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Showing results for tags 'non anuerism sub arachnoid hemmorhage'.
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I am very grateful to have found this forum. The stories that so many survivors and carers have shared has educated me so much. I have worked with people with disability for 25 years, I had never heard of a sub arachnoid hemorrhage. My husband had a non aneurism sub arachnoid bleed on 20th May 2019. He knew immediately he needed emergency medical help. We live in western New South Wales, Australia, in a small country town. So many stars aligned that night: the one local ambulance was available and came immediately; the local GP at the hospital suspected the diagnosis quickly and hubby was transferred by ambulance to a bigger regional hospital 90 minutes away for a CT scan (no CT available locally after hours); the bleed was located on the CT and the diagnosis given but there was no MRI machine or specialist neurology care so plans were made to transfer him by the Royal Flying Doctors service to the Neurology ICU at Royal Prince Alfred Hospital in Sydney (600km away); I flew ahead to meet him there only to arrive in Sydney and receive a message from my husband that the doctor on day shift had cancelled the transfer and didn't see why my husband should require specialist Neurology ICU!!! The doctor didn't bother to call me himself. There ensued a very frantic (and tearful) 4 hours of phone calls to advocate to overturn the doctor's decision. I won, and my husband arrived within hours. He spent 16 days in Neurology ICU. Words cannot do justice to the surgeons and nurses who cared for him. Hubby had angiogram with CT twice (he reports the second was excruciatingly painful and traumatic), developed hydrocephalus day 3 and had MRI and emergency surgery to drain fluid (no permanent shunt though). He had Nomidipene for 23 days, Endone and paracetamol for pain, sodium, magnesium and potassium intravenous fluids, had a catheter for 24 days ..,... I can't remember everything now. Poor darling developed major complications with enlarged prostate and endured 2 attempts to remove and reinsert catheter (not related to NASAH, but poor timing!!). He spent 3 days on the ward and was flown back to our local hospital before coming home, then being readmitted because of fever and infection so had IV antibiotics. He's been home 5 days now. I know it is very early days for him, for us. So far he has retained full strength, speech, cognition and memory ( other than when hydrocephalus set in). He has good days that are relatively low pain, and days of high pain where he cant move or function. I am amazed and astonished at his strength, patience, and non complaining acceptance. We are a very close and loving couple, we will tackle what comes together. But oh my god, the suffering and cruelty of SAH is something unbelievable. Thanks for reading.