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Found 6 results

  1. Hello everyone, I am so happy to have found this place!! I have felt totally alone with this for the last year and a half, and put a lot of pressure on myself to just get back to normal. I had my perimesencephalic subarachnoid haemorrhage in May 2017, and then developed hydrocephalus, so had an EVD in for 8 days. I was in hospital for a total of 11 days, and went back to full time, energetic work in the September. Now I can see it was way too early, but all I could find at the time online about this type of haemorrhage was that the prognosis was really good. I didn't see any storie
  2. Hi, wondering if anyone can just help settle our worries a little bit. I know every case is different would be great to hear what other people went through watching a loved one during recovery. 2 weeks ago my Dad (aged 51) suffered a very large SAH. The last 2 weeks have been such a rollercoaster from the point where we were sat in room with a doctor telling us there was nothing they could do as he was not responding, to the doctor coming back in saying scrap that, he has just started responding. He has been in Neuro critical care and the staff have been
  3. Hi, all. My name is Jade, & I am new to all this, so please bear with me if I'm not doing this correctly. So, here is the background of the situation that brings me here: Right now, my boyfriend & the love of my life (his name is Todd, & he is 45) is in the ICU at a hospital 2 1/2 hours away from me. He suffered an SAH on Sunday, April 10, in the evening, while he was in the shower. I did not know what had happened until the next day (Monday) evening, when I called him after work & he told me he felt very sick (had gotten awful headache, vomited, had neck pain, etc.), & h
  4. Hi there, My mum is 48 and had a SAH on the 19th of March 2014. She had the coil operation on the 20th of March and was discharged from hospital on Monday the 7th of April. Whilst in hospital my mum also had vasospasm, seizures and hydrocephalus. A lumbar drain was used to deal with the hydrocephalus and she is on keppra 500mg for the seizures. I was so pleased to have mum home and have been doing my best to look after her but she has had a constant sore head since she's been home. She tells me that the pain isn't getting worse but some days she can barely do anything apart from sleep or h
  5. I haven't been around here for a very, very long time. Life with children (13 years and 4 years old as of today), family and all the rest is a busy thing. I just got a pm from someone 9 months post-SAH, looking for info about my experience. I responded, then I remembered how incredibly helpful and useful BTG was for me in my first weeks post-SAH. The doctors told me I was fine. I knew I wasn't "fine". But it took me a while to realized that what they meant was there was nothing they could do for me. Thank goodness I finally found BTG and all the helpful folks here. So, I figure by posting
  6. Please go easy, this is my first post, might be in the wrong section, sorry if it is, might offend some, sorry if it does, no intention to, just need some help, I am wanting to know how other people with SAH Haemorrhage are suffering, I want to know if what is happening to me is normal. Mobility Issues (starting to get worse) Leg Pains Left hand shakes a lot Body Convulsions Depression Headaches General pain Hearing Stuff Seeing Stuff Smelling Stuff Throwing Drinks over myself(or food) Incontinence at times (Urinaly) through not being able to get there on time I spoke to my doctor
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