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Hello everyone! I’m coming up 3 years post bleed at the end of the month. Other than the usual fatigue, forgetfulness and anxiety - I’m doing pretty good. i’ve made necessary changes in my work life to accommodate my new reality, and I’m good with that! I know we all have different experiences post bleed, but I’m curious if anybody else has had this particular one. Every once in a while, I get this feeling in my head, like there is water pouring over it. There is no pain, just a weird sensation, and it has always happened in the middle of the night. If you are a woman, it almost feels like a hot flush. It only last a few minutes, but then I get the “butterflies” in the tummy and I usually get up for a bit as I’m too anxious to get back to sleep. This isn’t a regular occurrence, in the last 6 mos, it’s happened maybe 3-4 times. My doctor doesn’t seem too concerned about it and I was just wondering if anybody else has had this “feeling”. I decided to keep track of it, just to see how often it happens. Once again, this web site has been a life saver. Happy weekend everyone! Hugs, Pat
I am just wondering, now that I am 2 1/2 years post SAH, and still suffering from dizziness/vertigo, and constant head/neck pain and pressure (I have other medical conditions), if anyone else has this. Although my medications list "dizziness" as a side effect, I have forgotten to take my noon dose of Gabapentin (Neurontin) Zanaflex and Topiramate on many occasions and noticed that my dizziness/vertigo yet worsens within 2 hours of a missed dose. Does anyone else feel constant head pressure and dizziness, despite medications? Even taking Vicoprofen (7.5 hydrocodone/200 mg. Ibuprofen) does not take the head pain/pressure totally away). I have to pretty much knock myself out with meds to sleep at night, taking Klonopin and Zanaflex. The pain at "dose" time, 5:30 a.m., awakes me. Has anyone been approved for Social Security Disability following SAH? I cannot perform any kind of work with this constant head pain. I was a paralegal for 35 years, which requires a lot of sitting. I had my appeal hearing yesterday and the occupational expert stated I could do work such as assembling small parts or being a mail sorter, although I also suffer from bi-later carpel tunnel syndrome (constant, throbbing hand/forearm pain). The constant head pain is agonizing, and I do not know how they think I could be standing to be a mail sorter when I have arthritis in my feet/ankles. I have had injections in them also. My attorney did raise the point -- would any employer want to take the risk of me being there on all of the medications I take? I am literally miserable and enjoy very few things in life that I used to do. Friends have all backed away from me, I guess because I can no longer do things I used to do and I am no longer as fun to be around. So, I do things alone like walk my dog, despite my foot pain, as that is about all I can do to not think about the pain. True, I do sit at this computer and type, but my hands are in horrible pain that keeps me awake at night. I wear hand braces on both hands to sleep but often take them off in frustration because the Velcro tangles in the sheets when I toss and turn. Your input is greatly appreciated !
Hi All Love this forum it is like having some friends who can actually help! Last night (I have been feeling worse this week) I touched the spot on top of my head where the EVD drain went in after they made an incision and there is suddenly a noticeable dent that was not there a few days ago. My husband thinks that I am mental by the way, with my ever changing symptoms Is this normal?? I am terrified my head is caving in. Surgery took place on July 18th and it is today Sept 14th. Could this have anything to do with me feeling worse this week or am I being paranoid? Thanks Guys XX:crazy: