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SAH/Stroke Date

Found 2 results

  1. Hi there, I'm new to this forum. Initially I wasn't going to look too much into sah recovery, since I didn't want to cause anxiety or fears about what to expect. I know we're all different & I've reached a point where I just need to ask other sah 'recoverers' this question.... Have any others found that, since the bleed, neck & shoulder muscles spasm or ache, a lot? I had a coil fitted on the 18th feb this year (2014) & things have been tedious as I'm sure many of you will be aware. However, I've been making strides as much as I can, initially coming off as many of the medications as possible, which has helped me a lot. One of the things that has been the most trouble for me has been the relentless onslaught of neck/shoulder issues, which I never had before. To begin with I actually thought it was one of the meds, so I came off it. There was an improvement for me, but I'm constantly plagued with this neck issue & feel that it must be related to the sah? (Central nervous system and wotnot) I've never been so ergonomic in my life, trying all sorts of things to try & help it! I've also had a constant issue with a "headache" (but its not really like a headache as I'd have known a headache before the sah) that starts in the neck - especially if my head is very slightly down. (Again, I'm suspicious of it being a muscular issue) At this point, I suppose I just want to find out if others have experienced this? I've yet to go for my follow up scan since I got lost in the system & accidentally discharged. My gp sent a letter & I need to chase it up. My reason for delaying is because travelling in a car brings on something I can't even describe, it's a very very weird sensation that starts, I think, where the brain stem begins in the back & travels up into the head. It has improved somewhat over the last month or so, but I have a bit of a fear of it! I feel certain it will go but I'm not sure why I feel so sure of this. (Hopefully intuition & not wishful thinking). I did do a search for muscles, but haven't found any similar experiences from others stories? I hope all who've posted & read are constantly improving. I met a lady a few weeks ago who had a sah over a decade ago, she was a wonderful person for me to meet right now because after about 1+yr, she felt more or less normal and pretty good. She said that in the years since it happened, she is BETTER than she was before the sah because the recovery made her make a lot of good changes! She goes mountain climbing & kayaking & is a true picture of health & vitality! I just thought I'd add that in at the end, since I found it helpful & encouraging.
  2. I am just wondering, now that I am 2 1/2 years post SAH, and still suffering from dizziness/vertigo, and constant head/neck pain and pressure (I have other medical conditions), if anyone else has this. Although my medications list "dizziness" as a side effect, I have forgotten to take my noon dose of Gabapentin (Neurontin) Zanaflex and Topiramate on many occasions and noticed that my dizziness/vertigo yet worsens within 2 hours of a missed dose. Does anyone else feel constant head pressure and dizziness, despite medications? Even taking Vicoprofen (7.5 hydrocodone/200 mg. Ibuprofen) does not take the head pain/pressure totally away). I have to pretty much knock myself out with meds to sleep at night, taking Klonopin and Zanaflex. The pain at "dose" time, 5:30 a.m., awakes me. Has anyone been approved for Social Security Disability following SAH? I cannot perform any kind of work with this constant head pain. I was a paralegal for 35 years, which requires a lot of sitting. I had my appeal hearing yesterday and the occupational expert stated I could do work such as assembling small parts or being a mail sorter, although I also suffer from bi-later carpel tunnel syndrome (constant, throbbing hand/forearm pain). The constant head pain is agonizing, and I do not know how they think I could be standing to be a mail sorter when I have arthritis in my feet/ankles. I have had injections in them also. My attorney did raise the point -- would any employer want to take the risk of me being there on all of the medications I take? I am literally miserable and enjoy very few things in life that I used to do. Friends have all backed away from me, I guess because I can no longer do things I used to do and I am no longer as fun to be around. So, I do things alone like walk my dog, despite my foot pain, as that is about all I can do to not think about the pain. True, I do sit at this computer and type, but my hands are in horrible pain that keeps me awake at night. I wear hand braces on both hands to sleep but often take them off in frustration because the Velcro tangles in the sheets when I toss and turn. Your input is greatly appreciated !
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