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SAH/Stroke Date

Found 22 results

  1. I had SAH with coiling and EVD 11 weeks ago. How long before I should get a follow up appointment? My GP says I should have one as does my contact from the Stroke Association and someone at Headway. I still have back pain although it’s not as bad as it was. What’s worrying me more and more are the auras. They are getting more frequent around 3 times a week. My GP knows about them and says to ring for a follow up hospital appointment. I keep trying but all I get is an answerphone and I leave a message but no appointment materialises. At a bit of a loss to kno
  2. Hi, I'm new to the site. I had my SAH end of May this year. I've been reading your blogs over the past months, whilst in my recovery, which have been a great comfort to me knowing that i'm not on my own. I has a Spontanious SAH, the paramedics came after 2 hours, missed every red flag, took me to hospital, saying I was over reacting and just had a headache. Was left for a further 5 hours, was only given Ibruprofen. My daughter said it was so upsetting to see me so ill. When the doctor decided to look at me and send me for a CT scan, all hell broke out. My daughter said they we
  3. @weedrea shared these great links this week and thought it worth making more known in forum the news of young actress Emilia Clark sharing account of her SAH and now founding a charity to help rehab for younger folk impacted by this. She has had a large bleed and lasting effects but 8 yrs on has talked for the first time about this. https://news.sky.com/story/game-of-thrones-star-emilia-clarke-almost-died-from-stroke-after-first-series-11672030 https://www.thedailybeast.com/emilia-clarke-game-of-thrones-star-reveals-she-had-2-aneurysms "Clarke's decision to
  4. When I was back in hospital in 2012 I was pretty destroyed if I am honest. I had my grade 4 event, grand mal seizures, acquired hydrocephalus , EVD surgery, coiling surgery and , endured the weeks of intensive care, of hospital stay. It was a long 7 weeks before I was allowed home and then when I did get go to home I could do nothing. I had sitters, I couldn't Cook, wash, sleep normally, let alone do any of the grown up things like look after my young girls or cook, work, or drive. I was 39 years old. But I tried to start putting the pieces back together but three months afterwa
  5. It has been almost three years now since my SAH, and I feel that I have come quite a long way in my recovery. Fatigue is still a problem, but it’s slowly getting better, or maybe I am just getting better at adjusting my pace. I have recently been able to exercise more without having to rest up too much afterwards, which has been very helpful. Yesterday I had my first angiogram in two years, and this has left me so upset and emotional afterwards and I just can’t get back to a positive state of mind. I have had a few angiograms before, so I knew beforehand that it would b
  6. I am 25 years old, and had SAH about 2 months ago. I was in the hospital for almost a month right after the delivery of my second child due to post partum pre-eclampsia followed by a SAH. I had the really bad headache for about 3 weeks that needed to be control with pain medication afterwards. Today I only feel a constant mild headache and my blurred vision got a lot better. Every day I just kept on wishing that all this go away fast, I thought I was fine and I was getting better until I started feeling very mild but weird pains in my head. Sometimes my neck feels a l
  7. Hello, I had a non-aneurysm SAH almost 5 months ago on 20th May 2019. I spent 16 days in ICU plus another week in the ward before returning home to continue my recovery. On the third day after my bleed I developed Hydrocephalus and had surgery to insert a temporary "brain drain" which stayed in place for 13 days draining excess fluid from my brain. There were a few other little complications (vasospasm, collapsed lungs etc) along the way but I won't go into all that now. My wife joined this forum shortly after I returned home. She shared her experience on the forum of
  8. My partner had his bleed on 7th Sept. he had his operation and had 2 aneurysms coiled on the 9th. He was then discharged from hospital on 18th. since being home he has suffered pains in his lower back,buttocks and legs but the paracetamol has not helped. More recently he has been using heat pads and a hot water bottle which has eased it a little but now he feels the headaches more. He can’t take Codeine as it makes him feel really ill, on top of this he now has a cold. He rarely sleeps for more than 3-4 hours in a day and onl
  9. Hi I am so proud, some of you may remember my daughter, Rebecca, had a SAH 4 1/2 years ago at the of 17; she has struggled throughout this time but was determined her SAH would not stop her from doing what she wanted. On Friday it was confirmed she has achieved a 1st class honours degree in psychology! I am amazed at her hard work and dedication, she deserves every happiness in this world. Her university days have not been what most would expect, her fatigue has prohibited her from taking part in extra curricular activities, but she has got through. Sh
  10. Hi all, I am new to the forum so a big hello to everyone. A short introduction - my SAH (grade 1A, blister aneurysm) in mid Dec 2018 surprised docs and nurses given my age (mid 30s) and clean medical history. Having stayed in HDU for a week or so, I moved to the neurological ward for about two weeks before returning home with some general weakness and eye sight problems, but no major physical difficulties. Similar to simonk, https://web.behindthegray.net/topic/7261-coming-up-to-1-year-post-sah/?tab=comments#comment-130884 Personally I feel quite good a
  11. Hello, this is Cassandra's husband, Neil. Cassandra's journey of recovery went very pear shaped but she is back on the road to recovery now hopefully. It's been a year since her last brain operation - the sixth in a series between December 2016 and January 2018, all needed to either revise her VP shunt or do some surgery on or around her fourth ventricle. Regrettably, the last two operations left her with significant damage to the 4th, 6th and 7th cranial nerves which has resulted in a range of debilitating deficits. One of the worst is dysphagia, meaning she has a lot
  12. Hi, I just wanted to briefly say where I am 1 1/2 yrs out. What made me think of it is, I spoke with nurses who have known and worked with me forever and this is what THEY see. Firstly, i am happy and doing great. I am working almost full time.But again, it is best to let Others tell you how you are, because like most men, I am in some denial and want to push forward. Here goes: 1)I am more laid back about life. This has been the best gift of this thing. I fly and visit family, play golf, run, and dont work so hard. My ICU doc told me all young people he sees with this
  13. Hi all How many in this group are medical professionals? My question is Are there any particular problems faced by doctors with SAH when returning back to work? I am a neonatologist, a baby doctor. I don't seem to remember faces of patients who I met for the first time, in the time period of about 4 to 5 months prior to SAH. My memory was excellent earlier.
  14. Once of the most distressing things for me post SAH was my ability to cope with cognitive demand and sensory overload. It was painful. In time that’s passed since, 7yrs, I have learnt more about my triggers but also how to pace and rest in ways that’s right for me but I still know flooding can and does happen. I still wear sunglasses and earplugs on many occasions and still alway carry them. lots of people come to site and struggle with the sensations and how this feels And I think this is a great education video that explains it credit to Northern Brain Injury Association
  15. I’m not sure if this is entirely normal and if others have experienced it but for the last 6 months at least my fatigue seems to be getting worse and worse particularly in my legs where they feel tired as soon as I get to work and they ache constantly throughout the day. I’m just a few days away from my 2nd SAH anniversary and I’m concerned thats not getting any better. I work 12 shifts and I worry that this is to blame for it. Any advice would be gratefully appreciated.
  16. Hello all Has anyone had trouble bringing their knee up while standing after SAH and endovascular coiling surgery? I had terrible bruising 'down there' after my surgery that took over 2 months to clear up but I'm now left with a lazy right leg (the side they went into the femoral artery) and I can't lift my knee to a right angle or higher now. I reckon the the surgeon would have had to push past my hip flexor muscles and tendons during the op and that I have been left with a leg I can't use properly anymore. I have big problems climbing deep steps and have to lift my
  17. Hello, i had a SAH, when i was in a serious car accident. I hit my head on the dash very hard. I have noticed a huge difference in myself after this event. My emotions are very hard to control and hide. I asked a doctor what i could do to help myself. He said the damage was done and irreversible. I find it difficult to have friendships, my marriage is suffering and I don't know how to change back into who I was before that car accident. I hit the frontal lobe part of my brain, and it caused the bleeding. I feel blessed to be alive, but i also miss my old self. I'm wondering what I
  18. Hi had ruptured SAH and craniotomy cerebellum 10 months ago. Horrible headaches much better these days but still have dizziness and head fullness everyday in last 2 days started getting aura like feeling on left near eye where looks like string or other object is there and can grab it no pain but like 3D sensation is this something normal? thanks Laura
  19. There seems to be some links with SAH and heart issues - so my poll is just to see how many of us later go on to develop heart related issues. I had my SAH 5 years ago with complications of hydrocephalus and I'm currently being checked out for heart issues - the symptoms of which I only really started to notice a year or two after my SAH Thank you for taking part in my survey! Snootybutnice x
  20. Hi everyone I call myself Aussie cause that's where I live - Brisbane Qld. My name is Sue, I had an SAH on the 3/12/2017, thought this was the day I was going to die, I can't believe there is a pain worse than child birth . I had been on Nimotop tablets since the first day of my bleed. The angiogram showed I had vascular restriction, but that is now all clear and yesterday was my first day with no medication. As I slowly reduced the Nimotop I started to get headaches again and obviously lots of fear, but after reading through this site you all gave me the confidence I needed to kn
  21. Hi there, I'm new to this forum. Initially I wasn't going to look too much into sah recovery, since I didn't want to cause anxiety or fears about what to expect. I know we're all different & I've reached a point where I just need to ask other sah 'recoverers' this question.... Have any others found that, since the bleed, neck & shoulder muscles spasm or ache, a lot? I had a coil fitted on the 18th feb this year (2014) & things have been tedious as I'm sure many of you will be aware. However, I've been making strides as much as I can, initially coming off as many of the
  22. Hello everyone, first of all, I want to apologize for the faults you will see in the text, I'm from France, but it's the only website where I can find answers. My name is Alex and I'm 28 years old. On october 22th, my 22 years old little brother suffered 2 ruptured aneurysm... he was sent very quickly to an hospital, where the doctors healed the bleeding brain by putting spirals inside ( i'm really sorry, I don't know th real term). After 1 week of artifical coma, he woke up very easilly, was able to talk, to see very well, to hear and even to move (on
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