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Found 5 results

  1. Hi all My SAH was 2017 and I still worry about it happening again . I had coiling and worry it’s not as effective as other methods. Does anyone else feel like this? I’ve also noticed being irritable and cross about everything . Best Wishes Josie
  2. Hello all, I had my follow-up with my Neurosurgeon yesterday and left a bit uneasy. A shortened background: I had an aneurysm Dec. 10, 2010 and it was coiled. The same aneurysm ruptured again July 17, 2020 and was coiled again. The previous coils were still intact but a new aneurysm branched out off the old one. This is very rare to happen. Prior to my coiling there were talks of putting a stent as well. This was not done. My husband and I were told by two of the Neurosurgeons that it is needed as an added protection to not have another rupture. I was discharged after the mandatory 14 days and never heard about the stent again. This has caused me lots of anxiety. I told my husband that we have to be ready to fight (not physical lol) and advocate for myself and so we did. Doc said there is some remnant which is not uncommon. He showed us the CT scan and where my aneurysm is located is quite tricky. His words were, "There are no right or wrong answer. It's not black and white. It's gray." He also said that for every procedure there are always risks and that if we do the stent I will be on blood thinners forever. He probably saw the look of dismay on our faces. I was on the verge of tears. My husband said well we have to do something, anything. Everybody said a rerupture was unlikely but it did happen. Thankfully, Doc said we'll let the coils settle in and do an MRI in three months and go from there. Got to take the small wins. My question is: For you who had stents put in, how was the procedure? Are you on blood thinners? How has it affected your life? Thanks in advance!
  3. I had SAH with coiling and EVD 11 weeks ago. How long before I should get a follow up appointment? My GP says I should have one as does my contact from the Stroke Association and someone at Headway. I still have back pain although it’s not as bad as it was. What’s worrying me more and more are the auras. They are getting more frequent around 3 times a week. My GP knows about them and says to ring for a follow up hospital appointment. I keep trying but all I get is an answerphone and I leave a message but no appointment materialises. At a bit of a loss to know what else to do. It’s like a brick wall. Does/did anyone else have frequent auras ?
  4. Hi Everyone, My dad had a SAH 2 weeks ago, he had emergency surgery and had coiling. Since then he has been sedated and on a ventilator and has regular neurostorming throughout the day. My question is, did any of you experience this whilst recovering? Did any of you experience these storms every time you were weaned off of the sedation? Thank you and I pray the best for everyone recovering and the loved ones supporting in this time.
  5. Hi- I had an 8 mm cerebral aneurysm in my left ICA that had a small leak and then was repaired on Monday. I had a stent and coiling performed. I had a vasospasm in my ICA during the procedure and had excellent packing (37%). I am incredibly grateful for how well it went but I don't feel like I was prepared for the recovery. The headache behind my left eye has been awful. The (mild) confusion and exhaustion was more than I bargained for and today I tried to sign my name and couldn't. I had a minor leak/bleed before the surgery so I don't know what's going on. The emotions were overwhelming this morning. I focused so much on preparing for the surgery that I guess I didn't prepare enough for the recovery. I'd love to hear how other folks recovered from a basically unruptured aneurysm repair? Thanks.
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