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Found 5 results

  1. Hi again everyone As the date draws closer for my procedure, on Weds 11th August, I just wanted to thank everyone who posted about theirs and who has been supportive and helpful throughout. I took great comfort in reading people’s posts before the op, and the natural anxiety and apprehension, but the relief to read the ‘hi everyone I’m back and recovering’ posts is something I’m holding on to and looking forward to being able to post myself soon! I had the pre-op tests a couple of weeks ago. Then I have to go for COVID-19 swabs tomorrow, isolation at home until I go in for the op on Wednesday. Please keep me in your thoughts and send virtual positive vibes on the day! xx
  2. Just had a phone call from the hospital: my coils are all functioning properly and everything is as they’d expect. Repeat scan in 12 months. I’m currently grinning like a Cheshire Cat. Such a relief. Mustn’t think about 12 months’ time just get on with life 🎉🎉 Sally xx
  3. I am in the unenviable position of having to make a decision about whether or not to have my aneurysm treated for the third time. Unfortunately, decision making is not my forte😨 Background is that in November 2008 I had a subarachnoid haemorrhage caused by the rupture of an aneurysm situated at the apex of the basilar artery in the brain stem. This was coiled 11 days later and again a year later. Since then, I have had this aneurysm, which has a wide neck, plus another unruptured one, monitored annually. Yesterday I finally had a meeting with the consultant neuroradiologist following the MRI which I had 5 months ago and also had to chase it up twice. What he suggested was to have more coils put in the base of the aneurysm where there is a gap and at the same time insert a flow diverter which, as the name suggests, diverts the blood away from the aneurysm eliminating risk of rupture which currently stands at a risk of 1% per year. All this appears to be a sensible idea but to achieve this I would need to put myself through a procedure which fills me with fear. I was also told there was a 5% chance of having a stroke during the procedure. Although I've turned this round to a 95% chance of not having a stroke it's not made my decision any easier. The other option is doing nothing now and continue being monitored on an annual basis which presumably is just delaying the decision. Anyway I came away from the meeting having agreed to an angiogram being arranged so he can get a more detailed picture of what he's working with. He also said he would get a second opinion from some consultant in Birmingham before going ahead with any procedure because of it's complexity. I have asked for another meeting with him after the angiogram before I try and make a final decision. Sarah
  4. I had coils 17 months ago and still no follow up scan yet and have started to wind myself up that something could go wrong without the check. Received a letter about six months ago to say I’m still on the list but there would be a delay due to Covid. I’m trying to be rational telling myself that presumably if ‘they’ were worried I’d have been seen but I’m afraid I’ll be overlooked or something. Has anyone else had to wait this long for their first follow up scan?
  5. This is my first proper post. I have read comments on this amazing site for a couple of months now. My Partner, Donna set me up and used it for help and advise to best support me once I was out of hospital. I suffered a cat one bleed on 7th September 2019 whilst out on a park run. I lost the feeling in my right leg and arm (from what I can recall). I was conscious throughout. After a scan I was found to have two aneurysm’s one of which had burst. It’s worth noting that I am one of three Brothers. My younger brother suffered a SAH 15 years ago. My older brother suffered a stroke this Christmas Eve. Subsequent scans have revealed he too has an aneurysm and is awaiting a date for his coiling. My coils were fitted on the following Monday and I was discharged 18th September. Throughout my time in ICU and ever since, I have always struggled to accept what has happened to me. I felt like a fraud, like I was wasting the time of the Drs and nurses who helped me. When I read the posts on this forum it seems to enforce my feelings. I only had a cat one bleed, only had 2 coils fitted, only spent 12 days in hospital. I often think I should reply to some of the posts with my experience but then tell myself that I haven’t had the same experience, so how can I? Prior to this event in my life I was running a lot, 5 half marathons and the Edinburgh marathon. So I was fit and very active. Now 6 month post SAH I find myself struggling to walk more than a mile. That said I know I am very fortunate to be able to walk that distance. I started my re-integration to work 8 weeks after the SAH, an hour per day for a couple of weeks. I am currently working 5 hours per day. It has been a major benefit having a very supportive employer. Again I find myself struggling with what I am typing. I have it easy compared to a lot of others! I struggle with my employer telling me to take it easy and that I should slow down. I feel like I am taking advantage of my situation. My scars are not visible to me so I can’t see why I should be treated any different. The only time I realise I can’t do what I want is when I hit the wall. (Running terminology). I recently had 2 days off work after increasing my hours from 4 to 5 per day. Too many meetings and too many issues to deal with at once wiped me out. So why am I writing this post? Not sure really, other than to tell my story in hope that it will help me come to terms with what has / is happening to me? There may also be others that feel the same as I do, frightened to speak out?
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