards, and at home recuperating, are still very strong. I had no concept at the time of a long term recovery. In fact I thought 'no problem, I'll push through this' and get back on with my life like nothing has happened. Wrong, very wrong. I don't think anyone told me that a long recovery was going to happen, or I wasn't listening if they did, but I certainly wasn't prepared for it. Here I am three years later and my life is definitely not the same as it was. But actually I think t
Two years today since my out of the blue life changing event. Once again I am motivated to post on BTG just in case something I write is helpful to someone else. Like many on BTG I had unrelenting head pain and profound fatigue for a long time after my bleed. Other symptoms seemed important at the time but not now. The head pain is mostly at a low level these days such that I am only motivated to grab some analgesics when I have over done it. My head still does not feel normal, as best as I can remember normal, but how it feels is not dominating my day like it used to. I have not felt the ne