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Found 4 results

  1. It has been almost three years now since my SAH, and I feel that I have come quite a long way in my recovery. Fatigue is still a problem, but it’s slowly getting better, or maybe I am just getting better at adjusting my pace. I have recently been able to exercise more without having to rest up too much afterwards, which has been very helpful. Yesterday I had my first angiogram in two years, and this has left me so upset and emotional afterwards and I just can’t get back to a positive state of mind. I have had a few angiograms before, so I knew beforehand that it would be a bit uncomfortable, but this time I just panicked. I was so deeply afraid that something would happen during the angio that my heart was racing even the night before. And when I got to the hospital in the morning, they told me I would have to wait because the doctors had to perform an emergency surgery first. So three more hours of worry. The fear I felt during the angio made me so tense that it felt like it took forever. And this was even though I had had a mild sedative before. Afterwards I was very lucky to have a nice surgeon, who told me straight away that from what he could see, everything looked fine. He even came to my ward to give me copies of the scans, and explained them to me. After that, I was so relieved and felt happy for a while. Today however, everything just hit me at once. The toll on my brain from the wait, the irrational fear and the anxiety before the angio. And also having to rest and not being able to exercise for a week or so because of the risk of bleeding. It reminds me so much of how I felt at the beginning of my recovery, and I feel confused, angry and a bit sad. And I can’t even explain why, I can honestly say that I haven’t felt this affected mentally for a long time now. I guess I just wanted to share this with you because even though I have been talking to my husband about this, he can’t really understand why I was afraid in the first place, I am usually a very rational person. So thanks for listening. /Tina
  2. It is 3 months on Monday since I had my sah followed by coiling 6 days later due to various problems with diagnosis. I now have blind spots in both eyes and I am trying to adjust. However this is making going out very difficult. I get overwhelmed in supermarkets by too much information coming in to my brain. I get dizzy and feel almost detached from everything around me. I feel so so sad right now. Christmas was always my favourite time of year I loved looking at all the decorations in the shops. i also fear that I won’t be able to do anything with my daughter. She is 6 and I am scared we won’t have those mummy daughter shopping days together in the future. Will this ever get better? X
  3. I am 25 years old, and had SAH about 2 months ago. I was in the hospital for almost a month right after the delivery of my second child due to post partum pre-eclampsia followed by a SAH. I had the really bad headache for about 3 weeks that needed to be control with pain medication afterwards. Today I only feel a constant mild headache and my blurred vision got a lot better. Every day I just kept on wishing that all this go away fast, I thought I was fine and I was getting better until I started feeling very mild but weird pains in my head. Sometimes my neck feels a little stiff along with my shoulders and I believe due to carrying my 2 kids under 2 years old. Sometimes I can't help but feel very anxious and worry about going through this again. Can a SAH reoccur? Is it normal what I'm physically feeling? Are my symptoms related to something else? Who knows! And the worse part is that I don't even have insurance anymore. I'm afraid of being home alone with my 2 kids.
  4. My husband had his non aneurism bleed 17 days ago and was just discharged home from ICU. It's a "no know cause" diagnosis. We are blessed he is set to recover and do well, just struggles with his short term memory loss. Our current biggest symptom we are battling is extreme anxiety & restlessness. He's never had bouts of either before. He is constantly pacing and his heart is racing. His mind is going 100mph and he very uncomfortable because he feels awful. Our neuro does NOT want to prescribe any sedatives for he feels they'll do more harm then good, possibly Any help please
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