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Found 2 results

  1. I’ve previously posted about developing blind spots in my vision. I’m 4 months post SAH. I’ve had tests at the rvi. Newcastle and they found eyes looked normal. I’m going back for electrode tests on 28th to see if optic nerve etc is functioning. I’ve got flashing lights and blurry vision as well as blind spots. Every day is a challenge for me. Im not coping with this at all. I spoke to a first response counsellor who is referring me to the acquired brain injury people for occupational and psychological help. Im ruminating constantly over not calling an ambulance when the bleed happened as it was 11 at night and I didn’t realise how serious it was so tried to sleep it off. I was walking around quite conscious the next day when I went to a&e and it all went wrong from there on. Not treated for a further 5 days! All I can think about is I was so lucky to have survived the bleed and to be conscious it must have been a small one and if I’d got treated straight away then like many survivors on here I’d still have my vision. I look at photos of my life this time last year and I just cry. I’m can’t see a future and how I can be the partner and mum that I once was. Where do you start when every day you struggle to get out of bed and everything you do or watch on tv reminds you that you can’t do that anymore because you can’t see properly to do it? Im 47 and waited so long to have my little girl now I just feel I’ve let her down. I was a hands on mum doing everything I had the best life working part time spending the rest of my week looking after everyone else. Now all I do is walk her to school when it’s light enough for me to see. And cuddle on the sofa watching tv. Im so sad all I want to do is stay in bed as that’s where I can remember how good life used to be.
  2. Hi everyone, I’ve previously posted about blind spots in my vision and change in perception. I’m really struggling right now! Last week my vision went blurry so on Monday I called the doctor. He advised me to go to a&e in case it indicated a change in the coiled aneurysm. After a night on a stretcher I was admitted and I had an angiogram which thankfully came back ok. I then had full opthalmic assessment and was told eyes are healthy. I’ve also had a bit of spotting of blood at the top of my nose which the consultant says it is unrelated. But it’s going to get investigated. So here I am day 3 in hospital hoping next stop is neurology. My vision has gone really blurry and it’s worrying me greatly. I dont recognise myself anymore. I’ve lost so much weight. My vision wearing my glasses is probably what it was before I used to put them on. This is so scary!! I worry it will get worse. I worry i have strained my eyes trying to adjust to the blind spots. Im lying in my hospital bed thinking how did I get here? Why am I still here? What use can I be to my family? The doctors are hoping to get some counselling for me. I am so low right now. I feel like I’m just existing and eating just to stay alive!
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