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Found 6 results

  1. Hello, I survived a SAH which occurred almost 4 years ago. About a month prior to the SAH, apparently I had a sentinel bleed which doctors did not detect. I was out running early one morning when I went into cardiac arrest and collapsed. I spent 6 days in a medically induced coma as cardiologists tried to figure out what caused the arrest. No one checked my head. When I woke up in ICU, I had a constant awful (worst ever) headache, at times I had double vision and there was a whooshing sound in my head every time my heart would beat. When an MRI was done on my brain eight days after the arrest, nothing remarkable was seen. No one did a lumbar puncture to look for blood in my spinal fluid. I was given an implantable cardiac device in my chest and sent home. I was told that there was no apparent cause for the arrest. Two weeks later I had the SAH and had to have an endovascular coil. It has been a struggle. Many days I feel a bit like Alice in Wonderland. Although cognitive testing indicates that I have some auditory ADD issues (while on meds for ADD, started after the SAH ), there is a huge difference in how my brain works now. If life were only like that dimly lit, quiet room where I was asked to do one task at a time then I would be successful with day to day responsibilities...... Now I get overwhelmed so easily, many sounds are excruciating, I get so fatigued so quickly. I used to be so organized but now I feel like I am always so scattered. I wish I could make peace with the new brain.
  2. Hi everyone I had an SAH in September 2016, which was coiled. Had my 3month MRI, which was clear.
  3. Hello all, I'm a new member from South Wales, UK. 40y male, don't smoke, fairly fit and healthy diet. I had a NASAH in Dec 2016 whilst out running. I ignored the 'thunderclap' and the vomiting and carried on running, which I now know was very silly. Symptoms worsened until I sought GP help and then to the hospital. After a period of excellent exploratory work on ward T4 at the Heath in Cardiff I returned home. Still very much in the recovery zone but thankfully (so far) have not suffered any major changes to my life as a result. 2 months off sick, sick leave has now run out so I am on phased return at work. My employer has been supportive. I had oromorph briefly and a whole stack of coedine. Thankfully weined myself off about 3 weeks ago. Still suffering mild, random headaches and neck pain, with some tinnitus. Some mild memory issues but it's early days to be determining that as a long term issue. I'm still learning a lot about NASAH and as that knowledge develops so do my emotions, as I learn that things could have been considerably worse. On that front it's been rather a roller-coaster ride, as a father of 2 young children obviously I've been taking stock of my life. Thanks and I'm happy to be a part of a forum that has been helpful to me over the last 2 months or so as I lurked. Daf
  4. Myra

    Myra

    Hey! My name is Myra and I am from Georgia in the US. I have been so thankful I found Behind the Grey! I had a SAH September 22, 2016 while running on the treadmill at the gym. I was stabilized at our ER and then airlifted to Emory in Atlanta. They said I had a non-aneurysm SAH. I spent 10 days in the neuroscience ICU. They didn't really give me any information about SAH recovery at discharge, so this group has been very comforting to me to know I am not alone. I still have headaches daily, sometimes pretty severe ones, and have expressive aphasia and short term memory issues. The doctors say these things will get better with time. I started back to work, for half days, on December 1. I have been pretty fatigued since starting back but love my job and really want to get back to the life I had before. I am a RN. I worked in surgery for 7 years, and just went to work full time at a busy endoscopy center in July, while keeping my OR position at the hospital as well. Starting back to work seemed to push me back in my recovery but I am trying to push through. I just had my follow up cerebral angiogram yesterday. And it was normal! However, I have had a nonstop headache since and my expressive aphasia has worsened again. Has anyone else had any experience with this? Any thoughts are encouraged! Thanks! -Myra
  5. I suffered from a SAH at the end of April of this year and have only recently come to terms with it. I resisted googling or reading about what has happened to me ( as googling any illness normally ends in death, the more you look ) but over the past couple of weeks have done more research, including finding this site. I am a mid forties male and have had no real health problems before, other than knee surgery years ago. My SAH manifested at home, having stood up from being on a chair I felt a really weird and odd pressure behind my nose, so odd I walked, albeit very dizzily, to get my phone and called an ambulance. During the phone call the neck and head pain had started and by the time that the ambulance arrived I'd lost feeling in my right leg. I was admitted to hospital straight away and was in HDU for three days, none of which I remember, before surgery and coils being inserted into the aneurysm. I came out of hospital two weeks later and about two stone lighter, feeling very nervous, but very lucky to be alive. I've read about people feeling agitated, nervous, panicked etc etc and despite my previous role as a successful, indestructible bloke, I completely get it. I've only recently felt more comfortable being anywhere on my own, even taking my dog for a walk, due to what appears to be psychology rather than anything physical. Any feeling of pressure or dizziness brought, and still brings to some extent, fear of a recurrence. It appears that as time goes on though that these "echoes" of memory of what happened ease with the passing of time. Like others I appear to have memory losses, and some weird ones, like people's names, situations that people mention that I cannot recall and yesterday I could not remember what celery was called !! My wife, who has been my hero and all round superstar helps out in these situations on the whole so I don't embarrass myself too much. I have found that my temper has become very quick to present itself and I am even less tolerant than I was before but trying hard to work on this for my wife and three boys sake !! I mentioned that I felt lucky before. When I've told other people this I get the odd raised eyebrow. I feel lucky to be here still and feel lucky that I have chance to press the reset button on a few things that I had ignored pre SAH. Most of all I feel lucky to have the family and friends I have and am totally and utterly grateful to them for being so supportive. Like others I suppose, I do feel like my invincibility cloak has now been totally removed and I have experienced what it might just feel like to be near the end. This has changed my outlook on life, for the better on the most part. Good luck to all !! N
  6. Hello my name is Sam. I had a SAH on 25th April 2014, I spent 4 wks in ICU Dereford Plymouth and a further 9 wks in a neuro ward. My aneurysm was coiled and I have been fitted with a VP shunt. Although it has been nearly a year, I still suffer with fatigue, trouble sleeping, not very confident in social enviroments. Contemplating in returning to work next month. I am so pleased to find this site as it can be so lonely sometimes, although you have family surrounding you you still feel on your own. There are so many questions i would like answered, so I will look forward in getting to know and learning more about SAH.
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