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I had SAH with coiling and EVD 11 weeks ago. How long before I should get a follow up appointment? My GP says I should have one as does my contact from the Stroke Association and someone at Headway. I still have back pain although it’s not as bad as it was. What’s worrying me more and more are the auras. They are getting more frequent around 3 times a week. My GP knows about them and says to ring for a follow up hospital appointment. I keep trying but all I get is an answerphone and I leave a message but no appointment materialises. At a bit of a loss to know what else to do. It’s like a brick wall. Does/did anyone else have frequent auras ?
Hello all Has anyone had trouble bringing their knee up while standing after SAH and endovascular coiling surgery? I had terrible bruising 'down there' after my surgery that took over 2 months to clear up but I'm now left with a lazy right leg (the side they went into the femoral artery) and I can't lift my knee to a right angle or higher now. I reckon the the surgeon would have had to push past my hip flexor muscles and tendons during the op and that I have been left with a leg I can't use properly anymore. I have big problems climbing deep steps and have to lift my leg out of the car with my hands now. Do you think it's the bleed (3 months post ruptured SAH) or the surgery that has caused this problem? My GP doesn't seem interested and I haven't been called back for any checkups since I left hospital. I feel discarded and have been left to sort myself out. I go through stages of feeling low but I talk myself around and meditate but I even find that difficult now and harder to focus on being calm and my breathing exercises. It's as though everything is surreal, nothing is real and that I am in limbo, almost suspended in time. Any views on legs and hips would be fab but I also want to know what others are experiencing as nobody around me can hope to know how I really feel since they haven't been through an SAH. I love my partner and friends and value their support but I can't help feeling that I am now very different but have no idea how to tell them how I feel when I don't know myself! With love Mandy x (rising from the ashes, yet again!)