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Perimesencephalic haemorrhage with EVD
RuthB posted a topic in Non-Aneurysm SAH or Perimesencephalic SAH
Hello everyone, I am so happy to have found this place!! I have felt totally alone with this for the last year and a half, and put a lot of pressure on myself to just get back to normal. I had my perimesencephalic subarachnoid haemorrhage in May 2017, and then developed hydrocephalus, so had an EVD in for 8 days. I was in hospital for a total of 11 days, and went back to full time, energetic work in the September. Now I can see it was way too early, but all I could find at the time online about this type of haemorrhage was that the prognosis was really good. I didn't see any stories from other people. Now I would love to talk to other people who have had the same thing - to hear their story and about how they recovered; to compare and contrast basically. Have you had a perimesencephalic subarachnoid too, ideally someone who also had the IVD? Please let me know, I would so appreciate to hear how the journey has been for you. Thank you, Ruth- 7 replies
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