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Found 50 results

  1. Hello, I had a non-aneurysm SAH almost 5 months ago on 20th May 2019. I spent 16 days in ICU plus another week in the ward before returning home to continue my recovery. On the third day after my bleed I developed Hydrocephalus and had surgery to insert a temporary "brain drain" which stayed in place for 13 days draining excess fluid from my brain. There were a few other little complications (vasospasm, collapsed lungs etc) along the way but I won't go into all that now. My wife joined this forum shortly after I returned home. She shared her experience on the forum of what had happened to me and shared with me the responses she got from others on this site. I have found the information and experiences that people have shared with my wife to be very helpful and encouraging so thank you. Three months after the bleed I returned to the hospital for an MRI and a review with the neurosurgeon team. They were happy with my recovery and were reassuring but did tell me that the MRI showed I had enlarged ventricles or larger than normal ventricles. They were not particularly concerned about this as they said they could be normal size for me but if I showed signs of altered cognitive functioning then I should seek urgent medical attention for Hydrocephalus. I have a question which I am sure has been asked many times on this forum but I will ask again specific to my concern. I had bad headaches for several weeks after the SAH which I took paracetamol for. Over time the headaches reduced rarely requiring pain relief. Five months later I still constantly have a very dull headache, I describe it as feeling thick. If I bend over or squat I get pain in the head especially if I have been active and tired. I spent several weeks after my SAH just convalescing, walking to the back yard to pat the dogs was my first big outing. I have gradually increased my activity over time. Now I physically feel as if I can do anything as normal but if I do exert myself physically I get increased headaches and fatigue which last for several days. For example, three weeks ago I did a couple of days gardening which involved mowing lawns, trimming hedges. This resulted in bad headaches and fatigue and I needed to rest up to recover. More recently I shared the driving with my wife on a long distance holiday. Prior to SAH I could drive long distance i.e. 500-800 kms in a day with normal fatigue safety breaks without any ill effect. However, after 2 days of driving about 500 km each day I have had bad headache and fatigue which has taken three days to ease with help from paracetamol and daily sleeps. I am finding difficulty in working out the balance of what I can do or how much I can do. My concern is that if I overdo it I will delay my full recovery. So my question is; if I work, drive or do activity which causes me to be fatigued and have increased headaches is this likely to delay my full recovery if there is such a thing? This question is important to me because I am a locomotive driver. I am currently not allowed to drive a locomotive until at least 6 months after the SAH and not until assessed as fit for work by my employer's medical advisers. I want to make a successful transition back to work so I want to get the balance right in regards to how much I can push myself. How do I figure out what my limits are? Sorry about the long story, but hard to give context and make brief. Any suggestions, advice, opinions are welcome. Thanks again to those who supported and encouraged my wife Veronica. When I was in ICU and very unwell Veronica was amazing and kept a vigil by my side keeping me connected to the earth when at times in seemed so easy to just slip away. I wake up every morning and think "it is great to be alive". Wishing you all the best in your journeys of recovery...
  2. Hi, I'm new to the site. I had my SAH end of May this year. I've been reading your blogs over the past months, whilst in my recovery, which have been a great comfort to me knowing that i'm not on my own. I has a Spontanious SAH, the paramedics came after 2 hours, missed every red flag, took me to hospital, saying I was over reacting and just had a headache. Was left for a further 5 hours, was only given Ibruprofen. My daughter said it was so upsetting to see me so ill. When the doctor decided to look at me and send me for a CT scan, all hell broke out. My daughter said they were pumping me with morphine and said I was being blue lighted to the Queens Medical Hospital Neuro unit, where I was placed in ICU After my SAH, I also developed Menengitis, to be honest I don't recall much of what happened, was told I was in ICU for 4 days until stable and was in hospital for 3 weeks. I really did feel like I had been away somewhere, it was like i'd been on another planet and had to relearn everything I took for granted. I had experienced sensory problems, hypersensitivity with hearing, photophobia and had lost the sense of smell and taste. This has slowly started to resume, leaving me with hypersensitive hearing and sensory overload, which makes me feel quite sick and disorientated at times. After the first 9 weeks I started getting different pains developing in my feet, then my hands and now it's also gone into my elbows too. The pain is like a burning sensation, my hands and feet swell and get sore and stiffen when resting. I find the mornings and evenings the worst. I'm also finding that my hands are starting to lock when I try to open and close my hands. I've been put into Pregablin 600mg whuch has eased the symptoms a little. I'm worried that these symptoms are here to stay. I know I am still very early into my recovery. I still get the weird sensations of cold running water in my brain and still have lapses of concentration, with fatique. But has anyone else had this pain develop in their hands and feet. My doctor thinks it could be central post stroke pain. Could anyone give me advise about this or share their experience, I would very much appreciate any support or advise please. Warm Regards Bev x
  3. My partner had his bleed on 7th Sept. he had his operation and had 2 aneurysms coiled on the 9th. He was then discharged from hospital on 18th. since being home he has suffered pains in his lower back,buttocks and legs but the paracetamol has not helped. More recently he has been using heat pads and a hot water bottle which has eased it a little but now he feels the headaches more. He can’t take Codeine as it makes him feel really ill, on top of this he now has a cold. He rarely sleeps for more than 3-4 hours in a day and only after he has taken his daily Asprin. We are hoping to be able to see our GP tomorrow but does anyone know of anything more that he could be doing to help with the pain/lack of sleep ?
  4. Hi I am so proud, some of you may remember my daughter, Rebecca, had a SAH 4 1/2 years ago at the of 17; she has struggled throughout this time but was determined her SAH would not stop her from doing what she wanted. On Friday it was confirmed she has achieved a 1st class honours degree in psychology! I am amazed at her hard work and dedication, she deserves every happiness in this world. Her university days have not been what most would expect, her fatigue has prohibited her from taking part in extra curricular activities, but she has got through. She has studied hard but still had a wonderful experience. She manages her lifestyle to suit her needs and doesn't let it get her down. Yes, she has regular counselling and attends support group every month; but she is a happy and confident young lady. She starts a new job in couple of weeks, at the RVI, the hospital that saved her life - a new chapter in her life and hopefully the start of a fulfilling career doing something she loves. Heather x
  5. Hi all, I am new to the forum so a big hello to everyone. A short introduction - my SAH (grade 1A, blister aneurysm) in mid Dec 2018 surprised docs and nurses given my age (mid 30s) and clean medical history. Having stayed in HDU for a week or so, I moved to the neurological ward for about two weeks before returning home with some general weakness and eye sight problems, but no major physical difficulties. Similar to simonk, https://web.behindthegray.net/topic/7261-coming-up-to-1-year-post-sah/?tab=comments#comment-130884 Personally I feel quite good about my physical recovery so far (limited headaches and dizziness, sight much improved), but family and friends insist that I need longer to recuperate. Having gone through some of the posts here, I definitely understand the need to take it slow and for phased return to work as far as possible. Unfortunately, it would be difficult to arrange shorter hours due to my job nature, so I am afraid it is all-or-nothing in terms of resuming work. So my question is this - do you have any experience with jumping back into full time fast paced positions about 2-3 months post SAH? If so, how did you cope? My main worry is that my seemingly good recovery and conditions are largely due to the ample amount of rest I have at home now, and yet I could not truly test out my progress unless I am in my old "normal" high pressure circumstances again. Thank you in advance. Any thoughts or sharing would be greatly appreciated! caw
  6. Hello, this is Cassandra's husband, Neil. Cassandra's journey of recovery went very pear shaped but she is back on the road to recovery now hopefully. It's been a year since her last brain operation - the sixth in a series between December 2016 and January 2018, all needed to either revise her VP shunt or do some surgery on or around her fourth ventricle. Regrettably, the last two operations left her with significant damage to the 4th, 6th and 7th cranial nerves which has resulted in a range of debilitating deficits. One of the worst is dysphagia, meaning she has a lot of trouble eating, chewing, swallowing, speaking etc. This has led to medical anorexia and the need for her to move to a tube-fed regime. She also has diplopia, which gives her permanent cross-eyed double vision, so its impossible for her to read, watch television, use a computer etc. Which is why I'm writing on her behalf. Anyway, it's been 3.5 years since her SAH, and I feel that her hydrocephalus is now being managed with a twin-catheter shunt which can be adjusted externally. Now she just needs to get back to 55+ kg after hitting 41kg, and have the strength and energy to pick up her various therapies and get back to some normality! Love to all of you dealing with your own challenges!
  7. Hi, I just wanted to briefly say where I am 1 1/2 yrs out. What made me think of it is, I spoke with nurses who have known and worked with me forever and this is what THEY see. Firstly, i am happy and doing great. I am working almost full time.But again, it is best to let Others tell you how you are, because like most men, I am in some denial and want to push forward. Here goes: 1)I am more laid back about life. This has been the best gift of this thing. I fly and visit family, play golf, run, and dont work so hard. My ICU doc told me all young people he sees with this are uptight workaholics and that was me. I was kind of a miserable workaholic before and not now. YEAH!!! Thank you!!! 2)I cannot learn some things. I read a lot and am learning spanish. Why???? Bcz i am trying to prove I can do it. But the other night, i went to a salsa class and just could NOT learn it. 4 steps, could not do 4 steps. I can learn on my own (ie:learning spanish) but if someone verbally shows me, i can not learn it. simple things.Frustrating. 3)this is funny, but i put things in particular places and they MUST be there or I get angry. This is all after the bleed. I had a rentacar the other day. And immediately after getting in, I rearrange everything to where it "lives" in my home car. Things must live in their place!!!I have some fear of losing things. My mind cannot remember where i put it. So i always put it one place only. When parking the car I always park in same spot. Each place i go has one spot. Or else i will never find the car. 4)I am more adhd now. So say my coworkers. "we have to keep you on track" they say. 5)my emotions go up and down. This is a tough one, because I do stupid things and people blame me. I think the emotion center of my brain was damaged. This causes me trouble because noone wants a doctor with emotion issues, right?? 6)I meet people, then remeet them. Funny. 7)I repeat myself a lot. This annoys people. They tell me all the time. "you already told me that". I get that a lot. (just reading this post, i noticed i have repeated the "learning spanish" thing 4 x already, jeeeeesh!) 8)My short term memory is TERRIBLE. What were we talking about??? Just kidding. But seriously, if i am in a restaurant and get up to grab a fork, half way there I have no idea what I went there for. So I say to myself "fork,fork , fork, fork" and then the person near me says "what did you say??" And i say "fork". And they say "why are you saying fork?" It is daily comedy in my life. 9)I have eliminated toxic people from my life. Another gift of this experience. I used to be polite to them out of politeness. No longer. They have been deleted. I also remember , very clearly, who came out of the woodwork to help me through this crazy ordeal, and I remember very clearly who abandoned me and pretty much left me to die. My deficits are comical to me. They show something of how the mind works. I can memorize the past preterite tense of spanish of an irregular verb, BUT cannot remember where the car is! I have strengthened my relationship God thru this ordeal and thank Him every day for my recovery and new life!! I am probably more glad that im not paralyzed then dead. I was very lucky to be alive, not paralyzed, back to work. So you will never hear me complain about my deficits. To me, they are comedy. I thank God every day for my new life!
  8. Hi all How many in this group are medical professionals? My question is Are there any particular problems faced by doctors with SAH when returning back to work? I am a neonatologist, a baby doctor. I don't seem to remember faces of patients who I met for the first time, in the time period of about 4 to 5 months prior to SAH. My memory was excellent earlier.
  9. @weedrea shared these great links this week and thought it worth making more known in forum the news of young actress Emilia Clark sharing account of her SAH and now founding a charity to help rehab for younger folk impacted by this. She has had a large bleed and lasting effects but 8 yrs on has talked for the first time about this. https://news.sky.com/story/game-of-thrones-star-emilia-clarke-almost-died-from-stroke-after-first-series-11672030 https://www.thedailybeast.com/emilia-clarke-game-of-thrones-star-reveals-she-had-2-aneurysms "Clarke's decision to break her silence over her health problems comes as she launches her own charity, SameYou, aimed at supporting young people with brain injuries and helping them to access resources." Also interesting piece in the New Yorker about it. https://www.newyorker.com/culture/personal-history/emilia-clarke-a-battle-for-my-life-brain-aneurysm-surgery-game-of-thrones
  10. Once of the most distressing things for me post SAH was my ability to cope with cognitive demand and sensory overload. It was painful. In time that’s passed since, 7yrs, I have learnt more about my triggers but also how to pace and rest in ways that’s right for me but I still know flooding can and does happen. I still wear sunglasses and earplugs on many occasions and still alway carry them. lots of people come to site and struggle with the sensations and how this feels And I think this is a great education video that explains it credit to Northern Brain Injury Association
  11. I’m not sure if this is entirely normal and if others have experienced it but for the last 6 months at least my fatigue seems to be getting worse and worse particularly in my legs where they feel tired as soon as I get to work and they ache constantly throughout the day. I’m just a few days away from my 2nd SAH anniversary and I’m concerned thats not getting any better. I work 12 shifts and I worry that this is to blame for it. Any advice would be gratefully appreciated.
  12. Hello all Has anyone had trouble bringing their knee up while standing after SAH and endovascular coiling surgery? I had terrible bruising 'down there' after my surgery that took over 2 months to clear up but I'm now left with a lazy right leg (the side they went into the femoral artery) and I can't lift my knee to a right angle or higher now. I reckon the the surgeon would have had to push past my hip flexor muscles and tendons during the op and that I have been left with a leg I can't use properly anymore. I have big problems climbing deep steps and have to lift my leg out of the car with my hands now. Do you think it's the bleed (3 months post ruptured SAH) or the surgery that has caused this problem? My GP doesn't seem interested and I haven't been called back for any checkups since I left hospital. I feel discarded and have been left to sort myself out. I go through stages of feeling low but I talk myself around and meditate but I even find that difficult now and harder to focus on being calm and my breathing exercises. It's as though everything is surreal, nothing is real and that I am in limbo, almost suspended in time. Any views on legs and hips would be fab but I also want to know what others are experiencing as nobody around me can hope to know how I really feel since they haven't been through an SAH. I love my partner and friends and value their support but I can't help feeling that I am now very different but have no idea how to tell them how I feel when I don't know myself! With love Mandy x (rising from the ashes, yet again!)
  13. Hello, i had a SAH, when i was in a serious car accident. I hit my head on the dash very hard. I have noticed a huge difference in myself after this event. My emotions are very hard to control and hide. I asked a doctor what i could do to help myself. He said the damage was done and irreversible. I find it difficult to have friendships, my marriage is suffering and I don't know how to change back into who I was before that car accident. I hit the frontal lobe part of my brain, and it caused the bleeding. I feel blessed to be alive, but i also miss my old self. I'm wondering what I can do. I feel too much and mostly alone.
  14. Hi had ruptured SAH and craniotomy cerebellum 10 months ago. Horrible headaches much better these days but still have dizziness and head fullness everyday in last 2 days started getting aura like feeling on left near eye where looks like string or other object is there and can grab it no pain but like 3D sensation is this something normal? thanks Laura
  15. There seems to be some links with SAH and heart issues - so my poll is just to see how many of us later go on to develop heart related issues. I had my SAH 5 years ago with complications of hydrocephalus and I'm currently being checked out for heart issues - the symptoms of which I only really started to notice a year or two after my SAH Thank you for taking part in my survey! Snootybutnice x
  16. Aussie

    Aussie

    Hi everyone I call myself Aussie cause that's where I live - Brisbane Qld. My name is Sue, I had an SAH on the 3/12/2017, thought this was the day I was going to die, I can't believe there is a pain worse than child birth . I had been on Nimotop tablets since the first day of my bleed. The angiogram showed I had vascular restriction, but that is now all clear and yesterday was my first day with no medication. As I slowly reduced the Nimotop I started to get headaches again and obviously lots of fear, but after reading through this site you all gave me the confidence I needed to know all was ok, my headache experience is perfectly normal, just keep drinking lots of water. I keep telling myself its early days don't be hard on yourself, enjoy the time out. I find gardening a challenge, I cant bend over for to long so I stick to playing with pot plants. These days my husband lifts them up on a table. I look forward to the day my doctor says I can drive again, plus no more headaches and being able to go back to work, I loved my job... thank you all again Aussie
  17. Hi there, I'm new to this forum. Initially I wasn't going to look too much into sah recovery, since I didn't want to cause anxiety or fears about what to expect. I know we're all different & I've reached a point where I just need to ask other sah 'recoverers' this question.... Have any others found that, since the bleed, neck & shoulder muscles spasm or ache, a lot? I had a coil fitted on the 18th feb this year (2014) & things have been tedious as I'm sure many of you will be aware. However, I've been making strides as much as I can, initially coming off as many of the medications as possible, which has helped me a lot. One of the things that has been the most trouble for me has been the relentless onslaught of neck/shoulder issues, which I never had before. To begin with I actually thought it was one of the meds, so I came off it. There was an improvement for me, but I'm constantly plagued with this neck issue & feel that it must be related to the sah? (Central nervous system and wotnot) I've never been so ergonomic in my life, trying all sorts of things to try & help it! I've also had a constant issue with a "headache" (but its not really like a headache as I'd have known a headache before the sah) that starts in the neck - especially if my head is very slightly down. (Again, I'm suspicious of it being a muscular issue) At this point, I suppose I just want to find out if others have experienced this? I've yet to go for my follow up scan since I got lost in the system & accidentally discharged. My gp sent a letter & I need to chase it up. My reason for delaying is because travelling in a car brings on something I can't even describe, it's a very very weird sensation that starts, I think, where the brain stem begins in the back & travels up into the head. It has improved somewhat over the last month or so, but I have a bit of a fear of it! I feel certain it will go but I'm not sure why I feel so sure of this. (Hopefully intuition & not wishful thinking). I did do a search for muscles, but haven't found any similar experiences from others stories? I hope all who've posted & read are constantly improving. I met a lady a few weeks ago who had a sah over a decade ago, she was a wonderful person for me to meet right now because after about 1+yr, she felt more or less normal and pretty good. She said that in the years since it happened, she is BETTER than she was before the sah because the recovery made her make a lot of good changes! She goes mountain climbing & kayaking & is a true picture of health & vitality! I just thought I'd add that in at the end, since I found it helpful & encouraging.
  18. Hello everyone, first of all, I want to apologize for the faults you will see in the text, I'm from France, but it's the only website where I can find answers. My name is Alex and I'm 28 years old. On october 22th, my 22 years old little brother suffered 2 ruptured aneurysm... he was sent very quickly to an hospital, where the doctors healed the bleeding brain by putting spirals inside ( i'm really sorry, I don't know th real term). After 1 week of artifical coma, he woke up very easilly, was able to talk, to see very well, to hear and even to move (only the right side) But, because I have the feeling that there is always something wrong when he gets better, 10 days after, he stil has no short term memory, for example, when somebody leaves his room after a visit, he forgets everything, he can't tell me who came to visit him. I feel really upset and sad. Do you know if there is a chance for him to get better? I know that our lifes will never be the same again, but I really hope that he will be able to get a " independant" life. he's my little brother, the only person that matters to me, since my parents passed away... I don't want answers, I know it's impossible without being a neurosurgeon, but at least, hear about your stories, if anybody has ever been in this type of sitution. Thanks and sorry again for the bad english. see you
  19. Hi, wondering if anyone can just help settle our worries a little bit. I know every case is different would be great to hear what other people went through watching a loved one during recovery. 2 weeks ago my Dad (aged 51) suffered a very large SAH. The last 2 weeks have been such a rollercoaster from the point where we were sat in room with a doctor telling us there was nothing they could do as he was not responding, to the doctor coming back in saying scrap that, he has just started responding. He has been in Neuro critical care and the staff have been absolutely amazing. He recognises us all, he can eat and swallow, his eye sight seems ok as he can read big signs on the ward etc. 2 weeks on he is extremely confused and just rambles on his own little world about random dates. Each day he thinks he is a different country in a different situation. Is this confusion all normal? If we talk directly at him and ask him direct questions his memory is there and he knows the answers. But we just want the normal dad back, not the confused one. Is the confusion and being in your own little world normal and if so how long did it last for other people? Also the surgeons have said they have looked at all jis scans and stuff and stuff and they have decided they do not want to intervene or operate as the risks are too high. They have just said they will continue to monitor and it will take months and months for recovery. Is it normal for people to be untreated? Especially when it's a large bleed? Thank you, just looking for some re-assurance that the confused patient is normal and all part of recovery. Thanks Dotty
  20. The Brain and Spine Organisation publish a good set of literature on SAH which My family was given after my SAH , they run a helpline which I have called in the past and now they are organising their first ever conference solely about 'life after SAH' this November at the National Hospital in London which is where I was lucky enough to be treated. The agenda looks pretty good, I have personally met the Neuro physiologists speaking as they ran 6 group sessions I attended post my pysch testing over a year an a half on to help me develop some techniques to help cope with my cognitive challenges and they were very helpful and run this course throughout the year so will have picked ul a lot of experiences I am sure. It's a full day which might be a little much for any one in early days post bleed but maybe useful for a carer also? Anyway thought I would share. It costs £10 and maybe worth it for anyone within travel distance. http://www.brainandspine.org.uk/life-after-subarachnoid-haemorrhage-conference
  21. Hi, I am posting for a dear friend who has anxiety attacks during which her blood pressure gets high. I am just wondering how common are these anxiety attacks and what is your normal blood pressure after the SAH? How frequently do you get anxiety/panic attacks? Your response will be greatly appreciated.
  22. Hi - I've used Titanium as my 'stage name' as, along with platinum, it's one of the sturdiest metals and that's why it's often used to decorate (aka repair) our brains. Firstly if you're a fellow SAH survivor reading this I want you to pat yourself on the back as the quoted SAH death rates vary from 45% to 80% within a month, combine that with the fact there are only 8-10k cases in the UK every year so some GPs only have one patient during their whole career then I think we're doing well! Especially when people hear you've had a brain haemorrhage they always have a tale of a relative or friend who had one too but they weren't lucky enough to wake up again. I had my first SAH in August 2010 (no headache previous to it) - I was walking on a treadmill at the time so have realised that I shouldn't believe what they say - exercise is actually bad for you! The SAH was clipped and I went through the learning curve pretty quickly as I run my own business so had to be on the ball to pay my staff wages at the end of the month. Part of me wanted to be able to be at home to do a proper recovery but the other part of me knew that I could do that for a long time but going back to work would still exhaust me whenever it happened and by having to use my brain it got it back into the groove quicker. As I was only 38 at the time I knew I was lucky in that youth was on my side. I had my second SAH on Friday 13th (previously my lucky date) in 2015 - again with no headache prior and literally just heading off to work. This time they looked to see if they could coil and they were able to so I avoided having hair like a nest this time. Within 8 weeks afterwards I had a large seizure (again no warning and hadn't had one prior) but fortunately the ambulance arrived quickly and gave me an oxygen fix - since then I've been on Keppra although it's questionable as it delays brain recovery (anti-cholinergic drug). I have had 2 cerebral angiograms since and have refused to have another one moving forward. The last time something happened in my brain that the neurosurgeons haven't heard of before so given the high risk I don't think my brain will entertain it again whilst I'm awake (plus they damaged the femoral nerve artery so it was mega painkillers and unable to walk for a week). They discovered I need more metal in the second SAH by it hasn't grown since the previous CA and I now have a third unruptured aneurysm but we're just leaving it until next year - I've done a comparative on the last 2 CAs and it hasn't grown significantly so it's safer to leave it be methinks. (Especially as I'm reading 'Do No Harm' by Henry Marsh - an insight into the world of neurosurgeons (humorous in some places and a wake-up call in others). So, that's the harbinger of doom part written. Do I lament my misfortune and wrap myself in cotton wool? Absolutely not. Every day when I wake I smile because I've woken up on the right side of the grass; when I'm tired as I've been working on a screen all day then I put music on and do silly dances; I laugh internally when I express my opinions knowing that I don't really have many brain barriers now so that's my get out of jail card; I can't drive so I see and hear the tapestry of life when travelling on public transport and I appreciate everything around me when I'm on foot. I'm not married and I don't have children (as far as I know) - it's just me, myself and I but the three of us seem to be titanium when it comes to coping with these brain hiccups. So, in the grand scheme of things I think I'm actually quite lucky and long may the luck prosper! Sarah SAH August 2010 - clipped; SAH March 2015 - coiled
  23. Please help if you can. Is there anyone on here who has experience in residual aneurysm after subarachnoid haemorrhage with clipping as treatment. My mother had a grade 5 SAH with serious vasospasm and hydrocephalus 3 months ago was in a coma and on life support and told she wouldn't make it! Well she proved everyone wrong and has done amazingly! She was home, (after just a month) and is walking, talking and living fairly independently, with just memory, fatigue and mild confusion issues. However after an angiogram yesterday we have now been told that 3mm of one of her aneurysms have been left behind... We don't know yet what they will do about it or how worried we should be... has anyone had a similar issue? also she was flying to Cyprus for my wedding in August (5 months post SAH as she is well enough in herself for the trip) but now I don't know if this has risks? please help thank you xxx
  24. Hi. New to forum and would like to introduce myself. Had SAH on 4/13/2015 on a trip to Albuquerque, NM for continuing education. It was coiled. I am a self employed real estate appraiser in East Texas. 51 years old at the time. Male, was a smoker and fairly heavy drinker. No longer. Grade 4 SAH on the Hunt and Hess scale, out of 5, which means I had a 20% chance of survival. Then you figure in I had Torsen's syndrome, blindness caused by blood forced into the eyes from the bleed. I've read that Torsen's syndrome multiplies your chances of the SAH being fatal by 4.8. Sorry if these topics have been covered before or if my statistics are not accurate. Make no mistake, I don't know much medically. Anyway, apparently the odds were against me surviving but I did. Was blind in both eyes for about four months before having a surgery to restore my vision. The synthetic fluid used to replace ones natural fluid in the eyes caused cataracts. Then had cataract surgery a few months later. A breeze compared to what else we have been through. I don't remember the event or anything else for 5-6 weeks. Spent 26 days in Neurological ICU in NM, my wife says (My unbelievable caregiver). Flown on Medical plane to a suburb of Houston and spent another month or so in rehab before be discharged for PT in my hometown, 60 miles north of Houston. Went through 6 weeks of PT in my hometown. Another 3 months in another, highly touted, physical therapy institution in Houston. Made significant improvement but still had, and still have, physical deficits including balance, walking/gait and fatigue. Thankfully no depression, which is amazing, as I had major depression prior to the explosion in my brain, since 2001. All the improvements in the deficits continue, though at a much slower pace than I wish. I am, however, very grateful for any progress! I could go on and on. But don't know how much information would be useful. I, like everyone else, would like to know when, or if, I will fully recover? I don't think any human, knows. What I do know, is I will continue to strive for it
  25. I had a SAH on the right side of my brain 2 months ago. With a 100% blockage on the left side . This has been the worst nightmare. At least I am still alive, but the pain I continue to have is unbearable. Not only the migraines, but different pain in my legs and arms. No one seems to be especially concerned with the pain I am in. After the first angiogram in the hospital, they kept me in neuro ICU for 5 days. I had a second angiogram a 2 weeks after. The neurosurgeon said he wants to put in a stent and that he thinks this needs to happen sooner than later. 2 weeks later we go to an appointment, he states he wants to put me on Plavix, then he will schedule the angioplasty. I return a month later with no further tests and he tells me he is not doing the angioplasty (with no real explanation). The brain spasms(vasospasm) kept for about a month. I think I still have them. Best way to describe is squishy head. I have episodes where I lose balance, my vision will have a vibration effect, bursts of white stars where I almost fall. I take 10mg of Norco and the pain still will not go away. However, the neurosurgeon said the migraines have nothing to do with with the SAH and gave me Fioricet ( which does not work). I had migraines before, but nothing like this. Not to mention, these are WAY different than any migraine prior. I can't work full-time. I am so sensitive to all light, especially the sun. I cannot look at my computer at work for more the 4-5 hours. I sit in my home after work crying half the time. I am scared to do anything strenuous or exciting, bending over hurts my brain(blood rushing), being outside in full sun hurts my eyes(even with sunglasses on). I have had about a total of a week relief(combined days) in 2 months from migraines. Hopefully, this new neurology appointment June 1st will come up with a treatment plan. Can anyone help with any suggestions?
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