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Showing results for tags 'perimesencephalic'.
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Hello everyone, I am so happy to have found this place!! I have felt totally alone with this for the last year and a half, and put a lot of pressure on myself to just get back to normal. I had my perimesencephalic subarachnoid haemorrhage in May 2017, and then developed hydrocephalus, so had an EVD in for 8 days. I was in hospital for a total of 11 days, and went back to full time, energetic work in the September. Now I can see it was way too early, but all I could find at the time online about this type of haemorrhage was that the prognosis was really good. I didn't see any stories from other people. Now I would love to talk to other people who have had the same thing - to hear their story and about how they recovered; to compare and contrast basically. Have you had a perimesencephalic subarachnoid too, ideally someone who also had the EVD? Please let me know, I would so appreciate to hear how the journey has been for you. Thank you, Ruth
Hi everyone, It took me 18 months to find this forum, and all I wanted, before then, was to read other people's stories, so I decided to write mine. I have done it all as a blog on wordpress. It's my 2 year anniversary today and I'll be posting a new blog every day or so for the next week. Would love to hear from you, and hopefully it will help someone else to read about my story. Spoiler alert - I'm pretty good these days, 2 years on. I got off lightly. Here is the link to my first blog post: Https://asmallbleedonthebrain.home.blog