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Hello everyone It has been quite a while since I posted and I reached my NASAH 1 year anniversary on January 3, 2021. Hard to believe. The second half of my year was taken up with endless specialist appointments, scans and tests for a number of reasons I won't bore you with. At this point everything has improved in varying degrees with the exception of one area. I experience loss of power or weakness in my arms and legs accompanied by breathlessness every day. It is more pronounced when I try to do things like changing a fitted sheet, mopping the shower or any other thing that takes that little bit of extra exertion. Walking more than about 10 metres has the same affect. Physios saying there is nothing metabolically wrong and it is not due to deconditioning. My Dr is arranging a CD scan looking at the possibilities of hydrocephalus or permanent damage as I had a large volume widespread bleed. Wondering if anyone else with a NASAH has had similar experience. With thanks and kind regards Allejam
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- limb weakness
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