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Hi, Im Gemma and I'd like to tell you my mother's story and ask some advice from anyone out there who can relate. my mum had her SAH 6 weeks ago (7/3/17) My mum is 50, very fit, non smoker. She found out she had an aneurysm 8 years ago, as it was small she was advised to just have it monitored each year and was told it wasn't at risk from rupture. She had a seizure and went into a comma 3 minutes after the headache and sickness started. Her SAH was graded as 5 (highest grade) as she was in a comma with GCS 3 on admission and did not regain any consciousness for 4 days. scan showed 2 aneurysms, the new one (de novo aneurysm) was the one which had ruptured. She was put on life support to see if swelling would go down in her brain and 24 hours post admission coiling of the aneurysm via angiogram was attempted but unsuccessful. Clipping of the two aneurysms were later successful via craniotomy. Mum was in a comma on full ventilation for 4 days. She came round and was able to move all limbs and respond to simple commands. However on day 8 she suffered serverly from vasospasm causing her to become unconscious (GCS 5) and loose movement in her left side, triple H method was not enough to control the spasms even with her BP being maintained at 220 systolic so she underwent a chemical angioplasty. The spasms continued in a milder form up to day 20 when she was finally weaned off of noradrenaline. She also suffered badly with hydrocephalus (excess CSF/ brain not absorbing CSF) so she had to have her EVD (drain) in place for 20 days after surgery, She spent 3 weeks in neuro critical care and a further week on a neuro ward. she was released home with a carer. amazingly my mum is up, walking, talking, with only a 2% left side weakness remaining. Her only symptoms are extreme tiredness and substantial loss of short term memory/ lost ability to process/ sequence in the way she use to and moderate confusion. she has amazed everyone. She has no memory of the 2 weeks prior to her SAH or anything about the ICU My questions are has anyone experienced anything similar? What was your cognitive recovery like? I am meant to be getting married in Cyprus in 4 months (5.5 months post SAH) from me in the UK it's a 4.5 hour flight and it will be very hot this time of year. Do you think there is a risk of rebleed or any other complication from the flight or heat? Thanks in advance Gemma
Hello- 1st off let me state that finding this site is exactly what I desperately need at this time. I'm sitting with my husband in Neuro ICU for the 8th day after a nonaneurismal sah. Docs said they should be able to pull his drain and send him home by the end of the week (14 days) Physically he appears to be ok but his short term memory is shot. It's heartbreaking to hear him struggle remembering our children's name. He's currently all over the place of to where he thinks he is and why (he says someone got him sick so he fell off a bike...none of which are true) I'm super worried we won't have our sharp, active 39 year old husband/father back. I know everyone is different. Just trying to hear feedback on others experiences with short term memory loss