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Hi everyone, Today marks my 4 year NASAH anniversary! March 28, 2015, just two days after my 40th birthday, I experienced 'the headache'. I knew something was wrong within minutes and had my first ambulance ride to our local hospital. They thought I had an aneurysm so they rushed me to the trauma hospital the next city over. A few hours later a neurologist told me I had blood on the brain. He never used the term SAH, NASAH or stroke, just blood on the brain. When I was discharged days later, I asked, what happened to me? What is this called so I know my medical history? I had never heard of SAH until it happened to me. I was off work for 2 months and it was absolutely the worst months of my life. I couldn't work, drive, read, watch TV, think straight, cough or sneeze. My body was just still. It was afraid of what a jolt might do. With family support, meditation and just taking things day by day, things did get better. Four years later, I'm doing well. I celebrated my 44th birthday a couple of days ago, no ambulance ride or ICU This is progress. I'm still scared it's going to happen again, I'm afraid the next time it may be worse. But I don't want to live in fear. I want to live each day the best I can. Whatever happens to me, will happen to me whether I worry about it or not, so I try not to overthink. My SAH is a mystery to this day. No cause determined. I suppose not everything in life has an explanation. Thank you to BTG. I do check in and read the articles, your stories and it's comforting to know we are not alone. Cheers from Burlington, Ontario - Canada! Alison
Hi, I am new to this so I apologise if I am not writing in the correct forum. I already have a post in the SAH part. I am a 22 year old non smoking female. Looking for some advice from people who have experienced Permiesencephalic Sah ?? I have recently been to A&E for a severe headache, it started off as a bad migraine. I thought nothing of it as I had a cold and thought it was turning into the flu, I could not walk or bare any light I had pins and needles in my left leg and they would often feel weak. - diagnosis was sinusitis on my left side. However, a consultant noticed something on the CT scan and believe it to be a SAH on my right side. I have been referred to a neurologist and am waiting for an appointment to become available. I have been left in the dark, so to speak, with regards to what is happening and what will happen when I see the neurologist. It's on my right temporal area and I still get pressure headaches and sensitivity to light on the odd occasion, I have also become a bit ditsy and forgetful and zone out a lot. If anyone could tell me what to expect, or what could happen I would appreciate it. Would I be put on tablets? Is this very serious? Do I need an op? Can I travel abroad? Can I have a baby? Is this bleeding on the brain or an aneurysm? The letter from hospital stated this word for word, if anyone could shed some light as to what this means? Subtle areas of linear high density are demonstrated in the right temporal parietal region and could represent a small volume of SAH. Extensive inflammatory changes are demonstrated involving the left ethmodial sinus left sphenoid sinus and the maxillary antrum. GP to arrange urgent neurology appointment for SAH My first visit to a&e was on the 19th December, I was given antibiotics for sinusitis.
Hello all: I had a NASAH almost a year ago on November 13, 2014. Like many others I had the quick onset of a brutal headache like nothing I had ever had before. Having suffered migraines in the past I knew that this was different. And bad. It felt like my skull was being pulled down into my shoulders and the back of my head felt like it was on fire. An ice pack did nothing but aggravate me and Tylenol 3 didn't even touch it. I had my daughter drive me to the Emergency Room at Lethbridge Regional Hospital. By this time I was slurring my words, what words I could actually get out. I had a hard time concentrating and wasn't able to form sentences. An experienced ER doctor recognized immediately what was wrong and got me straight in to a CT scan which revealed the bleed. It was determined that it was too cold that night for STARS so they put me in an ambulance and within 3 hours of my initial onset I was in Calgary Regional Hospital in the Neuro Sciences ward. There I underwent another CT-A scan, An MRI, an Angiogram and an ultrasound. They couldn't find the source of the bleed and determined that it must have burst and then immediately sealed itself off. I was very lucky in that I required no surgery. The headaches that followed have ranged just like the neurosurgeon said they would. "Your headaches will vary in Location, Duration and Intensity for anywhere from 6 to 18 months" I've experienced the feeling of ants crawling around up there to the feeling of a rusty axe embedded in the back of my skull. I've felt like my brain was a fat guy wearing spandex that was too small to the vice clamping down on my temples. Along with a myriad of other feelings that are just too long to list. I returned to work after 3 months on a graduated return to work but was unable to keep up the pace. I went back on long term disability for another 3 months and went through exhaustive rehabilitation therapy. Physical, mental and emotional therapy ensued until now I'm doing another graduated return to work. I'm now on 6 hour days 3 days a week. It seems to be working but I'm only at the half way point so we will see how it goes. The headaches have evolved to mostly tight pressure headaches and the occasional axe to the back of the head feeling. I still struggle emotionally. I have a very hard time dealing with stress in any form. It causes more headaches and I just lock up and shut down. I can't think and can't even function. Most times I just have to walk away. My short term memory is pretty much shot. Its kind of like throwing Jello at the wall. Some of it sticks... most of it doesn't. I've found a LOT of help already in the forums here and offer any help I can to others going through the same thing. Feel free to message me if you have questions. I'm a pretty open book and can talk openly about most anything. Good luck to all Frank
3 months ago I was at the gym when I had my SAH. I don't remember much being in the hospital for 2 1/2 weeks, but I remember having the SAH. I didn't have an aneurysm though. It just bled, as I was told by my doctor, from the base of my brain. My recovery has been pretty good, but unfortunately I did have to have a shunt put in. To be honest, this pretty much terrifies me if the shunt malfunctions. Maybe I'm overreacting, but what happens to one when the shunt malfunctions? Will I have enough time to get to the hospital? I've looked into getting a Endoscopic Third Ventriculostomy. I'm going to an appointment next week and going to ask the doctor if I'm a candidate for that surgery. Anyway, does having a shunt terrify anyone else here other than me? Paul.